Hi. I am new to this group for most of my life Ive been dealing with short bowel. until one fateful day in februray i woke with extreme pain. After months of problems I have been told that i most likely have hirschsprung disease that the SBS masked it for so many yrs. so i googled hirschsprung and found out that treatment was removal. but that not an option for me. It would only make the sbs worse. so what do u do when the treatment only makes things worse?