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Georgia Info

vgo
  • By vgo · Posted October 10, 2011
  • In Systemic scleroderma · 28 recommendations
  • My mother is 56 and diagnosed with Crest. She is in pain every day, her hands are curved. Her skin around her ankle is so tight it makes it difficult to walk. She is loosing hair, we thought she had recovered ...

If Applying for Social Security Disability - You should know this

Peggy59
  • By Peggy59 · Posted June 10, 2009
  • In Systemic scleroderma · 12 recommendations
  • I see on so many posts of people who are so desperately trying to get Social Security disability, some for years even. In 2008 Social Security made a ruling called "compassionate allowances" and Scleroderma ...

Indepth info on Scleroderma-best i've ever read-long but worth it

mcmanda73
  • By mcmanda73 · Posted June 27, 2013
  • In Newly diagnosed · 9 recommendations
  • I know this is long but it might be a good one to print out to give to family members so they know what you are going through. Especially good for MD appointments. What I like the most is the detailed ...

Pet Photos- Share pet names and photos to uplift spirits !

ccjo106
  • By ccjo106 · Posted March 4, 2014
  • In General discussion · 5 recommendations
  • Pet babies/ buddies. I love my cat and she brightens every day! Share your pet photos:) Diva----My short hair Tabby. She's sweet and independent ...

Facial changes small mouth thinning lips

grace88
  • By grace88 · Posted August 10, 2011
  • In Newly diagnosed · 5 recommendations
  • Scleroderma has made my mouth smaller and lips thinner. I feel my jaw pressing against my teeth and I get headaches sometimes. Fortunately , the changes in my face are not noticed by others. But It gets ...

Antibiotic protocol

ceastport
  • By ceastport · Posted August 21, 2009
  • In Treatment options · 5 recommendations
  • Has anyone out there had experience with monocycline treatment, if so what have your results been? The testimonies I have read are amazing. If this is so good why aren't all doctors using it? All comments ...

Found a Cure for Scleroderma

sanique
  • By sanique · Posted June 8, 2009
  • In Treatment options · 5 recommendations
  • I just got back from jamaica and i tell you it was a pain free vacation. before i went my skin was so tight and alot of pain. i went to jamaica and my skin was so loose. and the other thing i did was ...

Need help deciding.

MA33
  • By MA33 · Posted February 10, 2013
  • In General discussion · 4 recommendations
  • Can you guys let me know who is on SSI and how difficult it was getting it? I was diagnosed March 2012 and things are getting worse but i'm not sure if I should continue to work or try to get social security ...

Share your tips and tricks

Srichter0220
  • By Srichter0220 · Posted April 6, 2011
  • In Systemic scleroderma · 4 recommendations
  • I thought it was about time someone started a thread where everyone could share their small steps that ease their symptoms. Things that the doctors can't provide for us... 1. Yoga/Meditation - improves ...

Plaquenil and SEVERELY ITCHY SKIN! PLZ HELPPP!!!!

AmandaMichelle
  • By AmandaMichelle · Posted May 28, 2009
  • In General discussion · 4 recommendations
  • PLEASE HELP! I have been on Plaquenil (well the generic form-- hydroxychloroquine) since October, and for the past about 2 weeks, I have been SEVERELY itchy. My skin turns red, and it feels like something ...

Living with a loved one with scleroderma

neesestwin
  • By neesestwin · Posted January 10, 2014
  • In Family and friends · 3 recommendations
  • Would love to hear from anyone who is a caregiver and/or living with a loved one with scleroderma. I am new to the inspire family and I live with and care for my sister who has been living with scleroderma ...

How do you handle the anxiety?

Eclectic1954
  • By Eclectic1954 · Posted October 29, 2013
  • In How my diagnosis has changed my life · 3 recommendations
  • I was diagnosed with systemic sclero just a few months ago and am still processing this information. I visit this site every few days because I found that if I read it more often I start to become extremely ...

How I'm Finding Healing from Scleroderma

jennymccrary
  • By jennymccrary · Posted September 18, 2013
  • In How my diagnosis has changed my life · 3 recommendations
  • My journey began during 1991 when I had just been diagnosed with stage 2 lobular breast carcinoma. My two sons were 12 and 16 years of age at the time, too young for me to depart this world and leave ...

No sleep due to pain from finger ulcers

brisETP
  • By brisETP · Posted July 10, 2013
  • In Systemic scleroderma · 3 recommendations
  • Hi Friends Please help me, i have those terrible pains due to finger ulcer.i had few of them but some got better but still have couple of them on my right pointer finger.one under my nail and other on ...

Very important landmark study

DaisyDo
  • By DaisyDo · Posted April 8, 2013
  • In Systemic scleroderma · 3 recommendations
  • Has anyone seen this very important landmark study from the school of medicine at Dartmouth? The full study is at http://www.ncbi.nlm.nih.gov/pmc/articles /PMC3178333/ . But an easier to read synopsis ...

An advance in determining skin fibrosis

DaisyDo
  • By DaisyDo · Posted March 25, 2013
  • In Systemic scleroderma · 3 recommendations
  • Take a look at this article about a new non-invasive way to judge skin fibrosis. http://www.bioopticsworld.com/articles/2 013/03/oct-plays-important-part-in-new-q uantitative-imaging-biomarker-f.html ...

"Advances in Research Panel Discussion" 2012

DaisyDo
  • By DaisyDo · Posted January 2, 2013
  • In Systemic scleroderma · 3 recommendations
  • There is more and more evidence that scleroderma is a bunch of different diseases with similar fibrotic effects. Has everyone seen the 2012 Scleroderma Patient Conference videos at http://www.youtube.com/playlist?list=PLe ...

Can anyone shed some light on reading ANA lab results?

amynicole
  • By amynicole · Posted October 11, 2012
  • In Newly diagnosed · 3 recommendations
  • Sorry down tonight. Was hoping to come back from Dr.'s and have good news. He believes I have progressive Systemic Sclerosis. ANA was a 30 = 1:640. nRNP/Sm IgG Autoantibodies was 164.00 should be less ...

PainFull Ulcers On hands

RoxUrSox2013
  • By RoxUrSox2013 · Posted February 15, 2012
  • In Systemic scleroderma · 3 recommendations
  • How many People out there are suffering with Painfull Ulcers on their hands? If any does anyone know how to make the pain stop or go away for awhile? If so please let me know. Thanks ...

Alternative Therapy

Rich_N_Spirit777
  • By Rich_N_Spirit777 · Posted January 18, 2012
  • In Localized scleroderma · 3 recommendations
  • Hello I just wanted to share with you all... I was diagnosed with 80% of the right side my body covered with harden skin in 2006 at age 34. I had a year of medical treatment and other things became worst ...

Things you can do

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