Active journals

Things that can help relieve STRESS

  • By chaplainstevens · New reply 5:42 pm
  • 4 replies
  • 1. Go outside and breathe fresh air get out of the house 2. Do something for yourself.....go get your favorite milkshake and just chill 3. Go see a funny movie 4. Go visit someone that you love 5. Talk ...

QSART test result

  • By BehcetsGirl · Posted 3:10 pm
  • 0 replies
  • I went to the Cleveland Clinic recently and they did a QSART test (aka Sweat Test). The doctor just sent me the results. She said "it was decreased in the arm but normal in the leg." She also said that ...


  • By kdg1213 · New reply 1:17 pm
  • 15 replies
  • Today was the firs time I really tested my heart since all these surgeries began, and I feel GREAT! I am so proud or myself ...

Back Pain Emergency

  • By Lucy_X_Yyvan · New reply 7:46 am
  • 28 replies
  • How do you guys deal with the back pain the comes along with the winter cold? My entire back is inflamed and stiff, and it hurts to move or breathe, really. The pain is becoming unbearable, and I can't ...

Decided to post my entire story (mostly)

  • By kdg1213 · New reply yesterday at 6:38 pm
  • 25 replies
  • I am a 23 year old girl who was overweight for most of her life. I lost a bunch of weight in an unhealthy way back in 2009. Then I decided to get healthy. In January of 2011 I started to develop a problem ...

"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted April 15, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Tackling this

  • By AlexMelina · New reply April 15, 2014
  • 1 reply
  • So today Ive decided to start doing everything in my power to relieve myself of symptoms from TMEP. Im thankful that I appear to have a mild case of it, but I do not want it to escalate. First things ...

Taking the sting out of cancer

  • By joyceg98 · New reply April 14, 2014
  • 4 replies
  • Mike and I spoke with Shannon and Dave from Wind River Cancer Wellness Retreats in the beautiful woods of North Carolina. They offer retreats -- free of charge -- to men and women living with any kind ...

Left eye swell and blister

  • By Jljar · Posted April 14, 2014
  • 0 replies
  • Hello I am a 46 young woman For the last 4 years stating suffering from an strange swelling of my left eye. The fist times with the swell had high fevers and no blister but I the past year specially I ...

MTHFR Genetic & Antibiotic Toxicity Dr! Woo HOO!

  • By mebefloxed · New reply April 13, 2014
  • 7 replies
  • Good morning everyone :) I am happy to report I found a Dr that is FINALLY helping me with my chemical sens from antibiotics, and my MTHFR gene issues ( C677t and compound het A1298C A/C ). I have been ...

Ilene, Lizzie and Joyce at IKCC

  • By joyceg98 · Posted April 11, 2014
  • 0 replies
  • Ilene Sussman, Lizzie Perdeaux, and Joyce Graff attended the International Kidney Cancer Coalition meeting in Amsterdam. Many of our global VHL partners were there too: Dr. Rachel Giles of the Netherlands ...

The video my big sista made for me!!

  • By MinionFreak2014 · New reply April 10, 2014
  • 10 replies
  • The viedo my big sista made bout me a few years ago man i have accomplished so much since then but diz viedo means a lot to me and im sure it will mean a lot to you too ...

New pain clinic

  • By skogenkatt · Posted April 10, 2014
  • 0 replies
  • I think I have found a pain clinic in Kirkland WA. Been accepted and 'script for 180 Endocet 10-325MG, same as Percocet. 30 days written. A lot of study on me, drug wise and otherwise/I feel good about ...

My story made it on the Riley's Blog Page!!

  • By MinionFreak2014 · New reply April 8, 2014
  • 17 replies
  • Heres the link to my story on the Riley's Blog Page! Im so happy to have made it on there and to be inspiring others like i am! I can honestly say im proud of myself!!(: ...

Essay: An Inconvenient Child

  • By ErnBird · New reply April 6, 2014
  • 14 replies
  • "My six-year-old son was suspended as a danger to others. His crime? A disability you could find in any classroom." "How Apraxia got my son suspended from school" written by a neuroscientist and father ...


  • By lori326 · Posted April 6, 2014
  • 0 replies
  • Central pa support group meets on April 19th 3-5 pm at the SUBURBAN OUTPATIENT PAVILION 2100 Harrisburg pike,lancaster pa 17604. 3rd floor conference room .Come share and make new friends. Lori ...


  • By MAXINEZ · New reply April 4, 2014
  • 17 replies
  • The Good is that I am married to the most wonderful, sweetest, supportive and caring wife in the world. The Good is that I am receiving support from the great people here at Inspire. I do not have the ...

Saw Gastro/Hep doctor today

  • By scootergirl44301 · New reply April 4, 2014
  • 6 replies
  • Well I saw me gastro/hep doctor at Cleveland Clinic today. When asked about the staging of my liver disease he admitted that I am currently in a state of mild decompensation and have moved my appointments ...


  • By MAXINEZ · New reply April 3, 2014
  • 25 replies
  • "God our Father, walk through my house & take away all my worries & illness & please watch over & heal my family & other families too...Amen ...

Today is the 1st day of Sarcoidosis Awareness Month

  • By Helivesinme · New reply April 3, 2014
  • 7 replies
  • Hi everyone Today is the 1st Day for Sarcoidosis Awareness Day. Please turn your photos purple for the month ...
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