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Peyronie's Disease

Your Peyronie's disease support group and discussion community

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Peyronie's Disease

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200226

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Peyronie's Disease

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-97

200226

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

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Peyronie's Disease

What are you thankful for?

Brian's journal

Brian

what-are-you-thankful-for-1

200226

As we approach Thanksgiving, many of us pause to reflect on what we are thankful for. The older I get, the more I realize that what really matters to me, far more than anything else, are my family and friends and colleagues at Inspire, the people who are close to me. In the past year alone, three of my friends have been diagnosed with cancer. Each time I heard the news I was sad, scared ... Read More

Peyronie's Disease

Peyronies on the move

In: Living with Peyronie's disease

ROJOGUY

peyronies-on-the-move

200226

Peyronie treatment just started I just started to realize the upward and to the left curve in my penis less than a month ago. I have no clue what could have caused this to happen but I'm not going to wait and see how bad it's going to get. I'm new to the forum and I'm 58 years old. I've done a lot of research which is how I came to this forum. I'm starting wirh oral vitamin E 400 iu ... Read More

Peyronie's Disease

Help with Traction Use and Plaque Near Head

In: General questions and comments

Grad777

help-with-traction-use-and-plaque-near-head

200226

My background: First developed PD in June 2013. Went to Dr. Marc Blasser in Jacksonville, FL in Sept 2013. I had a approx. 20-30 degree left bend starting at mid shaft with considerable pain upon erection near the head. I also believe I had some narrowing from mid shaft to head. He located BB size nodule about mid shaft. He then recommended oral Vitamin E, a compounded topical Verapamil ... Read More

Peyronie's Disease

Peyronie started by Hernia Surgery?

In: General questions and comments

guztavo1

peyronie-started-by-hernia-surgery

200226

Hi Guys, just signed up here and wanted to see if anyone had a similar experience. I was blessed with a perfectly straight penis that i took for granted, until about a year ago, when i had a bilateral hernia surgery (laparoscopic). The pelvic/scrotum area was swollen on both sides and they told me it was normal, after the swelling went away, around a month after the surgery, i noticed ... Read More

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Peyronie's Disease

Pokemon Go and the gamification of health

John2's journal

John2

pokemon-go-and-the-gamification-of-health

200226

Dear members, Like many, we’ve been watching the phenomenon of the Pokemon Go app, and not only many of our employees and friends are actively catching Pokemon, but several Inspire members have recently shared their experiences about how this has positively impacted their health. The game, as I suspect many of you know, allows players to use their mobile devices to explore real-world ... Read More

Peyronie's Disease

Inspire members are Experts by Experience

Brian's journal

Brian

inspire-members-are-experts-by-experience

200226

Dear members, I’d like to share with you Experts by Experience 2016: A compilation of patients’ stories, which we created together with Stanford Medicine. As you explore these stories, please also read the foreward by Jimmy Lin, the founder and president of the Rare Genomics Institute. Jimmy’s words capture the power of patient-centric medicine and the promise the future holds for ... Read More

Peyronie's Disease

Join us live for the Inspire Medicine X Halftime Show

John2's journal

John2

join-us-live-for-the-inspire-medicine-x-halftime-show

200226

9/15/16 Dear members, Starting today, some Inspire team members will attend Stanford Medicine’s Medicine X, a wonderful conference that genuinely focuses on patients and caregivers. Inspire co-founder and CEO Brian Loew has made presentations at Medicine X before, and he will be doing so again. Additionally, Inspire is a sponsor of the event this year. There are literally dozens of ... Read More

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