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Pancreatic Neuroendocrine Tumor (PNET)

Pancreatic neuroendocrine tumor (PNET) support group and discussion community

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Pancreatic Neuroendocrine Tumor (PNET)

Maintenance prrt with NED

In: Radiolabeled hormone therapy

stratford

maintenance-prrt-with-ned

200232

  • 3 Replies

Has a anyone had lu177 prrt after successful treatment for disease maintenance? I really can't find much out about this idea My last ct with contrast showed all tumours had melted away. We thought that 2 lg spots may be rogue tumours that resisted the treatments but my interventional radiologist examined all of my scans going back to post surgery and tells me that 1 of the spots is ... Read More

Pancreatic Neuroendocrine Tumor (PNET)

A blood test for predicting whether PRRT will be effective.

In: Radiolabeled hormone therapy

lacarrol

a-blood-test-for-predicting-whether-prrt-will-be-effective

200232

  • 7 Replies

An abstract at this week's 2016 ASCO (American Society of Clinical Oncologists) presents a study indicating that a blood-based multigene NET transcript analysis (NETest) significantly outperformed (p< 0.01) CgA, Ki67 and SRI (somatostatin receptor imaging) for prediction of PRRT efficacy. The study indicates that PRRT efficacy can be accurately predicted (83-94%) by pre-therapy blood ... Read More

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Pancreatic Neuroendocrine Tumor (PNET)

PD1/PD-L1 is the superstar checkpoint

fighterm's journal

fighterm

pd1-pd-l1-is-the-superstar-checkpoint

200232

  • 241 Replies

1980s and 90s were full of discoveries of immune checkpoints and immune costimulators. Due to that pioneering research of doctors and scientists we now have our new immunotherapy. (Took almost 25 years from the lab studies to clinic). Some of the study titles done at that time: 1. LAG-3, a novel lymphocyte activation gene closely related to CD4. 1990. 2. Induced expression of PD-1 ... Read More

Pancreatic Neuroendocrine Tumor (PNET)

Non functioning incidental pancreatic neurendocrine tumor

In: Watchful waiting

wcorsini

non-functioning-incidental-pancreatic-neurendocrine-tumor

200232

  • 30 Replies

I have a 16 mm non functioning pancreatic tumor in the uncinate process of my pancreas. Cytology of the lesion was low grade (Ki-67 stains <2%). Ct scan was otherwise normal. Two surgeons have offered a whipple procedure. Foreign medical literature documents enucleation of the lesion only although I can't find a USA surgeon who does it. Foreign literature also shows some being ablated ... Read More

Pancreatic Neuroendocrine Tumor (PNET)

2016 New York City NET Patient and Caregiver Education Conference

In: News and research

NETRF

2016-new-york-city-net-patient-and-caregiver-education-conference

200232

  • 2 Replies

November 10th is World NET Cancer Awareness Day. Mark the occasion and join us to learn more about the latest developments in research and clinical care for patients with neuroendocrine cancers. The NET Research Foundation, in collaboration with Montefiore Medical Center, will be bringing together distinguished medical professionals from the New York City region and beyond to present ... Read More

Pancreatic Neuroendocrine Tumor (PNET)

PEN-221/Pentarins

In: News and research

elgreato

pen-221-pentarins

200232

  • 5 Replies

On the horizon: Phase 1 clinical studies in mid-2016. PEN-221 is designed to target somatostatin receptors for treatment of patients with neuroendocrine cancers, including small cell lung cancer: http://www.businesswire.com/news/home/20 160127005371/en/Blend-Therapeutics-Secur es-38-Million-Series-Financing ... Read More

Pancreatic Neuroendocrine Tumor (PNET)

All of a sudden......

In: Symptoms/Side Effects

pgiuf

all-of-a-sudden-1

200232

  • 18 Replies

I am having some interesting symptoms for the last several months and I am getting a somewhat flippant response from my GI dr. I have been experiencing incredible abdominal bloating and distention with gas. And because of the distention I have what is called early satiety- I eat a little at a time. I am also very constipated. I am on day 4 of not having a bm- despite the tons of prunes ... Read More

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Pancreatic Neuroendocrine Tumor (PNET)

Petition FDA to approve PRRT Treatment

In: Chemotherapy and targeted therapies

TeamDowning

petition-fda-to-approve-prrt-treatment

200232

  • 2 Replies

Hi ☺ I'm not sure if it will help or not, but we've started a petition to be sent to the FDA asking them to approve PRRT as quickly as possible. If you would like to join us, we'd love you to sign the petition: http://tinyurl.com/j6jr2r7 Thanks for your support!! Team Downing ... Read More

Pancreatic Neuroendocrine Tumor (PNET)

Facebook is the latest tech giant looking to take on cancer

Cancer-Inspire's journal

Cancer-Inspire

facebook-is-the-latest-tech-giant-looking-to-take-on-cancer

200232

  • 20 Replies

By Radha_Inspire Digital Editor, Inspire Cancer better watch out. Facebook is the latest tech giant to direct efforts – and dollars – towards the treacherous disease. While treatments for cancer have expanded and outcomes have improved – among adults, the 5-year relative rate of survival for all cancers is about 68 percent, up from 50 percent prior to the late 1970s, according to the ... Read More

Pancreatic Neuroendocrine Tumor (PNET)

Distal partial pancreatectomy with splenectomy/NEW need help w decisions

In: Living with PNET

sunny212

distal-partial-pancreatectomy-with-splenectomy-new-need-help-w-decisions

200232

  • 14 Replies

History: I met with surgeon 9/27. I have 3.1x 2.4 cm on tail of pancreas with 5 other 3-5mm on body and head. Tumor is close to Splenic artery and veins, so he wants to remove spleen as well. No one can tell me if it is cancerous. WREN tests over 80% and CgA been high got higher. WREN has been following me since 2014. EUS 2 yrs ago but no KI-67. They thought it was maybe an IPMN at ... Read More

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