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Preemie

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Preemie

New FDA committee talks patient engagement challenges and opportunities

Chronic-Inspire's journal

Chronic-Inspire

new-fda-committee-talks-patient-engagement-challenges-and-opportunities

200124

The FDA's Patient Engagement Advisory Committee held their first meeting last week. By Radha_Inspire Digital Editor, Inspire Early and consistent patient involvement along the spectrum of the clinical trials process – especially during the initial design stage – was the common refrain heard during last week’s inaugural public meeting of the FDA’s Patient Engagement Advisory Committee ... Read More

Preemie

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200124

  • 404 Replies
  • Processing ...

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

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Preemie

24 weeker how long your preemie take to sit up

In: Preemies with feeding issues

Babygirl20177

24-weeker-how-long-your-preemie-take-to-sit-up

200124

Hey guys I currently dealing with a 24 weeker who was born on Feb 3 of this year when my daughter was first born I was so lost and didn't know who and where to turn too she was only born with 1 pound 4 oz 11 inches tall ,grade 1 head bleed and also chronic lungs disease she spend 95 days in the NICU it was the longest journey ever.....well while my ava was in the nicu I did my research ... Read More

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Preemie

Pvl outcomes?

In: Open discussion

bthrandall

pvl-outcomes-1

200124

Hi. I wanted to reach out to other parents of infants diagnosed with PVL or other brain injuries. My daughter was born at 31 weeks due to my preeclampsia disorder. It was a planned c section and no birth trauma. After her first head ultrasound we were informed that she has a grade one bleed on the right and a grade two bleed on the left, both resolved. And the a spot of cyctic PVL ... Read More

Preemie

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200124

  • 1,052 Replies
  • Processing ...

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

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