Discussions

Scleroderma Disablity

BrendaJordan

Carpal Tunnel Recurrence

EandMsMom
  • By EandMsMom · Posted April 8, 2014
  • In General discussion · 4 replies
  • I had open carpal tunnel release surgery in August 2012. I have recently had some symptoms return so they ordered a new nerve study. It appears that the nerve is trapped again. My family doctor said that ...

Very strange symptoms sent me to the ER

staryn1ghts
  • By staryn1ghts · Posted April 8, 2014
  • In General discussion · 4 replies
  • I ended up in the emergency room tonight with some very odd symptoms. I had been sitting on my sofa watching TV with my BF and all of a sudden my right side started to tingle and went completely numb ...

being there

hannaohhhsbaby
  • By hannaohhhsbaby · Posted April 8, 2014
  • In Systemic scleroderma · 6 replies
  • I really wish I could just take all her pain away. But I realize that all I can do is sit by and help her through it. But it just kills me to know there is nothing I can do ...

confusing PFT report

exotec
  • By exotec · Posted April 7, 2014
  • In General discussion · 5 replies
  • I have a copy of my PFT report here, which I pulled out because I keep seeing results quoted from others which I don't recall ever seeing on mine. That's because they aren't on mine in any form I can ...

Lung transplant and feeding tube placement

JoJoeGaray
  • By JoJoeGaray · Posted April 7, 2014
  • In General discussion · 31 replies
  • Ok so this is what I am waiting for... A Double Lung Transplant & a feeding tube placement. I was just wondering if anyone has gone through these procedures & if there is any advice you can give me. I'm ...

Hoarseness

carmie-s
  • By carmie-s · Posted April 7, 2014
  • In Systemic scleroderma · 2 replies
  • I have developed bad hoarseness. I have had it for 3wks. Of the morning it's not to bad but by lunch time it's horrible and by night I might say something and nothing comes out. Also if my throat gets ...

Rheumatologists in Orlando

rachelchel
  • By rachelchel · Posted April 7, 2014
  • In Localized scleroderma · 6 replies
  • Hey everyone, I was diagnosed with scleroderma when I was a child and went into "remission" as a teenager. Now I am 23 and have noticed the marks and symptoms returning. I need to go back to the doctor ...

Help finding a dr in clearwater, st. Pete. Florida

Esophagus
  • By Esophagus · Posted April 7, 2014
  • In Systemic scleroderma · 4 replies
  • I live in clearwater florida and I can't seem to find any drs.Who are very knowledgeable about this disease. Found plenty of rheumatologist, but none to familiar with sclero. Does anyone out there know ...

Itchy hands

DiKayCon
  • By DiKayCon · Posted April 7, 2014
  • In General discussion · 26 replies
  • I tested positive for scleroderma 2 years ago, but when seen the rheumatologist he told me I didn't have it. In February of this year I developed an itch on my face that I thought was an allergic reaction ...

Methotrexate

Chanel2010
  • By Chanel2010 · Posted April 7, 2014
  • In Treatment options · 4 replies
  • I have been on methotrexate (1cc/25mg Injections) now for over a year. Recently I have been completely unable to handle the injection. For the last few months I get extremely nauseous during and right ...

Southern California Virtual Support Group Meeting

PSSoCal
  • By PSSoCal · Posted April 6, 2014
  • In Systemic scleroderma · 1 reply
  • The Scleroderma Foundation of Southern California will be hosting a Virtual Support Group on Wednesday, April 9th at 11:30 PST Call in: 877.216.1555 Passcode: 981555 Please email socachapter@scleroderma.org ...

Scleroderma and cancer

kvbs
  • By kvbs · Posted April 6, 2014
  • In Systemic scleroderma · 12 replies
  • I am 59 yrs old. I have been diagnosed with Scleroderma - Systemic Limited since yr 2008. This year (2014) & past yr (2013) Scleroderma has been hitting me harder than ever. This past yr I have developed ...

Aloe Vera Gel, who uses this daily & how much is too much?

MahmC
  • By MahmC · Posted April 6, 2014
  • In Treatment options · 6 replies
  • My gym instructor swears by using aloe Vera gel in all of her fluids daily. She says it is great for your digestive system & cleanses out your body daily. Does anyone use this or have any comments about ...

Morphea spreading around my ribs!! Scared

Debnurse13
  • By Debnurse13 · Posted April 6, 2014
  • In Localized scleroderma · 1 reply
  • I am very worried my morphea started when I was 17 and was only on my inner thighs . Up until a few years ago it stayed that way . I just had a baby 7 months ago. My morphea is now on my legs, arms, buttocks ...

calcinosis remedy kinda

watergrl
  • By watergrl · Posted April 6, 2014
  • In Systemic scleroderma · 2 replies
  • I had mentioned on a thread that I was going to try using a salicylic acid product on my Calcinosis to see if it helps. I thought of it because what I thought was a stubborn pimple on my face due to the ...

Juicing for scleroderma

MahmC
  • By MahmC · Posted April 6, 2014
  • In Treatment options · 15 replies
  • Hi, has anyone tried juicing for scleroderma hand tightening. I'm watching an infomercial & I'm thinking this would help absorb nutrients, it's a "fusion juice" & it seems to be very nutritious. I think ...

Hello...

JoJoeGaray
  • By JoJoeGaray · Posted April 6, 2014
  • In General discussion · 13 replies
  • Newbie here! Just want to introduce myself and say Hello to everyone!!... My name is Jo, diagnosed in 1998 with scleroderma and I'm currently waiting a Double Lung Transplant. I am a wife to a very supportive ...

Change your world, change your words

daytoday123
  • By daytoday123 · Posted April 5, 2014
  • In How my diagnosis has changed my life · 10 replies
  • Think about what you are thinking about. Anyone else out there know any scleroderma cases of spontaneous healing. I know of two I want to share. The first was cited in the book Spontaneous Healing by ...

Open sores on cheeks

floridakaren
  • By floridakaren · Posted April 5, 2014
  • In Systemic scleroderma · 2 replies
  • One more new problem! I have had Systemic scleroderma for over 13 years now. I am also on oxygen 24/7 for PAH. I have dark patches on my face, nose, around my mouth and cheeks due to the Minocycline I ...

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