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A cure for scleroderma????

JoJoeGaray
  • By JoJoeGaray · New reply 10:12 am
  • Discussion in General discussion · 14 replies
  • So excited!!!! Happy Tears!!!! Omg..... It's so close,,,,,, I was having such a bad day until this! \f0\fs26 \cf2 \cb3 \expnd0\expndtw0\kerning0 \outl0\strokewidth0 \strokec2 http://www.clickondetroit.com/news/MSU-r ...

opinions on symptoms

bama_born
  • By bama_born · New reply 9:42 am
  • Discussion in Systemic scleroderma · 7 replies
  • Hi all Happy Monday to you! I'm posting here to get some advice. I have been googling and reading medical stuff on the internet for the past few weeks and I can't shake this feeling of concern, which ...

foundation yips

lucy118
  • By lucy118 · New reply 9:27 am
  • Discussion in General discussion · 3 replies
  • I am post menopausal 54 yr old woman.diagnosed 18 months ago with systemic limited sclero. as the seasons change here in new england loiking to change my foundation.any one had good experience with ones ...

Cure insight

Barksdale
  • By Barksdale · New reply 9:09 am
  • Discussion in Systemic scleroderma · 1 reply
  • https://m.facebook.com/story.php?story_f bid=10202952482946413&id=1033748847 ...

Inflammation

Lynnski
  • By Lynnski · New reply 8:21 am
  • Discussion in Treatment options · 7 replies
  • Are any of you on an anti-inflammatory diet? I'm looking for guidance on what I should be eating and drinking. Also what supplements I should take. Thanks ...

red face and loose front teeth and diffuse dx

fletcher21
  • By fletcher21 · New reply 8:02 am
  • Discussion in Systemic scleroderma · 26 replies
  • Hello everyone - I have asked this before but it is so frustrating. I have a red face ( sometimes it is very itchy like the sides of my face) and it gets more red at certain times. My teeth in the front ...

Skin Itching

Kelownagirl58
  • By Kelownagirl58 · New reply 7:49 am
  • Discussion in Systemic scleroderma · 14 replies
  • I just sent a post and forgot to mention y skin is extremely itchy right now. I have a lot of body pain as well ...

Sick of wearing gloves!

theswordpen
  • By theswordpen · New reply 7:40 am
  • Discussion in Newly diagnosed · 15 replies
  • Ever since my Raynaud's has onset I haven't been able to even wash my hands without having to put on my gloves after because they turn to icicles! It's emotionally taking a toll on me to have gloves and ...

Exercise with PAH

sootys
  • By sootys · New reply yesterday at 11:34 pm
  • Discussion in Systemic scleroderma · 7 replies
  • I have PAH and am on a lot of medication and now feel well enough to exercise. I started on Saturday for approx 25 minutes on my exercise bike, not mad of course, just a steady pace, then on my weights ...

Finger ulcers

Catford123
  • By Catford123 · New reply yesterday at 11:33 pm
  • Discussion in Systemic scleroderma · 6 replies
  • Are there anything to help the the pain of these finger ulcers ...

Progresson

cathibikes
  • By cathibikes · New reply yesterday at 11:28 pm
  • Discussion in Newly diagnosed · 3 replies
  • How quickly did you all notice the change in your hands/body once you saw the Raynaud's ...

Methylprednisone vs prednisone

JoJoeGaray
  • By JoJoeGaray · New reply yesterday at 11:19 pm
  • Discussion in General discussion · 3 replies
  • I was on Prednisone like so many of you guys & just like you too, I hated the side effects, Absolutely hated this medication!! I told my rheumatologist that I refuse to take this anymore. So he prescribed ...

12 th Annual Sacramento “Stepping Out to Cure Scleroderma” 5k Run & 2m

Jujuann
  • By Jujuann · Posted yesterday at 10:53 pm
  • Discussion in Family and friends · 0 replies
  • I will be participating in the 12 th Annual Sacramento “Stepping Out to Cure Scleroderma” 5k Run & 2m Walk and I need your support! My sister Mary was diagnosed with Scleroderma 13 years ago and her life ...

ssdi denied

tashan74
  • By tashan74 · New reply yesterday at 10:45 pm
  • Journal · 31 replies
  • I got my ssdi denial today. Actually was surprised since my job approved Ltd, but then again we are talking the government. I had to giggle because the letter states that I am being treated for scleroderma ...

Gastric bypass

Dawnritenour
  • By Dawnritenour · New reply yesterday at 10:40 pm
  • Journal · 4 replies
  • Md wants me to have gastric bypass not for weigh loss but because my esophagus is too weak for the fundapplication . They think I am micro aspirating causing my fibrosis to get worse . Has anyone had ...

Pulmonary rehab

JoJoeGaray
  • By JoJoeGaray · New reply yesterday at 9:49 pm
  • Discussion in General discussion · 8 replies
  • How is everyone? Hope you all had a great day!!! I'm finishing up my 8 week Pulmonary Rehab class and I must say Im a bit sad.... I went into it thinking "how much can this really help?" because I have ...

Video related to the Michigan State news from a few months ago

rockhopper
  • By rockhopper · New reply yesterday at 9:30 pm
  • Discussion in General discussion · 2 replies
  • http://m.clickondetroit.com/news/groundb reaking-scleroderma-research-being-done- at-michigan-state-university/25598280 ...

Retainer for my teeth

Bella428
  • By Bella428 · New reply yesterday at 9:27 pm
  • Discussion in General discussion · 9 replies
  • I recently had a retainer made for myself My teeth were always so straight but Seem to be crowding now awfully quickly Am I going to do damage by wearing it? I need some guidance and input Thank you ...

Sclerodactyly and Driving

JeffCMoran
  • By JeffCMoran · New reply yesterday at 9:23 pm
  • Discussion in How my diagnosis has changed my life · 12 replies
  • Hi everyone, My name is Jeff. I am new to this community but not new to scleroderma. I am the son and caregiver to a mother with scleroderma. My family and I are going through a difficult decision in ...

Venting

vinlorent
  • By vinlorent · New reply yesterday at 9:14 pm
  • Journal · 4 replies
  • Ok, I just have to vent. I just had my 17 yr old granddaughter say to me that I "baby" myself and should get a job. If I can push myself at home to do the things I do then I should be able to work. I ...

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The Scleroderma Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Scleroderma Foundation, an Inspire trusted partner.