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Peyronie's Disease

Your Peyronie's disease support group and discussion community

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Peyronie's Disease

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200226

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

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Peyronie's Disease

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200226

  • 1,015 Replies
  • Processing ...

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Peyronie's Disease

Newly diagnosed with Peyronie's

In: Living with Peyronie's disease

dever1

newly-diagnosed-with-peyronies

200226

I am recently diagnosed with Peyronie's disease and just want to say, I am pretty freaked out. Not sure how much detail it is appropriate to give here, much less images or whatever, but anyone can talk please contact me. THANK YOU ... Read More

Peyronie's Disease

What’s in a number? The million member milestone

Brian's journal

Brian

whats-in-a-number-the-million-member-milestone

200226

Dear members, Last night, Inspire hit a milestone -- one million members. One thing that is clearer than ever is that the value of this community is created by you, every minute of every day. I often think that our job is to provide you a safe, supportive space, and then get out of your way. The words you write and the friendships you forge are things we could never create on our own ... Read More

Peyronie's Disease

Pulsed acoustical wave treatment

In: Other non-surgical treatment options

thebestjim

pulsed-acoustical-wave-treatment

200226

Has anyone ever heard of the "GAINSWave" treatment method for Peyronies? It uses high frequency acoustical wave pulses to breakdown the plaque causing Peyronies. It is also used to treat ED and apparently this type of treatment has been used in Europe for years. I've included a link so members can read more about it: https://gainswave.com/gainswave ... Read More

Peyronie's Disease

Implant trouble

In: Surgery

bruce1961j

implant-trouble

200226

Hi every one, I have peyronie's, was with a down word curve and soon the last inch and a half word not erect and would fold over during intercourse. had an implant put in in November 2016 In FortSmith Arkansas and the surgeon put things in wrong places so on the 16th of this month I have a new surgeon in Tulsa Ok that is going to do a penile implant revision surgery. yesterday the ... Read More

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Peyronie's Disease

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-97

200226

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

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