Home tube feeding (HEN, enteral nutrition)

Share your story, ask questions, and offer support.

Discussions

Blood tests that reveal a crisis due to poor intake of needed potassium .

lynnghall222
  • By lynnghall222 · New reply 6:50 pm
  • 2 replies
  • Good afternoon. It's me again, I was wondering if any of you tubers out there have trouble maintaining enough potassium in their systems. Because of my insidious nausea and feeling sick from vomiting....it ...

Juicing...is this a good choice, instead of formula ?

lynnghall222
  • By lynnghall222 · New reply 1:39 pm
  • 1 reply
  • Good morning to all. I have a question....has anyone who uses formula, like me thought of using the method of calorie intake thought of using the juicing method. I have a insurance that will cover my ...

enteral formulas or diet plans

jungleking52
  • By jungleking52 · New reply yesterday at 8:26 pm
  • 2 replies
  • Hello, Can anyone provide detailed enteral feeding menu. how to assess diet and how to instill ...

Transplant

Bmc1006
  • By Bmc1006 · New reply yesterday at 11:32 am
  • 4 replies
  • Information about small and large intestines transplant also how long you can be on feeding tube ton ...

Cerebral Palsy and Dysmotility/Dysphagia/Jackhammer Esophagus

Ling44
  • By Ling44 · New reply April 21, 2014
  • 9 replies
  • Hi all, I am currently living in Denmark and was supposed to receive a FEES test (live video of eating) yesterday. I arrived at my appointment early, and 45 minutes into when I was supposed to be seen ...

J tube replaced with g tube?

Julianpaul
  • By Julianpaul · New reply April 21, 2014
  • 13 replies
  • The ER surgeon replaced my son's j tube with a g tube. I wasn't there when he was first brought in, and just realized it now. It was replaced a week ago. I thought it was just a different brand, and that's ...

J-Tube

cow
  • By cow · New reply April 20, 2014
  • 11 replies
  • Just a question. Mu doctor put in a G-Tube in instead of a J-tube he thought that it being short might help with the drainage and problems I have been having. It is a 16 fr, but it alot short on the inside ...

Early replacement of mic-key with another mic-key

Ling44
  • By Ling44 · Posted April 20, 2014
  • 0 replies
  • Hi, I am currently back in hospital because I have been having increased discomfort when moving or breathing deeply. I figured it's due to scar tissue forming around the mic-key button (placed on 17 March ...

J tube draining bile

Julianpaul
  • By Julianpaul · New reply April 19, 2014
  • 7 replies
  • Six days ago I had my son's j tube replaced. He also has a g tube, previously used for feeding, now used for drainage of bile. He feeds through the j tube, continuously, at 40cc per hour, with a continuous ...

expired formula

donnanae
  • By donnanae · New reply April 15, 2014
  • 2 replies
  • I have a silly question. I have a couple of cases of formula that will expire soon (may)..Is it ok to use when it is only a little expired?? My insurance does not cover it, and I certainly can't afford ...

Glucose levels and canned nutrition

SenorRick
  • By SenorRick · New reply April 14, 2014
  • 5 replies
  • Has anyone seen there glucose levels rise after years of canned nutrition ...

Calories

Belmay
  • By Belmay · New reply April 13, 2014
  • 5 replies
  • I've been on feeding tube since August 2013. Breast cancer in my stomach made it impossible for food to get out of my stomach, so J tube solves the problem. I also have a G tube to drain stomach. About ...

Calories

Belmay
  • By Belmay · Posted April 12, 2014
  • 0 replies
  • I've been on feeding tube since August 2013. Breast cancer in my stomach made it impossible for food to get out of my stomach, so J tube solves the problem. I also have a G tube to drain stomach. About ...

ER Doc blames my PTSD for my pain

Kez182
  • By Kez182 · New reply April 12, 2014
  • 7 replies
  • I have not been able to feed using my J-tube without extreme pain for 3 months now. I get 30-40 minutes in and my stomach starts filling with acid or bile. Then my instines start spasming it almost feels ...

Feeling off, tube not in the right place yet again

Staylor2021
  • By Staylor2021 · New reply April 11, 2014
  • 3 replies
  • So I haven't posted much on this site because I am on a bunch of sites and we'll I feel like I have been able to get the support I wanted/needed from others sites. Sadly that isn't happening anymore so ...

Feeling off, tube not in the right place yet again

Staylor2021
  • By Staylor2021 · Posted April 10, 2014
  • 0 replies
  • So I haven't posted much on this site because I am on a bunch of sites and we'll I feel like I have been able to get the support I wanted/needed from others sites. Sadly that isn't happening anymore so ...

Not suitable for low profile buttons - How to get use to a long tube

hayleygraces
  • By hayleygraces · New reply April 9, 2014
  • 11 replies
  • Hi there I have had two kinds of buttons over the past six months each with little success, I developed peritonis with the bard button them had other problems with the mickey which culminated with it ...

Severe Infection from T-Tacks

Ling44
  • By Ling44 · New reply April 9, 2014
  • 1 reply
  • After not feeling well for two weeks after placement of the Mic-key, and having received RX's for antibiotics and anti-microbial two days earlier (without improvement), I decided to return, and was immediately ...

malecot tube

Kinnelon
  • By Kinnelon · New reply April 8, 2014
  • 7 replies
  • Does anyone have a malecot tube placed as a feeding tube? I cannot seem to find any info on line about this type of tube. My husband had one placed last June and it always leaked some gastric juices ...

Excessive G-Tube Leakage

cissne22
  • By cissne22 · New reply April 8, 2014
  • 9 replies
  • We are a medically fragile home that consists of non verbal wheelchair bound people. We have a client that has suffered from severe g-tube leakage for about 2 months now. He has been to see his primary ...

Things you can do

Support the Oley Foundation

Help the Oley Foundation reach its goals and support people like yourself by making a donation today.

Donate to the Oley Foundation

Discussion topics

Helpful links from the Oley Foundation

Community leaders