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Ostomy

Ostomy support group and discussion community

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A support community for patients and caregivers with ostomies. Discuss your experience with an ostomy, ileostomy, stoma, and more in the forums.


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Ostomy

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200209

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Ostomy

Severe nerve and muscle damage in my legs from chemo's.

In: Not feeling well

Heidi220340

severe-nerve-and-muscle-damage-in-my-legs-from-chemos

200209

Some months ago I was trying to find anyone on this website, who experienced extensive nerve and muscle damage caused by the chemo's I had about 4 years ago for colorectal cancer stage 4. Two neurologists told me, there is nothing they can do, but the second one sent me for many weeks to therapy which didn't improve anything. My walking and balance is still poor and getting worse ... Read More

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Ostomy

itchy and dry skin

In: Rashes and skin problems

skeetes

itchy-and-dry-skin

200209

I have had a colostomy for 10 years now and within the last year or so I have had a problem with itchy, dry, flaky skin around the flange area. I can't use any ointments because they seem to seep under the flange and it comes unstuck. Gets to a point I have had to take Benedryl for the itch as it sometimes drives me crazy - I itch and then the skin breaks open. No problems under the ... Read More

Ostomy

How to Keep from Falling on Icy Conditions

Duvie's journal

Duvie

how-to-keep-from-falling-on-icy-conditions

200209

Something that rarely happens in New Orleans is icy or snowy conditions. I let our bigger 15 yr old dog out to do her business and she fell on the back concrete porch with a 3 inch step down due to the ice. I went out and helped her up and was slipping myself. When it was time to let her in I went searching for her and she was laying on her belly on the concrete by the pool struggling ... Read More

Ostomy

Sharing Special Needs Diets, Foods, & Ideas

Duvie's journal

Duvie

sharing-special-needs-diets-foods-and-ideas

200209

"Recipe Sharing Group" This is a site that needs attention with members sharing their experiences with whatever their special Diet is so we may help others to transition easier to their special diet. I AM NO CHEF and have just recently taken over the cooking, errands, shopping, etc. As a caregiver for more than one patient and myself, it can become stressful but doable. My better-half ... Read More

Ostomy

Keeping my ileostomy ???

In: Ostomy reversal

Michael3150

keeping-my-ileostomy

200209

I have an ileostomy since November 7, 2017, and had emergency surgery to save my life because all the treatments and drugs to fight my Ulcerative Colitis didn't work. The surgery went well and had and have a great surgeon. He would like to do a reversal but at this time I am thinking to keep my ileostomy because it doesn't bother me in the least. I have read numerous posts on people ... Read More

Ostomy

Why asking for help is so hard

Chronic-Inspire's journal

Chronic-Inspire

why-asking-for-help-is-so-hard

200209

By Radha_Inspire Digital Editor, Inspire People ask each other for help all the time – at work, among friends, and at home from partners and family, for example. But when all parties are healthy, asking for help feels reciprocal – the asker may be indebted for a short time but eventually they will be ready and able to return the favor. In the context of illness, especially cancer or ... Read More

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Ostomy

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200209

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

Ostomy

What inspires you?

Katuha's journal

Katuha

what-inspires-you-1

200209

The unseen shadow of a wispy breeze in the treetops. (PSITHURISM: The sound of wind in the trees and rustling of leaves.) Hugging one of my Grandkids without blowing up my pee bag. A really good smelly fart. Pooping every day. Hugging my wife who has put up with me for 51 years now last October 1st. Helping a friend. Riding my chrome pony on the concrete canyons at least 150 miles ... Read More

Ostomy

I hate my life with a stoma

In: Feeling good about yourself

sicktodeath

i-hate-my-life-with-a-stoma

200209

I was diagnosed with rectal cancer 2016 and went through chemo/radiotherapy, unfortunately cancer reoccured in 2017 and I had to have 'everything' removed and am left with a permanent stoma. I am 7 months down the line and hate my life. I was considered very attractive and had a very good government job (they dismissed me for medical capability issues after 28 years). I sit in the ... Read More

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