Active journals

I did it again...

  • By hinsopa · New reply 11:49 am
  • 11 replies
  • Check out my new post at Come join us over at my blog ...


  • By MAXINEZ · New reply 11:05 am
  • 17 replies
  • Am having difficulty sleeping tonight so here I am on the computer. Maybe it is the chemo I had today. Know many go through this so am not complaining. Found the following on the wall of my Oncologist ...

A new story i wrote tell me wat ya think!!(:

  • By MinionFreak2014 · New reply yesterday at 5:02 pm
  • 6 replies
  • God is always there! Do you ever feel like you’re alone? You’re not worth it? Or that nobody loves you? Well stop thinking that because its not true, God is always there, he thinks you’re worth it and ...


  • By MAXINEZ · New reply yesterday at 4:24 pm
  • 26 replies
  • The Good is that I am married to the most wonderful, sweetest, supportive and caring wife in the world. The Good is that I am receiving support from the great people here at Inspire. I do not have the ...

A week of celebration

  • By AlexMelina · Posted April 21, 2014
  • 0 replies
  • This past week my family was in town from Minnesota, I put every thought of my TMEP in the back of my mind and just partook. I was drinking and eating whatever everyone else was. There was a couple times ...

Things that can help relieve STRESS

  • By chaplainstevens · New reply April 21, 2014
  • 10 replies
  • 1. Go outside and breathe fresh air get out of the house 2. Do something for yourself.....go get your favorite milkshake and just chill 3. Go see a funny movie 4. Go visit someone that you love 5. Talk ...

Decided to post my entire story (mostly)

  • By kdg1213 · New reply April 21, 2014
  • 27 replies
  • I am a 23 year old girl who was overweight for most of her life. I lost a bunch of weight in an unhealthy way back in 2009. Then I decided to get healthy. In January of 2011 I started to develop a problem ...


  • By kdg1213 · New reply April 20, 2014
  • 18 replies
  • Today was the firs time I really tested my heart since all these surgeries began, and I feel GREAT! I am so proud or myself ...

You are ALL Heroes!!!

  • By chaplainstevens · New reply April 20, 2014
  • 6 replies
  • “We are hard pressed on every side, yet not crushed; we are perplexed, but not in despair; persecuted, but not forsaken; struck down, but not destroyed… Therefore we do not lose heart. Though outwardly ...

Back Pain Emergency

  • By Lucy_X_Yyvan · New reply April 19, 2014
  • 32 replies
  • How do you guys deal with the back pain the comes along with the winter cold? My entire back is inflamed and stiff, and it hurts to move or breathe, really. The pain is becoming unbearable, and I can't ...

QSART test result

  • By BehcetsGirl · Posted April 17, 2014
  • 0 replies
  • I went to the Cleveland Clinic recently and they did a QSART test (aka Sweat Test). The doctor just sent me the results. She said "it was decreased in the arm but normal in the leg." She also said that ...

"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted April 15, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Tackling this

  • By AlexMelina · New reply April 15, 2014
  • 1 reply
  • So today Ive decided to start doing everything in my power to relieve myself of symptoms from TMEP. Im thankful that I appear to have a mild case of it, but I do not want it to escalate. First things ...

Taking the sting out of cancer

  • By joyceg98 · New reply April 14, 2014
  • 4 replies
  • Mike and I spoke with Shannon and Dave from Wind River Cancer Wellness Retreats in the beautiful woods of North Carolina. They offer retreats -- free of charge -- to men and women living with any kind ...

Left eye swell and blister

  • By Jljar · Posted April 14, 2014
  • 0 replies
  • Hello I am a 46 young woman For the last 4 years stating suffering from an strange swelling of my left eye. The fist times with the swell had high fevers and no blister but I the past year specially I ...

MTHFR Genetic & Antibiotic Toxicity Dr! Woo HOO!

  • By mebefloxed · New reply April 13, 2014
  • 7 replies
  • Good morning everyone :) I am happy to report I found a Dr that is FINALLY helping me with my chemical sens from antibiotics, and my MTHFR gene issues ( C677t and compound het A1298C A/C ). I have been ...

Ilene, Lizzie and Joyce at IKCC

  • By joyceg98 · Posted April 11, 2014
  • 0 replies
  • Ilene Sussman, Lizzie Perdeaux, and Joyce Graff attended the International Kidney Cancer Coalition meeting in Amsterdam. Many of our global VHL partners were there too: Dr. Rachel Giles of the Netherlands ...

The video my big sista made for me!!

  • By MinionFreak2014 · New reply April 10, 2014
  • 10 replies
  • The viedo my big sista made bout me a few years ago man i have accomplished so much since then but diz viedo means a lot to me and im sure it will mean a lot to you too ...

New pain clinic

  • By skogenkatt · Posted April 10, 2014
  • 0 replies
  • I think I have found a pain clinic in Kirkland WA. Been accepted and 'script for 180 Endocet 10-325MG, same as Percocet. 30 days written. A lot of study on me, drug wise and otherwise/I feel good about ...

My story made it on the Riley's Blog Page!!

  • By MinionFreak2014 · New reply April 8, 2014
  • 17 replies
  • Heres the link to my story on the Riley's Blog Page! Im so happy to have made it on there and to be inspiring others like i am! I can honestly say im proud of myself!!(: ...
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