News, research and advocacy

Share news about neurofibromatosis, new research, information about upcoming advocacy events and ideas for increasing awareness.

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NF Made the local newspaper in Ohio! NF awareness is spreading!!

NF_Network
  • By NF_Network · Posted April 21, 2014
  • 0 replies
  • Take a look NF community! The media came out to our Great Steps Walk 4 NF in Boardman, OH this past weekend! So exciting to get some press coverage and the word out about NF! http://www.vindy.com/news/2014/apr/20/wa ...

ride share to NF walk in Irwindale

SEFord-1990
  • By SEFord-1990 · New reply April 21, 2014
  • 1 reply
  • For the past few years I went to the NF walk in Irwindale and got a ride. But changed date of the walk and the organization hosting the NF walk. I was wondering if any body here was participating in that ...

Ft. Lauderdale, FL Great Steps Walk 4 NF - T-Shirt Deadline TODAY!!!

NF_Network
  • By NF_Network · Posted April 18, 2014
  • 0 replies
  • Ft. Lauderdale, FL - T-shirt Deadline TODAY (4/18/14)! Be sure to register to now to be guaranteed a t-shirt! Click here http://www.nfnetwork.org/nf-happenings/g reat-steps/florida-ft-lauderdale for more ...

Ohio - Great Steps Walk Tomorrow! Join us!!

NF_Network
  • By NF_Network · Posted April 18, 2014
  • 0 replies
  • Good luck tomorrow Ohio (our 2nd Annual Great Steps 4 NF)! If you haven't pre-registered, it's not too late! Come out and join our volunteer walk chair, Jennifer (who, by the way, is awesome!!) and the ...

RAPAMYCIN STUDY

Artie_Dee
  • By Artie_Dee · New reply April 18, 2014
  • 4 replies
  • I was asked by other members of our group to see if I could find out the status of the clinical trial. After doing some research on my own and contact New York University Medical Center's comprehensive ...

Natural Progesterone Survey

Lori86314
  • By Lori86314 · New reply April 15, 2014
  • 8 replies
  • To all (women and men): I am doing some informal research and would like to hear about people's experiences with NATURAL or BIO-IDENTICAL progesterone (NOT SYNTHETIC progestins found in birth control ...

Ft. Lauderdale, FL Great Steps Walk 4 NF - T-Shirt Deadline this Friday!!!

NF_Network
  • By NF_Network · Posted April 15, 2014
  • 0 replies
  • Ft. Lauderdale, FL - T-shirt Deadline THIS FRIDAY (4/18/14)! Be sure to register to now to be guaranteed a t-shirt! Click here http://www.nfnetwork.org/nf-happenings/g reat-steps/florida-ft-lauderdale ...

Boardman, OH Great Steps Walk 4 NF - THIS SATURDAY!!!

NF_Network
  • By NF_Network · Posted April 15, 2014
  • 0 replies
  • OHIO - Great Steps Walk 4 NF (AND Easter Egg Hunt!!!) THIS SATURDAY!!!! 2nd Annual Great Steps Walk 4 NF in Boardman, OH! 10:00 am (check-in/registration 9:00 am) Saturday, April 19, 2014 Boardman Park ...

Boardman OH - Walk pre-registration deadline THIS SUNDAY MIDNIGHT!!!

NF_Network
  • By NF_Network · Posted April 11, 2014
  • 0 replies
  • Ohio - Pre-registration Deadline THIS SUNDAY MIDNIGHT (4/13/14). Be sure to register to get the discounted registration fee here! http://www.nfnetwork.org/nf-happenings/g reat-steps/boardman-oh for our ...

Ft., Lauderdale - Great Steps Walk 4 NF - Registration now open!!!

NF_Network
  • By NF_Network · Posted April 11, 2014
  • 0 replies
  • Ft. Lauderdale, FL!! It's spring, it's spring!!! What a better way of celebrating spring that to register for a beautiful walk for a great cause? Click here for more info and to register http://www.nfnetwork.org/nf-happenings/g ...

Millburn, NJ Great Steps Walk 4 NF - First Ever!!

NF_Network
  • By NF_Network · Posted April 11, 2014
  • 0 replies
  • New Jersey - Have you registered yet??? Click here for more info and registration! http://www.nfnetwork.org/nf-happenings/g reat-steps/new-jersey-milburn Introducing our 1st ever... Great Steps Walk 4 ...

KC MO - Introducing our 2014 Walk Hero - Miss Lindsey Allee!!

NF_Network
  • By NF_Network · Posted April 11, 2014
  • 0 replies
  • Kansas City, MO - Introducing the cute and sweet 2014 NF Hero for this year's walk, Miss Lindsey Allee!! It's that time again for our 6th Annual Great Steps Walk 4 NF in Kansas City, MO!!! Click here ...

can this be a new beginning

MariaB18
  • By MariaB18 · New reply April 5, 2014
  • 3 replies
  • I hope there can find a cure I was looking throug my news feed in fb and this aappeared ...

this article you should read it

MariaB18
  • By MariaB18 · Posted April 3, 2014
  • 0 replies
  • http://www.ctf.org/item/bioworld-publish es-article-about-children-s-tumor-founda tion.html ...

FREE RELAXATION TECHNIQUE STUDY

Artie_Dee
  • By Artie_Dee · New reply April 2, 2014
  • 6 replies
  • Hi, Everybody; I got this email recently about a research study about relaxation techniques offered through Massachusetts General Hospital. You don't have to travel, you can do it from your home using ...

Ohio and Florida!!! This weekend only!!

NF_Network
  • By NF_Network · Posted March 28, 2014
  • 0 replies
  • Ohio and Florida!!! This weekend only (now through Sunday (3/30) at midnight) !!! Register THIS WEEKEND and get 25% off adult registration for our 2 upcoming Great Steps Walks 4 NF! If you are planning ...

nf pot luck in long beach very fun

SEFord-1990
  • By SEFord-1990 · New reply March 19, 2014
  • 3 replies
  • I went to nf pot luck in long beach it was fun. We all shared medical info and stuff and eat alot of pizza ...

Great Steps Walk 4 NF in Southern Florida - Register now!

NF_Network
  • By NF_Network · Posted March 17, 2014
  • 0 replies
  • Florida!! Don't wait to register! http://www.nfnetwork.org/nf-happenings/g reat-steps/florida-ft-lauderdale for our 2nd Annual South FL Great Steps Walk 4 NF! 2nd Annual Great Steps Walk 4 NF in Southern ...

New Jersey Great Steps Walk 4 NF - Registration is now open!

NF_Network
  • By NF_Network · Posted March 14, 2014
  • 0 replies
  • New Jersey!! Don't wait, register now! http://www.nfnetwork.org/nf-happenings/g reat-steps/new-jersey-milburn for our Great Steps Walk 4 NF! 1st Ever Great Steps Walk 4 NF in Milburn, NJ 10:00 am, Saturday ...

Ohio Great Steps Walk 4 NF - Don't Wait, Register Now!

NF_Network
  • By NF_Network · Posted March 13, 2014
  • 0 replies
  • Ohio - Don't wait, register Now! http://www.nfnetwork.org/nf-happenings/g reat-steps/boardman-oh for our 2nd Annual Great Steps Walk 4 NF! 2nd Annual Great Steps Walk 4 NF in Boardman, OH! 10:00 am, Saturday ...

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