I was recently diagnosed with CREST or limited scleroderma after a battery of tests. So far the Raynaud's and the joint pains have given me the most issues. I am a 36 year old mom of 2 and the unknowns in this condition give me a lot of anxiety. I am still in the "wait and see" part where my rheumy will decide if it will be more of a chronic or acute issue.
I gave up gluten among other things and the joint pain has gone from about a 9/10 to a 2/10. Some days its not even there. Exercise has helped which is also a catch 22 if you can muster the energy to do it! Lost 30 pounds in the process. I am still trying to figure out how to get my circulation improved to heal an ulcer on my fingertip.
Has anyone out there been able to manage this successfully for years? I worry about losing the ability to use my hands and being able to work and provide for my family and not becoming a burden to them. I dont know anyone with this and most people around me just dont understand. Thanks