Active journals

Leg or Foot Massage Devices???

Duvie
  • By Duvie · New reply March 23, 2014
  • 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

I really need prayers

KAYE45
  • By KAYE45 · New reply March 21, 2014
  • 28 replies
  • Aside from this darn scleroderma which is really starting to progress little by little - - I can't really complain - - angry I have it yes, but complain no. I need everyone to pray really hard. My hubby ...

Low FODMAP diet for bloating

DaisyDo
  • By DaisyDo · New reply March 21, 2014
  • 22 replies
  • I discussed with my gastroenterologist the bloating and episodes of diarrhea that I sometimes get almost immediately after eating certain things. I also mentioned that I have acne rosacea and that, that ...

SYSTEMIC SCLERODERMA

Meng
  • By Meng · New reply March 20, 2014
  • 31 replies
  • After three years of doctors visits, I was diagnosed of having scleroderma. I have to say that the rheumatologist did not know much about the disease. The only thing he said was that I had to start wearing ...

You Might Be A Scleroderma Patient if......

grandmacandi
  • By grandmacandi · New reply March 20, 2014
  • 64 replies
  • Today my entry is outside of my BATTLES series I have started, and is a poor play on Jeff Foxworthy "You Might Be A Redneck" humor. Just some realistic observations to hopefully make you smile! You Might ...

Just letting you know what is going on

scootergirl44301
  • By scootergirl44301 · New reply March 20, 2014
  • 19 replies
  • Well one of my friends on here suggested that last month the breathing issues I was having could be caused by Ascites but both the hospital and my own PCP did not give this a thought back in February ...

Who has Neuro Pain Stimulator Implants? Need Feedback!

mama4evR
  • By mama4evR · New reply March 20, 2014
  • 33 replies
  • Hi everyone, just so you'll know who I am......I have a new screen name. It used to be ksb1205 (Kat) but I changed it to remind myself that since the loss of my daughter a couple of years ago, I will ...

Current Battle ROTATOR CUFF part two

grandmacandi
  • By grandmacandi · New reply March 19, 2014
  • 1 reply
  • Went to my Ortho Surgeon yesterday and had my lovely left shoulder evaluated. GREAT NEWS....no rotator cuff damage. I was thankful to hear that....didn't want to have to face that surgery! He indicated ...

pregnacy and scleroderma is it dangerous?

Melinda27
  • By Melinda27 · New reply March 19, 2014
  • 10 replies
  • My husband and I have started toying with the idea of having children, but we are concerned that I may not be able to physically handle the pregnancy and taking care of the child after. I have limited ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

My Journey

KatieKinson
  • By KatieKinson · New reply March 19, 2014
  • 5 replies
  • Living life with Scleroderma hasn't been easy. I have struggled with physical, mental, and emotional pain caused by the disease. Self-image and confidence have always been the hardship of my life. I never ...

Hospice

tedtell1
  • By tedtell1 · New reply March 18, 2014
  • 14 replies
  • Thursday Sue and I met with a hospice care team. Sue has decided to discontinue dialysis and accept hospice care. I will give you all updates as we go through this process. Sue is currently having a lot ...

Current Battle ROTATOR CUFF

grandmacandi
  • By grandmacandi · New reply March 18, 2014
  • 14 replies
  • Well, my friends....Scleroderma has reared her ugly self again for me. I have had a pretty decent year with no major flare-ups. About 3 months ago, I felt tightening in my left shoulder. My first symptoms ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Have Morphea, Lichen sclerosis Now Have NHL

babycatcher
  • By babycatcher · Posted March 18, 2014
  • 0 replies
  • Went for an US to rule out gallbladder disease and was diagnosed with enlarged mesenteric lymph nodes. After a CT scan and laparoscopic biopsy---Non Hodgkins Lymphoma- Follicular type Grade 1 . A round ...

thanks for replies

garytoni25
  • By garytoni25 · New reply March 18, 2014
  • 2 replies
  • Just read the replies and thank you. The blood work was redone and my liver is fine. I have had other tests done and now being told I have an infection in my colon. Crazy! It just seems like it's one ...

Leaky heart valve anyone?

Thoughtpet
  • By Thoughtpet · New reply March 17, 2014
  • 5 replies
  • After final heart echo, they see little leaky heart valve. Is that a possible complication from limited systemic scleroderma or mixed connective tissue disease ...

doing hapy dance

tashan74
  • By tashan74 · New reply March 16, 2014
  • 15 replies
  • I woke up today, put pills in hand and could actually see them. I haven't been able to see close up for a couple months so I'm guessing the reduction in prednisone is lessening the swelling in the eye ...

Dallas Ft. Worth area scleroderma specialist?

Thoughtpet
  • By Thoughtpet · New reply March 16, 2014
  • 3 replies
  • Best I can find is Houston. Anyone know of one in Dallas Ft. worth area by chance ...

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