Seeking More Natural Therapies

  • By Hannah7287 · Posted yesterday at 11:23 pm
  • 4 replies
  • As I fill up my daily medicine container for the week I am sickened by the number of pills I take. 17, plus 3 others on an "as needed" basis, then vitamins to top it all off. And the number of prescriptions ...

ini Metdown at Dr

  • By joylav · Posted yesterday at 8:20 pm
  • 4 replies
  • Today I had a checkup with my GP and had a mini-meltdown. How grateful I am for a doc who listens and understands the frustrations that come with Limited Ssc. I am really struggling with my job right ...

Kindness of Friends

  • By Barnsey · Posted yesterday at 6:44 pm
  • 8 replies
  • I know that so many of us have stories that involve loss...of independence, of family support, of friends turning away. I just wanted to share an incredible story of this past weekend, and the kindness ...

"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted April 15, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...


  • By JaymeH · Posted April 15, 2014
  • 9 replies
  • Why are there people un able to even attempt to understand another's opinion. Why is it so hard to allow everyone their feelings. Just because someone see's things differently does not mean they are a ...


  • By cathibikes · Posted April 15, 2014
  • 6 replies
  • How long does it take before the swelling starts in the hands? Does it come and go or stay swollen ...

Staten Island Support Group Meeting!

  • By Jeanne13 · Posted April 14, 2014
  • 0 replies
  • April 26th.. Staten Island Support Group is meeting . Our meetings are at the SIUH on Seguine Avenue in the Board Room on the main floor. We meet from 1pm to 3pm. Come join us for information and meeting ...

Back from Costa Rica

  • By DaisyDo · Posted April 14, 2014
  • 35 replies
  • If I have been unusually quiet lately, it is because I have been in Costa Rica for the past 8 days. The couple posts I did make were garbled by my Nook. Sorry! Anyway, what an amazing experience it was ...

Massage Therapy?

  • By Johanneinsc · Posted April 13, 2014
  • 10 replies
  • So, I went to a Massage Therapist that was highly recommended a week ago, as she works in Sports Medicine, and I have been struggling with a painful bicep/shoulder that my doctor could not diagnose (even ...

Well, here I go! Positive test for CREST...

  • By Johanneinsc · Posted April 12, 2014
  • 22 replies
  • Hello, all! My name is Johanne, and I'm new to this community. I was recently diagnosed with Connective Tissue Disease, with a positive blood panel for CREST. My Rheumy said he hated to even name it with ...


  • By haileykarlyn · Posted April 12, 2014
  • 0 replies
  • I have really bad calcinosis in a couple fingers. I once had surgery to remove them from one thumb. Not successful. Due to severe damage surgeon missed a few. My Rheumatologist was beside himself saying ...

Sunshine....and a little wind

  • By joylav · Posted April 12, 2014
  • 4 replies
  • So nice to finally see the sun shining most every day again. Admittedly we are getting quite a bit of wind, but it's nice to see the sun out and a little warmer weather. Somehow, it always helps me feel ...


  • By Randy9 · Posted April 11, 2014
  • 0 replies
  • this is how my forehead looked before the injection ...


  • By Randy9 · Posted April 10, 2014
  • 1 reply
  • I was goofing around at our San Diego jail museum. I have had an injection of material that filled in the deepest part of my 'saber cut'. I don't think I'll continue this because it's not permanent and ...


  • By sjcrnbsn · Posted April 8, 2014
  • 2 replies
  • Jo Joe, i am so sorry that this disease has put you in this position. I am still waiting on a diagnosis and scared to death. I will pray for you every day ...

4 Weeks Out!

  • By KatieKinson · Posted April 7, 2014
  • 5 replies
  • Saturday marked 4 weeks away from my competition. This is by far the hardest journey I have ever endured. It started getting to me on Friday when my craving for a cheeseburger was more than I could handle ...


  • By amsanch99 · Posted April 7, 2014
  • 2 replies
  • Today I see the VA Rheumy. I am nervous. I am hoping to get a definite diagnosis and prognosis for the other CTD that I have had for many years. When I saw an "outside" Rheumy, she diagnosed me with seropositive ...

joint pain

  • By DebAmoroso · Posted April 7, 2014
  • 6 replies
  • Does anyone else with morphea have severe muscle and joint pain? My legs and shoulders have been hurting so much I can barely function and I'm not sure what to do ...

Opinions Wanted

  • By Confused16 · Posted April 6, 2014
  • 23 replies
  • Hello Everyone! I just joined a few days ago and wanted to ask for opinions about symptoms I have been experiencing over the past few years, as well as, blood work results that have received in the past ...

Little gremlins inside!

  • By joylav · Posted April 6, 2014
  • 9 replies
  • Help, little gremlins are stealing part of me everyday! Tripping over my own feet more and more everyday Now, I'm losing muscle mass and getting weaker. It' a challenge to continue my job as it demands ...

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