Hi! We too are newly diagnosed and I just posted in the Juvenile Scleroderma section (mostly because there wasn't ANY discussion there at all yet).
My daughter is 10 but she had her first symptoms of the rash at 7.
Im still confused as what having this means for our situation and how much of her current JRA is really Scleroderma or what to expect from here.
*Edited to Add: After digging a little further, her symptoms look very much like Linear atrophoderma of Moulin. I certainly have a million questions for her Ped. Dermatologist at OHSU in a few weeks.
Edited June 15, 2009 at 11:41 pm