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Ostomy

Ostomy support group and discussion community

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Ostomy

Infant Ostomy supplies

In: Product donation

Acoffman

infant-ostomy-supplies

200209

  • 5 Replies

My infant son just had his ileostomy reversed last week. We had just got a shipment of ostomy care supplies a few days before we knew he was having his surgery. Against my husbands suggestion of "burning all of his supplies", I am looking to re-home all of it since we no longer need them. I will be more than willing to pay for shipping. I know how badly my husband and I struggled ... Read More

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Ostomy

Facebook is the latest tech giant looking to take on cancer

Cancer-Inspire's journal

Cancer-Inspire

facebook-is-the-latest-tech-giant-looking-to-take-on-cancer

200209

  • 20 Replies

By Radha_Inspire Digital Editor, Inspire Cancer better watch out. Facebook is the latest tech giant to direct efforts – and dollars – towards the treacherous disease. While treatments for cancer have expanded and outcomes have improved – among adults, the 5-year relative rate of survival for all cancers is about 68 percent, up from 50 percent prior to the late 1970s, according to the ... Read More

Ostomy

Teenage ostamates?

In: Coping after ostomy surgery

googleplus111551764527965665151

teenage-ostamates

200209

  • 6 Replies

Hi guys, Just had a subtotal colectomy end ileostomy on the 9th of September. I am 19 years old. Just want to know if theres other people out there going through the same thing around my age. I think I'm doing pretty good so far. I am happy I don't have to deal with ulcerative colitis symptoms ... Read More

Ostomy

Proud

In: Coping after ostomy surgery

61lori

proud-1

200209

  • 18 Replies

I just want to take a moment and say how proud I am of all you living life with a Ostomy! My husband has had a huge learning curb, as I am sure all of you have. Living where we did not have a support group, having a Dr. in our valley ask him "why would you ever choose to live with a Ostomy" to another Dr. saying "don't do it no man your age wants to live with a Ostomy". Going to SCCA ... Read More

Ostomy

Reversal jitters

In: Coping after ostomy surgery

Pamelala

reversal-jitters

200209

  • 19 Replies

Good evening fellow Campers! Big news on the horizon for me, colostomy takedown surgery on September 23rd! I am elated and positively scared out of my wits. Just got this news a couple days ago and have a mere week to prepare. Certainly a big difference going into the hospital healthy. I had a two week stay with my original emergent surgery and another two weeks for a total blockage ... Read More

Ostomy

my new life update

LisaD50's journal

LisaD50

my-new-life-update

200209

  • 3 Replies

So 2 and 1/2 years ago I had my colon removed and received an ileostomy. After learning more and determining that I would not reconnect, I thought, I wish I knew that before so I could of just had the whole thing done at once. Well....thank goodness I didn't. The pain I have experienced from my procectomy has been tremendous. I can not image having to learn all the ins and outs of ... Read More

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Ostomy

Questions to ask my surgeon????

In: Coping after ostomy surgery

Sprinkly

questions-to-ask-my-surgeon

200209

  • 11 Replies

Hi I am due to have op later this year yo have the remaining bit of my large bowrl removed along with the hernia around my ileostomy, surgeon had said in letter if I wish to see him beforehad I can do so, but what questions do I ask? Also can anyone tell me what this op is like ... Read More

Ostomy

Car seat causes leakage

In: Welcome

Sunraejenn

car-seat-causes-leakage

200209

  • 10 Replies

I have a month old baby that has an an Ostomy because of an imperforate anus. He is only about 6 lbs. we have issues with leakage after being in a car seat. Anyone have any suggestions to keep pressure off his stoma and bag? I know there is a protector for adults but not sure about infants ... Read More

Ostomy

anyone applied for disability due to colostomy challenges?

In: Coping after ostomy surgery

Scoobers_mom

anyone-applied-for-disability-due-to-colostomy-challenges

200209

  • 8 Replies

Hi - I am a two time cancer survivor and ended up having a colostomy in 12/14 due to damage from the cancer tx (radiation, many surgeries). I have tried all sorts of things to get the colostomy management under control (dietary, irrigation, fiber, etc.) and still have leaking/accidents, irregularity, abdominal pain, nausea, etc. I know having a colostomy by itself does not qualify ... Read More

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