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Peyronie's Disease

Your Peyronie's disease support group and discussion community

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Peyronie's Disease

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200226

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

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Peyronie's Disease

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-97

200226

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

Peyronie's Disease

What’s in a number? The million member milestone

Brian's journal

Brian

whats-in-a-number-the-million-member-milestone

200226

Dear members, Last night, Inspire hit a milestone -- one million members. One thing that is clearer than ever is that the value of this community is created by you, every minute of every day. I often think that our job is to provide you a safe, supportive space, and then get out of your way. The words you write and the friendships you forge are things we could never create on our own ... Read More

Peyronie's Disease

Reflecting on our community

Brian's journal

Brian

reflecting-on-our-community-1

200226

Dear members, I'm writing to share with you a recent story about Inspire. We were honored to be described in this manner and particularly grateful to members Renata Louwers and Mike Lawing for their insights. Please share the article as you see fit. Also, Inspire employees gathered at our Arlington, VA office last week for a company retreat. We were joined by five Inspire members who ... Read More

Peyronie's Disease

Pokemon Go and the gamification of health

John2's journal

John2

pokemon-go-and-the-gamification-of-health

200226

  • 444 Replies )
  • Processing ...

Dear members, Like many, we’ve been watching the phenomenon of the Pokemon Go app, and not only many of our employees and friends are actively catching Pokemon, but several Inspire members have recently shared their experiences about how this has positively impacted their health. The game, as I suspect many of you know, allows players to use their mobile devices to explore real-world ... Read More

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Peyronie's Disease

Inspire members are Experts by Experience

Brian's journal

Brian

inspire-members-are-experts-by-experience

200226

  • 139 Replies )
  • Processing ...

Dear members, I’d like to share with you Experts by Experience 2016: A compilation of patients’ stories, which we created together with Stanford Medicine. As you explore these stories, please also read the foreward by Jimmy Lin, the founder and president of the Rare Genomics Institute. Jimmy’s words capture the power of patient-centric medicine and the promise the future holds for ... Read More

Peyronie's Disease

Peyronies on the move

In: Living with Peyronie's disease

ROJOGUY

peyronies-on-the-move

200226

Peyronie treatment just started I just started to realize the upward and to the left curve in my penis less than a month ago. I have no clue what could have caused this to happen but I'm not going to wait and see how bad it's going to get. I'm new to the forum and I'm 58 years old. I've done a lot of research which is how I came to this forum. I'm starting wirh oral vitamin E 400 iu ... Read More

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