Active journals

Chest Discomfort

  • By jvandix · New reply April 1, 2014
  • 17 replies
  • I have CREST that was diagnosed in 1996. I have digestive issues but they have been controlled by meds. Lately, I have been having discomfort in my chest after eating or drinking. It is not a burning ...

Fundoplication Surgery!!? GERD.

  • By Chanel2010 · New reply April 1, 2014
  • 56 replies
  • Hello, I have severe GERD due to my non functioning lower esopheal sphincter. Due to the acid constantly washing back into my esophagus I asperate often. My doctor today expressed the worry that I am ...

The Little Frog Teachable Moment

  • By live2b100 · New reply April 1, 2014
  • 5 replies
  • It was shortly after I was diagnosed with Scleroderma in the summer of 2011. I sat in my kitchen homeschooling my daughter and a little frog (toad) had gotten into the house. Home-schoolers take every ...

My Sclero Warrior

  • By tedtell1 · New reply March 30, 2014
  • 42 replies
  • Friends; My beloved wife, Sue passed away at 2:45 this morning. Thanks to everyone for your support and prayers. While this was a difficult and challenging journey, Sue's mixture of faith and strength ...

I'm NO Quitter....

  • By MaBarley · New reply March 29, 2014
  • 7 replies
  • I have to share this in hopes these lyrics will strengthen and encourage somebody else like it did me. WE ARE STRONGER THAN WE THINK, our bodies ache, but the REAL BATTLEFIELD is in the MIND: Track this ...

progress notes

  • By BarbW · New reply March 29, 2014
  • 2 replies
  • I am still on minocycline. The scleroderma is not totally in remission. But, those of you in the eastern half of the US will get this: This winter, as horrible as it's been, my Raynaud's has not been ...

Low Fodmap diet and what as ensued as a result!

  • By DaisyDo · New reply March 28, 2014
  • 17 replies
  • I think a lot of you have ereaders of various sorts, so bear with me and you'll find out where this leads. Last month my gastroenterologist said I need to go on a low fodmap diet. So of course I researched ...

Twin Cities Support Group meets this Wednesday

  • By Lillie_jane · Posted March 25, 2014
  • 0 replies
  • Twin Cities East Metro Support Group Our next Scleroderma Support Group meets on Wednesday, March 26, 2014, at the Battle Creek Recreation Center, located at 75 Winthrop St. South in St. Paul. We meet ...

Whoo Indeed

  • By tiny1966 · New reply March 25, 2014
  • 5 replies
  • Have been entertaining myself making vintage posters with a new app. Keeps my mind occupied some ...

Waiting on the Sun

  • By LLLV60 · New reply March 24, 2014
  • 3 replies
  • It has been cold again with snow. Ankle and knee still a bother. Waiting for the sun to come back and thaw me out. Guess if no improvement I will have to see the Doc..don't know what he can do that I ...

Easy Ope? Since When?

  • By joylav · New reply March 24, 2014
  • 9 replies
  • Have you ever noticed that if it says easy open it will be a challenge? They certainly don't make easy open for those with hand issue You either have to cut it open, find an opener, or ask someone to ...

husband playing games again

  • By tashan74 · New reply March 23, 2014
  • 62 replies
  • I'm frustrated. After weeks of asking and begging for help with vacuuming, cleaning bathrooms and making the bed I finally just did it myself. I got mad because my husband knows how hard this is for me ...


  • By joylav · New reply March 23, 2014
  • 8 replies
  • Noticing that I have one finger contracting a little more at a time. My right forefinger has been slightly contracted when at rest for quite awhile now, but am noticing that I get severe pain in my hand ...

Leg or Foot Massage Devices???

  • By Duvie · New reply March 23, 2014
  • 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

I really need prayers

  • By KAYE45 · New reply March 21, 2014
  • 28 replies
  • Aside from this darn scleroderma which is really starting to progress little by little - - I can't really complain - - angry I have it yes, but complain no. I need everyone to pray really hard. My hubby ...

Low FODMAP diet for bloating

  • By DaisyDo · New reply March 21, 2014
  • 22 replies
  • I discussed with my gastroenterologist the bloating and episodes of diarrhea that I sometimes get almost immediately after eating certain things. I also mentioned that I have acne rosacea and that, that ...


  • By Meng · New reply March 20, 2014
  • 31 replies
  • After three years of doctors visits, I was diagnosed of having scleroderma. I have to say that the rheumatologist did not know much about the disease. The only thing he said was that I had to start wearing ...

You Might Be A Scleroderma Patient if......

  • By grandmacandi · New reply March 20, 2014
  • 64 replies
  • Today my entry is outside of my BATTLES series I have started, and is a poor play on Jeff Foxworthy "You Might Be A Redneck" humor. Just some realistic observations to hopefully make you smile! You Might ...

Just letting you know what is going on

  • By scootergirl44301 · New reply March 20, 2014
  • 19 replies
  • Well one of my friends on here suggested that last month the breathing issues I was having could be caused by Ascites but both the hospital and my own PCP did not give this a thought back in February ...

Who has Neuro Pain Stimulator Implants? Need Feedback!

  • By mama4evR · New reply March 20, 2014
  • 33 replies
  • Hi everyone, just so you'll know who I am......I have a new screen name. It used to be ksb1205 (Kat) but I changed it to remind myself that since the loss of my daughter a couple of years ago, I will ...

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