Im 16 years old, and have just been diagnosed with Reflex neurovascular dystrophy or, (RND) this a painful neurovascular disease caused from extreme stress and anxiety that constricts the blood veins and reduces the supply of oxygen to the skin, muscles and bones. This lack of oxygen can cause acid to build up, causing new pain that is then sent back through the cycle to cause the neurovascular nerves to constrict the blood flow again. If untreated, the pain caused by RND can become so severe that it interferes with the patient's ability to move the affected body part. For example, if a patient had RND in his leg, he would develop problems walking. In 90% of RND cases, only one or two areas of the patient's body are affected. In the other 10%, RND affects the patient's entire body. Many full-body cases start normally in one or two areas, but progress and spread over time. RND is more common among girls than boys (80% of children with RND are girls). A rare symptom of RND is nausea, causing the child to vomit on a daily basis.
Yes, that is from wikipedia, lol. but unfortunaly, i am the 10% that cause to hurt all over and have the rare symptom of nausea ect. My RND affects my joints, my feet, my abilitly to do the activities i like to do, the mall, go shopping, run around with my little cousin. It affects everything. i get headaches often. I also have what the doctors have been calling "Pseudo Seizures"
I am fully awake, but shake like im having a full blown seizure. No, it has no affect to the brain, and i tend to laugh during them, not knowing what else to do. I also have sever leg numbness, that makes me unable to walk. My RND also creates pain all over. I have been dealing with this for almost 4 years now, and i am so ready to get well... Dr. Sherry, at the Childrens hospital of Philidephlia, has a program designed to help kids with this problem...I was hoping to go to CHOP, but the wait list is 6 months. So i will be going to another hospital that helps treat my symptoms to hopfully alllow me to be a normal teenager again.. It can take from 2-8 weeks of extreme physical therapy, occupational therapy, therapists, and ect to help get through this. My mind basically has decided to control how i feel and how im able to function. It sounds crazy, but its real. I just hope i can get into a program soon to help...i really dont know how to handle this anymore...i feel like i am alone in this....am i? can this REALLY away? Ive never gone a day without pain..it seems surreal.