Advocacy

Track the latest in advocacy efforts and how you can become involved.

Discussions

One day

jen297
  • By jen297 · New reply November 3, 2013
  • 3 replies
  • It is my biggest hope we find a cure for all cancers. A classmate's wife was just diagnosed with liver cancer. She is in her 30's, and has a three year old son ...

Enough with the pink already

Ster
  • By Ster · New reply October 20, 2013
  • 37 replies
  • Good morning, sisters. It has been a while since I picked up the pen and blogged -- but here is a new one. See what you think. All comments welcome. http://www.ocancerdancer.org/Read-Our-Bl og/ArtMID/452/ArticleID/61/Thinking-Pink ...

Brighton Needs To Hear Us

Juneybug08
  • By Juneybug08 · New reply September 29, 2013
  • 10 replies
  • I love Brighton jewelry and am pleased they have a line of jewelry to support breast cancer .... But where's the teal ? I just went to their website and sent them this email .... Maybe if we all write ...

^^^ Going To Capitol Hill, Nuclear Medicine Questions? ^^^

Laurel-J
  • By Laurel-J · New reply September 26, 2013
  • 10 replies
  • I will be going to Capitol Hill October 8th and need your questions and concerns about nuclear medicine procedures such as scans, interventional radiology, insurance coverage etc.. Whatever your question ...

Compassionate use petition

Cancergrrl
  • By Cancergrrl · New reply September 22, 2013
  • 42 replies
  • Please consider signing this online petition to help an OVCA cancer patient obtain a PARP inhibitor through compassionate use: http://www.change.org/petitions/biomarin -pharmaceuticals-allow-andrea-sloan-andi ...

Petition for Trial Drug

KarenLS
  • By KarenLS · New reply September 19, 2013
  • 41 replies
  • Please sign petition at change.org / Biomarin. My daughter has survived four bouts of BRCA1 ovarian cancer & now faces her fifth. BMN 673 could save her life or extend it until there's a cure. Biomarin ...

OVARIAN CANCER AWARENESS MONTH!

Angel1955
  • By Angel1955 · New reply September 3, 2013
  • 12 replies
  • September is here already! Where did my summer go? Oh, yes...two surgeries and recuperating! While September did kind of sneak up on me this year, I have made some good contacts and handed out a lot of ...

The power of knowledge

Igelkotten
  • By Igelkotten · New reply August 23, 2013
  • 8 replies
  • Hi- Some of you sign your messages with short info on your diagnose: the date when your cancer was discovered, what type of ovca, what stage at discovery, when you had surgery, exact coctail of chemotherapy ...

September - Ovarian Cancer Awareness Month

Angel1955
  • By Angel1955 · New reply August 22, 2013
  • 3 replies
  • It is almost September again. Time flies, whether or not you are having fun! So what are you doing to raise awareness for ovarian cancer during the month of September? I am continuing to talk to people ...

New Blog Post re Having 2 Cancers and Urging Action to Prevent Cancer

Scoobydoobeach
  • By Scoobydoobeach · New reply August 7, 2013
  • 9 replies
  • I have written a new blog post about my new cancer battleground and my hope that we all attend more to prevention of environmental causes of cancers by carcinogenic chemicals. http://helpkeepasisteralive.blogspot.com ...

Where should donations go?

Petra1959
  • By Petra1959 · New reply July 20, 2013
  • 15 replies
  • Even though I'm a rookie to this whole cancer journey, I feel extremely grateful that I live in a time where treatments are available that hold such promise. It's time to make a gift to some institution ...

Hot off the Press..first post to you!

hinsopa
  • By hinsopa · New reply July 11, 2013
  • 3 replies
  • I was honored to represent OCNA at the recent American Society of Clinical Oncology conference in Chicago. Check out my blog for an update. http://www.canceremotions.wordpress.com Your teal sister, Patsy ...

daughter of Pierce Brosnan

Jafer
  • By Jafer · New reply July 6, 2013
  • 28 replies
  • I found a fan email address for Pierce Brosnan and wrote him a note. The purpose of the email was to ask for his support in getting the face of ovca out to the public. I am hoping that the deaths of his ...

OVCA Items

kandbzmom
  • By kandbzmom · New reply July 5, 2013
  • 2 replies
  • I am 3-1/2 months post chemo and officially in remission from Stage 1c OVCA. I am speaking to a women's group in September and would like to have some good literature to pass out. Any ideas would be greatly ...

Should I be concern

thompt10
  • By thompt10 · New reply June 26, 2013
  • 20 replies
  • Hello, On June 17, 2013, I had a Abdomen US and Transvaginal US, because of lower abdomen & back pain, gas, constipation. Results showed I have on right ovary a 3.6 x 3.2 x 3.8 complex cyst with thin ...

BRCA gene mutation

MaryinAndover
  • By MaryinAndover · New reply June 11, 2013
  • 2 replies
  • I was diagnosed in early 2012 with stage 4 ovarian cancer. My mom passed away of same in 1977 - I was 18. With this, we (myself, sister and daughter) all decided to go through genetic testing. All of ...

CA125 at 19,000

Carolyn528
  • By Carolyn528 · New reply June 3, 2013
  • 28 replies
  • Hello to all out there. I am so down. I can't believe how this cancer is going for me. My latest CA125 is up and over 19,000. Is there anyone out there that has a number that high? I was diagnosed May ...

Genetic Risk Explained in Lay Language by Gyn-Onc

Laurel-J
  • By Laurel-J · New reply May 27, 2013
  • 12 replies
  • Dr Mike Janicek, gynecologic oncologist address ovarian cancer issues and risks for BRCA+ families on Breast Cancer Answers Social Media Show. Tune in to learn what the media failed to make clear about ...

Humor helped me heal!

Annette-Althea
  • By Annette-Althea · New reply May 27, 2013
  • 1 reply
  • I was diagnosed in 7/27/2008. My grand daughter was born in a hospital lobby bathroom two weeks later on 08 /08/08, but that is a funny story for another day. After diagnosis, surgery, and treatment ...

PUBLICITY ON OVCA!!!!!

3978bee
  • By 3978bee · New reply May 17, 2013
  • 3 replies
  • This morning watching the morning news (7-9) I saw THREE spots on ovarian cancer. Hallelujah! Thank you to Ms. Jolie, Ms. Walters, all the others who have spoken out to advance information about ovca ...

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