Active discussions

Here's my Shih tzu, Scout, and her younger sister, Fiona!

Scoutsmom
  • By Scoutsmom · New reply February 20, 2014
  • In Just for fun · 10 replies
  • I hope you enjoy meeting my canine kids ...

No surgery after adj, chemo

sherry2310
  • By sherry2310 · New reply February 20, 2014
  • In Newly diagnosed · 9 replies
  • I am scheduled for debulking surgery after 3 rounds of chemo. My Dr. has said surgery is dependant on if the tumor/mass has shrunk. Has anyone found that chemo didn't work and couldn't have surgery? I ...

Ms Glynis Downey in memory of Jemma & all my family

Glynisjoan
  • By Glynisjoan · New reply February 18, 2014
  • In In memoriam · 8 replies
  • It was 7 years ago today my little niece Jemma passed away after 7 years of fighting,operations, & treatments she was only 13yrs old when she lost her battle from brain cancer. She was an amazing child ...

survival

balasiri12345
  • By balasiri12345 · New reply February 18, 2014
  • In Treatment · 7 replies
  • dear can i come to know whether i can live long or not ...

Any words of wisdom?

Catarina76
  • By Catarina76 · New reply February 18, 2014
  • In Side effects of treatment · 11 replies
  • I am starting doxil tomorrow and am starting to get quite nervous. I keep telling myself it can't be as bad as the carboplatin/taxol combo I had a couple of years ago. Any advice to make this to more ...

Onco dr meeting in Baltimore,

glorianna
  • By glorianna · New reply February 17, 2014
  • In Treatment · 16 replies
  • Hi, I just phoned the MD Mercy Centre in Baltimore to see a gyn onco surgeon, next week. Flying fr Europe this week end. Any of you who live there? Hugs ...

Pet scans

dode
  • By dode · New reply February 17, 2014
  • In Help desk · 18 replies
  • Has anyone had Pet-scans or am I the only one ...

Trying to stay alkaline...

glorianna
  • By glorianna · New reply February 17, 2014
  • In Nutrition · 11 replies
  • Hi, Which is the most effective or cheapast way to stay alkaline, using supplements? What are the opinions of taking bicarbonate soda etc, in pills etc? For Lymes, acc to USA Burrascano - we took a medecine ...

Hysterectomy and Debulking Recovery

LeoKiely
  • By LeoKiely · New reply February 17, 2014
  • In Newly diagnosed · 16 replies
  • My mother was diagnosed with a Stage III carcinosarcoma of the ovary on January 6th. She had the full hysterectomy and debulking surgery, performed by a very reputable gynecologic oncologist, on January ...

A Survey for Recurrent OVCA Sisters

DragonGirl
  • By DragonGirl · Posted February 17, 2014
  • In Advocacy · 0 replies
  • I thought some of you might be eligible to share your experiences with living a long while with active ovca disease. This survey is put together by another ovca sister interested in those of us going ...

New and confused

christine03
  • By christine03 · New reply February 17, 2014
  • In Newly diagnosed · 6 replies
  • So part of me is conflicted about joining and writing in this group given that I almost feel guilty that my case seems best case scenario and I don't have to go through what a lot of you ladies have endured ...

Really worried

swtgrl29
  • By swtgrl29 · New reply February 17, 2014
  • In What, me worry? · 3 replies
  • For the past year or so I have been back and forth to my Dr with pain and tenderness in my abdomen. He scheduled several ultrasounds for me, but nothing came up in any of them. A few months ago I started ...

Dancing with N.E.D.

Michelle_TealWarrior
  • By Michelle_TealWarrior · New reply February 17, 2014
  • In Good news · 9 replies
  • Woo hoo!! :). 170 days after being diagnosed with stage 111b ovarian cancer, I have no evidence of this disease in my body! :) I am so thankful for the people who have faithfully prayed for me during ...

Vaginal Cuff Radiation

Janine2014
  • By Janine2014 · New reply February 16, 2014
  • In Treatment · 18 replies
  • Happy Valentines Day Ladies :) I have just had a hysterectomy for endometrial/uterine cancer. I am about to undertake Vaginal Cuff Radiation. Please share stories, tips, tears, and laughs. Thanks for ...

Talcum Powder Awareness

DragonGirl
  • By DragonGirl · New reply February 16, 2014
  • In Advocacy · 12 replies
  • It may not be new news but it is for most women. Johnson & Johnson's Talcum Powder products lead to higher risk for ovarian cancer. And lawyers are willing to explore if you, too, have a legal case. It's ...

J&j baby powder & OVC

Robinmallary
  • By Robinmallary · New reply February 16, 2014
  • In Help desk · 19 replies
  • I recently read an article about baby powder causing ovc . I was wondering does anyone know what type of ovc? Also wondering how many other people have heard of this? Any info on this would be helpful ...

Niraparib - anybody using this?

LookUP-JustBelieve
  • By LookUP-JustBelieve · New reply February 16, 2014
  • In Clinical trials · 1 reply
  • Just finished my second chemo, doxil/carbo, Feb.13, my first round was in 2011 taxil/carbo. Now cancer center is suggesting a clinical trail with niraparib / placebo controlled. I don't like the chances ...

Just waiting....any similar experience?

mandawear
  • By mandawear · New reply February 16, 2014
  • In Newly diagnosed · 11 replies
  • I don't know what board to post this in but I'm really hopeful someone will have some encouraging words/experience/advice... Since 2009 I've had a small cyst on my right ovary. I've gone for numerous ...

CA125 rising after initial Carbo treatment

Lasseire
  • By Lasseire · New reply February 15, 2014
  • In Treatment · 2 replies
  • Hi all, Just got my pre-chemo bloodwork back and my CA 125 is now at 77. At diagnosis, it was 93, dropped to 31 post hysterectomy, went up to 55 before 1st treatment, now 3wks later it's up to 77. I was ...

I am confused

whispers12
  • By whispers12 · New reply February 15, 2014
  • In Recurrence · 7 replies
  • Here is the question. If your onc thinks you have recurred but test results are not back yet. Then she says the next thing will be to go to gastrointestinal doc then wt...? Doesn't onc take care of it ...

Things you can do

Support OCNA

Help the Ovarian Cancer National Alliance reach its goals and support people like yourself by making a donation today.

Donate to the Ovarian Cancer National Alliance

Discussion topics

Support OCNA

Donate to OCNA

Community leaders