Help desk

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  • By Aubbie09 · New reply November 13, 2012
  • 3 replies
  • I was wondering if anyone has had to have additional surgeries after having a spinal cord injury to remove the bars that stabilize the spine? I have horrible back pain right below the spot where my spinal ...

Baclofen Pump for Transverse Myletis

  • By Southern-Comfort · New reply September 2, 2012
  • 3 replies
  • My husband has Transverse Myletis, and has had it since 2009. He has tried all the oral drugs for his spasms and has had only little results with them. When he was taking the Baclofen orally, it actually ...

feet swell

  • By qnbee1230 · New reply March 30, 2012
  • 4 replies
  • My daughter does not think that my feet should swell like they do, but my doctor say it comes from being paraplegic. Is this true? some time they are so swollen i they look like pig feet LOL. Peace and ...

Preasures and Low Body Temperatures

  • By websurffer · New reply July 3, 2010
  • 3 replies
  • I have a c2/c3 spinal cord injury and have 2 preasure sores on my but, and have been running low body temperatures. Is there anybody else here with the same problem that think these are related ...

Looking for ideas

  • By bigdaddyjoe1179 · New reply July 2, 2010
  • 6 replies
  • I have a C6 incomplete injury, i've been in a wheelchair for 10years now I'm not like most C6 injuries I have complete feeling throughout my body, I have all my upper body movement, i want to Walk again ...

is it possible

  • By papito1 · New reply June 10, 2010
  • 3 replies
  • my doctor got back my lab report from my urine check for narcotics but it came back clean. one of my medication didnt show up which was methodone in which i take everyday ever since my accident. to him ...

i cant get rid of my bed sore

  • By AmandaBurkholder · New reply May 19, 2010
  • 29 replies
  • hello im amanda a 23 y/o female and i have had this bed sore for almost 2 years and it wont go away i tried all kinds of med,cream,packings and i cant get it to heal iwas in a nurshing home for a year ...

vs. lyrica

  • By pistol12507 · New reply April 16, 2010
  • 11 replies
  • I've been taking Lyrica for well over a year and the swollen legs are getting out of control. Have any of you taken Lyrica and had success with it and then switched to something else that worked just ...

More Pictures

  • By GregDoran · New reply March 18, 2010
  • 3 replies
  • How do we ask to get the site uploaded so we can post more than one picture ...


  • By tiger93 · New reply February 14, 2010
  • 77 replies
  • Hello has anybody heard anything about using low level laser therapy. To regenerate nerves in the spinal cord after its being injured ...

Floridia living for the disabled?

  • By websurffer · New reply February 8, 2010
  • 3 replies
  • Hi to all, Can anybody help? I would like to know what it is like for people that are paralyzed and live in Florida? I currently live in New York and would like to move south. I am 30 years old and have ...

changing profile

hyperbutterfly (Inactive)
  • By hyperbutterfly (Inactive) · New reply November 29, 2009
  • 2 replies
  • How do I delete my email address so it won't show up on my profile for everyone to see? I've tried and it won't work ...

HP184 trial

  • By kathyingwersen · New reply May 6, 2009
  • 6 replies
  • Hi, I'm new to the site. I live in Australia. Last year I was one of 240 world- wide spinal cord injured people undergoing stage 2 of the drug HP 184. I am a C5/6 quad, 6 years post injury, motor complete ...

Need Spinal cord Injuries Spacialist Dr's email adds plz help

  • By Zeeshanrk · New reply April 25, 2009
  • 9 replies
  • Hey guys i need some spacialist Drs of whom deal with Spinal Cord INjury Prob as m a SCI patient !! plz give me email adds thx ...

Arteriorvenous malformation?

  • By mikej2323 · Posted February 24, 2009
  • 0 replies
  • I'm new here and was wondering if anyone knows anything about "arteriorvenous malformations"? I know that they can cause a paralytic syndrome, but... 1) Can they cause a progressive paralysis of one side ...

i need help

  • By tizih · Posted February 23, 2009
  • 0 replies
  • i NEED HELP * Newest messages * Delete * Mark as unread tizih * By tizih * Today at 11:36 am had an accident to years ago and had a problem on my spinal cord. after a surgery, things instead went worse ...

An update about this community

  • By Brian · New reply October 9, 2008
  • 1 reply
  • This community was created by Inspire in partnership with the Christopher and Dana Reeve Foundation. The Reeve Foundation has now introduced a new community, found at ...

side affects

  • By tjames · New reply July 21, 2008
  • 2 replies
  • my son is a t6 para, he takes a bladder med. is "burning lips" one of the side affects? he has tried 3 different meds and still has this condition. Any suggestions ...


  • By sandramarlene · New reply May 24, 2008
  • 1 reply
  • logré que el hospital memorial herman me ayudará con mi tratamiento de paralisis y me envió una carta para tramitar mi visa a E.U. y el consulado de monterrey me nego la visa, solo porque no contaba con ...

what about stem cells for recovery?

  • By mariana · New reply May 4, 2008
  • 12 replies
  • I am wondering if stem cells would be an option for the recovery of patients.. at for least some kind of injuries... anyone else researching about this? please i would apreciate any information related ...

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