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23.3 weeker now almost 5, grade IV IVH, PDA...outcome update

LakaisMom
  • By LakaisMom · Posted June 20, 2013
  • Discussion in At home (years 1-5) · 1 recommendation
  • Hi! I dont really post here anymore, I do try to reply to some posts but with two kiddos its tough! I do however try to come back every once and awhile to share our story. Why? Well because when our son ...

PDA diagnosis

tonktank
  • By tonktank · Posted June 18, 2013
  • Discussion in In the NICU/PICU · 1 recommendation
  • I have a question on how your Dr's diagnosed your baby's PDA's. Did they just do it by listening or with an echo? And how long did they wait to do the test? I'm really curious on this one. My little girl ...

Twins 4 weeks behind at 21 weeks

Monique76
  • By Monique76 · Posted June 10, 2013
  • Discussion in Preemie pregnancy · 1 recommendation
  • I'm freaking out, I'm out of tears. At 8 weeks u/s, I found out I was pg with twins. Healthy and on track, DH and I was excited. At 12 weeks, I starting to bleed (worst then a period) uncontrollably ...

Zakhi update

zakhimmy
  • By zakhimmy · Posted June 7, 2013
  • Discussion in Introduce your very important preemie (VIP) · 1 recommendation
  • Zakhi is currently 22lbs 12oz crawling and pulling up. He gets his helmet off June 27 he wore it only 11 weeks. He is former 29 weeker. He had an high risk infant follow up app and they said he is actual ...

To parents dealing with brain bleeds/ hydrocephalus/PVL who feel at lost...

ourlittlebigman729
  • By ourlittlebigman729 · Posted June 1, 2013
  • Discussion in At home (years 1-5) · 1 recommendation
  • Hey everybody.. I just wanted to give some helpful words and my story to parents who are stuck for words/ self blaming/ just don't know what to do!! My son was born at 27 weeks.. He had brain bleeds on ...

Grandson Charles finally home!

KimCN
  • By KimCN · Posted May 26, 2013
  • Journal · 1 recommendation
  • After over 13 weeks in the NICU, and growing from 2 1/2 to over 9 lbs, my grandson Charles Xavier finally came home from the hospital today! A very happy day for all of us in his family ...

Hope for parents of preemies I am a preemie -don't believe negative reports

preemiesareawesome (Inactive)
  • By preemiesareawesome (Inactive) · Posted April 30, 2013
  • Discussion in Open discussion · 1 recommendation
  • I am a preemie. I was born on April 25 but my birthday should have been July 4th.I found this site as I was researching about adult preemies. I am a voice professor. Medical science says I should have ...

Oley Conference for People on Tube or IV Feeding

oleyfriends
  • By oleyfriends · Posted April 24, 2013
  • Journal · 1 recommendation
  • Oley Conference for People on Tube or IV Feeding You can’t afford to miss this chance to learn from the experts and meet others who live similarly. Cape Codder Resort & Spa Hyannis, Massachusetts June ...

Nicu H.O.P. E(Helping Other Parents Endure) Support Group

Aliasmom
  • By Aliasmom · Posted April 18, 2013
  • Discussion in In the NICU/PICU · 1 recommendation
  • May 18th 12pm Ronald McDonald House 1907 Holcombe Blv Houston, TX Past and present NICU parents are invited HOSTED preemieprints.org http://www.meetup.com/Houston-NICU-Paren t-Meetup-Group/events/113961042 ...

tips and best practices for brain development

babyaz
  • By babyaz · Posted April 5, 2013
  • Discussion in At home (years 1-5) · 1 recommendation
  • Hi, my son was born at 29 weeks and 6 days. He is 40 weeks now and will be discharged in a few days. I have read some research findings on the potential issues preemie at his age range will face, such ...

Sadie's Journey from 1 to 28 pounds!

madellamom
  • By madellamom · Posted April 4, 2013
  • Discussion in At home (years 1-5) · 1 recommendation
  • We had a scare yesterday and it brought back a flood of memories!! Sadie was born New Years Eve 2007 at 1pound and spent SIX!! months in the NICU. Anything and everything that could go wrong did, and ...

Alice

Alicesmommy87
  • By Alicesmommy87 · Posted March 13, 2013
  • Journal · 1 recommendation
  • Well I am starting to think my little Alice is never going to get a tooth! Long sleepless nights! Tugging at the ears but no infections! Gums sore but I am not feeling anything! Chewing on her hands or ...

knitted or Crocheted Hats...

John27
  • By John27 · Posted March 2, 2013
  • Discussion in Open discussion · 1 recommendation
  • My little former 27 weeker will be turning one in April. In celebration of life,love and hope I have started a Hat drive for the NICU where we spent 3 months and would like to donate them on his 1st birthday ...

constapation

modifiedmommy
  • By modifiedmommy · Posted February 27, 2013
  • Discussion in Open discussion · 1 recommendation
  • Hi I am a new time mom to a 26 week 6 day preemie whom is now 4 months actual and 2 months corrected. We finally took her home January 8th after a 3 month nicu stay. she has IVH grade 4s and chronic lung ...

Ng tube + vomit question

Megan_Vee
  • By Megan_Vee · Posted February 26, 2013
  • Discussion in Open discussion · 1 recommendation
  • Hi :) I have a quick question, but I will give a bit of background: my 16 month old son has had a ng tube in since last September, due to aspiration of all fluids. (Dysphagia?) We have always thought ...

Cerebral palsy in preemie?

claireyocum
  • By claireyocum · Posted February 24, 2013
  • Discussion in Preemies with CP · 1 recommendation
  • My jayden was a 25 weeker born weighing 1 lb 12 Oz. He didn't have any brain bleeds whenever he was Born and didn't have any major problems during his 102 day nicu stay. He has been seeing physical therapists ...

Diet for under-weight Preemies

Madyyy
  • By Madyyy · Posted January 31, 2013
  • Discussion in At home (years 1-5) · 1 recommendation
  • hello, m a mom of a 30-weeker preemie mom who is now 20 months old. her birth weight was 1 kg only, she was 6.5 kg few months back. All i wanna say z dat she has started gaining weight with my lotssss ...

20 months old Preemie girl still under-weight!!

Madyyy
  • By Madyyy · Posted January 24, 2013
  • Discussion in At home (years 1-5) · 1 recommendation
  • Hi all, my DD was born at 30 weeks of gestation with birth wgt. 1 kg only. she is now 20 months old, her current wgt. is 6.7 kg only. doctors keep on changing her formula, have kept her on iron, calcium ...

Baby food ?

k123q
  • By k123q · Posted January 19, 2013
  • Discussion in At home (years 1-5) · 1 recommendation
  • Hi everyone ! Let me start off by introducing my little one she was born at 23 weeks ! She weighed 1 pound 3 ounces, she's doing great now she is 10 pounds at 7 months actual and 2 n half moths corrected ...

26 WEEK PRETERM BABY

PATTABHI
  • By PATTABHI · Posted December 19, 2012
  • Discussion in In the NICU/PICU · 1 recommendation
  • DEAR ALL , THIS IS PATTABHI FROM BANGLORE . WE HAVE GOT TWINS ON NOVEMBER 22 , 2012 . THEY WERE BORN IN 26 WEEK IT SELF . SINCE THEN THEY HAVE BEEN KEPT IN NICU COLUMBIA ASIA , BANGALORE . BABY-1 WAS ...

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Narratives from the NICU -- Read the special report

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