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Discussions

Can someone not get any bumps from having NF

tay6973
  • By tay6973 · New reply April 20, 2014
  • 17 replies
  • is there any way that someone cant get as much bumps as people usually have ? Im 20 & i only have 2 very small bumps on my body; one on my left leg and another on my lower back. I have freckles all over ...

Nf

sheriemay
  • By sheriemay · New reply March 11, 2014
  • 3 replies
  • Hello friends, i'm new here.. I'm Sheriemay Aguhob; 33yrs.old; from Manila, Philippines.. i have NF .. now i have a question to ask,, a person with NF can still work aboard? i haven't been to a doctor ...

Doctors

LONELY5
  • By LONELY5 · New reply March 7, 2014
  • 6 replies
  • Does anyone know the best doctor to go to in Erie Pennsylvania I have yet to find one & really need one thanks ...

disability how do i go about it

collesong
  • By collesong · New reply February 27, 2014
  • 18 replies
  • how do i sign up for disability? no one will give me the proper papers, they tell me my husband makes too much money i had a lawyer a year ago, when he submitted my health problems i was turned down and ...

Confused

LONELY5
  • By LONELY5 · New reply January 29, 2014
  • 4 replies
  • I have NEVER seen a doctor for my NF, what kind of doctor to I go to? I've been told endrconologist & nerologist can someone help me please ...

Chemo and NF

ladytazz
  • By ladytazz · New reply January 21, 2014
  • 6 replies
  • On Dec 31 2013 I had a mastectomy be cause of Invasive Ductal Carcinoma III. I will soon have chemo ,. Does any know how chemo affects N F ...

Please help!

Krowe9290
  • By Krowe9290 · Posted December 8, 2013
  • 0 replies
  • There's something wrong with my account I'm logged in on my phone but it won't let me sign in from a computer I tried resetting my password and it doesn't recognize it I know I am entering everything ...

Thalidomide

Kittyhorse
  • By Kittyhorse · New reply November 30, 2013
  • 3 replies
  • Hello Everyone - I am a new member. I am not diagnosed with NF, however I have had many symptoms particularly over the past three years. Recently as last Saturday 24/11/2013 (Queensland, Australia) my ...

Wondering if I could get some advice on rare McCune Albright Syndrome??

Gemini13
  • By Gemini13 · Posted November 7, 2013
  • 0 replies
  • I am believed to have McCune Albright Syndrome and not NF. Wondering if you handle support for rare McCune Albright? Definitely I do not have NF. I do have Café Au Lait Spots. Biopsy proved that they ...

whats happening

jmorrg
  • By jmorrg · New reply October 10, 2013
  • 1 reply
  • I have had nf1 I guess since birth, but was know till my 3rd child was born. now we know that all of us have it me and my 3 children. I have what was thought was a birth mark on the nape of my neck. and ...

Neurofibromatosis removed

BetsyPR
  • By BetsyPR · New reply September 20, 2013
  • 3 replies
  • My sister has neurofibromatosis and just got a few of them removed and now she is feeling like if her skin is streching I would like to know if someone knows if what she is feeling is normal ...

No job and still going wrong

wrb_79
  • By wrb_79 · New reply August 14, 2013
  • 21 replies
  • Is it me or is God thrown a brick at me and started laughiung ...

carcinoid tumor and nf

geffro
  • By geffro · New reply August 6, 2013
  • 2 replies
  • Are carcinoid tumors related to nf ...

carsinoid tumor and nf

geffro
  • By geffro · Posted August 6, 2013
  • 0 replies
  • Are carsinoid tumors related to nf ...

undiagnosed and confused

Jwalla
  • By Jwalla · New reply July 20, 2013
  • 3 replies
  • My daughter Mackenzie is 10 and has over 20 Cafe-Au-Lait spots over her stomach, back and thighs, 3 are large. She has seen a Neurologist and recently had an MRI of the brain and Spine as well as an Ultrasound ...

info required

sivam85
  • By sivam85 · New reply June 19, 2013
  • 11 replies
  • i know for sure i have nf but dont know what type 1 or 2 , however i would like to know if there is anyway of controlling further growth such as healthy eating, alcohol and tobacco consumption does it ...

please help

36asha
  • By 36asha · New reply June 7, 2013
  • 1 reply
  • hi all, my name is asha and i desperately needs some help. my 15yr old daughter with nf1 has a tumor in the left carvernous nerve that is growing. we live in trinidad and doctors here advised us that ...

Interval Between Surgeries Under General Anesthesia?

Michelle519
  • By Michelle519 · New reply May 16, 2013
  • 4 replies
  • Okay so I have a question regarding general anesthesia.... I (hopefully) have a surgery planed for June 26... I just found out it is very possible for me to get a second and different surgery on June ...

Nf1 nf2

truckerboy89
  • By truckerboy89 · New reply May 10, 2013
  • 8 replies
  • Is Nf1 worse than Nf2? can some please tell me ...

Partially empty sella turcica

vivianytell
  • By vivianytell · Posted March 28, 2013
  • 0 replies
  • just had a mri ...

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