Hello, this is my first post here. I am a health care practioner (on disability after 23 years) but I am totally confused. I have been "sickly" all of my life. My parents were told all of my ills were "all in her head". Then as a young adult I was told the same thing. When I was in my 30's I got my first pos. ana result but recieved no treatment...only told my "rash" was not contagious so I could go back to work in the NICU. I have periodic spells of confusion, falls and memory loss. I also have severe peripheral neruopathy, anti cardiolipin antibody syndrome, advanced cerebral atrophy, restless legs, asthma, migraines, fibro, osteoarthritis, GERD, dry eyes and mouth and skin, hair loss, brittle teeth (lost 8 upper teeth to breakage), rashes and itching, sun sensitivity, ulcers on my toes and debiliting fatigue. I almost died 5 years ago due to "dead gut syndrome" and had 3 major abdominal surgeries in 9 months. I have had diarrhea all my life. I am also currently having chemo for a relapse of non Hodgkin's lymphoma (MALT) I recently changed rheumatologists and she thinks that I may have MCTD. Obviously there must be something to tie this mess together. I want to be prepared for my next dr visit when I get my test results (for raynaud's, scleroderma and lupus).
Any insights are most welcome.