Hi you all. I just want to say again how thankful this board is here. On days when I feel lost and alone I am so thankful that I can come here. So I am looking for anyone who might have a similar experience to me. I was diagnosed in April, but we still are trying to get to the bottom of things. I suspect that I have had this for years and actually suspect I had it growing up. I have several joint deformations and have struggled since puberty with health. Anyway I had high liver enzymes on and off for several years.At the onset of this flare I had a
small kidney stone block my ureter back up my kidney. That has let to one heck of a spiral. I have had a complete lifestyle change since I was diagnosed and
many things have improved but the inflammation and exhaustion still remain. I will have a liver biopsy in two weeks b /c I continue yo have high enzymes and pain.As well as my CT scan shows changes. I just wondered if there was anyone out there with liver involvement or Ai liver disease. I am willing to to what ever it takes for now no doctor will touch me. I cant take any meds b /c the liver absorbs so much, and I feel like we are waisting precious time. I do have an appointment with a specialist at Duke in Aug and am trying to get in to see another.. Thanks for any advice...