Advertisement

Ostomy

Ostomy support group and discussion community

Inspire has 1,100,855 Members, 19,657 of whom are part of this community.

Join Inspire

Explore communities

REFINE BY
  • Topics
  • Posts I started
  • Posts I replied to
  • Posts I follow
  • Posts by my friends
By posting, you will automatically become a member of this community.

Sort Results By

Ostomy

Devastated and Need Support

In: Coping after ostomy surgery

CrazyKayla

devastated-and-need-support

200209

Hi, all. I received a second opinion today, which confirmed the worst. I NEED surgery, and there's a 50% chance I'll wake up from surgery with a colostomy. This has been my biggest fear since my diagnosis. I want to accept it now since the possibility is so high. I want to accept I'll wake up with one. I have a fistula, extreme inflammation, infection, and narrowing. My quality of ... Read More

Advertisement

Ostomy

Countdown to surgery......

hollymolly123's journal

hollymolly123

countdown-to-surgery-2

200209

Hi. I'm a newby here. I had surgery last March, 2016, following chemo and radiation treatment for colorectal cancer. I had a temporary ileostomy for 7 weeks which I handled the best I could. Knowing it was temporary made it bearable. Following the reversal surgery, I recovered and thought it was over. A recent follow-up CT Scan and PET Scan revealed that the cancer came back at the ... Read More

Ostomy

Excess ostomy supplies

In: Product donation

Calh17

excess-ostomy-supplies

200209

NEW AND FIRST ENTRY. Last week my wife passed away following a 4 year fight with ovarian cancer (actually PPC) which lead to bowel blockage and a colostomy. On the 29th of March she received a 3 month supply of Hollister ostomy supplies valued at $1,927. Soon after receiving them she was admitted to the hospital for a short time and then entered into hospice. I would like to donate ... Read More

Ostomy

Urostomy patient looking for feedback on stoma or ostomy paste

In: Pouching options

jzpage

urostomy-patient-looking-for-feedback-on-stoma-or-ostomy-paste

200209

Hi stoma cousins, I am a urostomist (is that a word?) since March 17th and am experimenting still with two piece and one piece systems. I am lean and have a little dimple around my stoma so a slight convex two piece or a flat two piece where the wafer is held tightly down with a belt works well (no leakage, can last 4 days) but is uncomfortable. One pieces are much more comfortable ... Read More

Ostomy

I HAVE NOT PEED IN 5 YEARS.

Katuha's journal

Katuha

i-have-not-peed-in-5-years

200209

ROBOTCYSTOPROSTOTECTOURETHRALLYMTHOLOBOT OMY (I usually wait until Jan 16th to post this but thought I might forget so did it today just in case. This, of course, makes a big assumption that I will still be alive on the 16th but I'm optimistic and getting more and more optimysticer every day..) I’m so freekin’ happy to have lived another year. Five years ago on Jan. 16th, I met the ... Read More

Advertisement

Ostomy

I'm sure I'll get there, but when?

In: Coping after ostomy surgery

Opalite

im-sure-ill-get-there-but-when

200209

Hi all, I'm a 43yr old new ostomate, nine weeks in all, and I'm just wanting to know how long it took for everything to settle? I had a total colectomy in march as I have struggled with ischemic colitis, anti phospholipid syndrome and lupus. I was absolutely fine for the first few weeks, even with a UTI and wound infections. Then, it just has become really hard. I have lots of pain ... Read More

Ostomy

Not sad.....Just super sad

In: Coping after ostomy surgery

DonnaDubb

not-sad-just-super-sad

200209

Hello, I've been a member for awhile but never posted. Too shy I guess you could say. I had a transverse loop ileostomy put in place back in Dec 2016 due to perforated intestine w/ sepsis. Thanks to our popular friend diverticulitis. I was amazed at how well I coped and adjusted to the change. I honestly was completely repulsed with it all for the first couple of weeks. Then, it became ... Read More

There's more to see...

Join many others who understand what you're going through and are making important decisions about their health.

Join Now Already a Member? Log In