Journals

Reminder: Hepatic Encephalopathy Webinar on April 23

John2
  • By John2 · Posted April 22, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/22/14 Dear members, Here's a reminder that the American Liver Foundation (ALF), an Inspire partner, is holding a free Webinar about Hepatic Encephalopathy ...

Happy Spring! The Do Whats

Jastopp
  • By Jastopp · Posted April 21, 2014
  • 17 replies
  • Another year has passed for us...another spring has arrived and we are still here! What a blessing!! The last two months have been extremely difficult. for both of us. From the 19th of March on...we have ...

Learn about Hepatic Encephalopathy at an April 23 Webinar

John2
  • By John2 · Posted April 21, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/21/14 Dear members, The American Liver Foundation (ALF), an Inspire partner, is producing a free Webinar about Hepatic Encephalopathy this Wednesday ...

need information please

BusdriverSam
  • By BusdriverSam · Posted April 19, 2014
  • 15 replies
  • So dad got his tube put in. We are up to the 5 cans a day. And more than enough water a day. But when you only eat by tube. How often is a bm? Sound gross but it has been awhile and the tube is the only ...

the day

canyonwife
  • By canyonwife · Posted April 14, 2014
  • 3 replies
  • Today is a Monday like any other Monday.Cept today is the day me and my partner see the Doc to find out what the game plan is..finally some concrete answers..even if its just a course of action and then ...

Oh WoW

Jastopp
  • By Jastopp · Posted April 10, 2014
  • 37 replies
  • Today has already started as challenge...not that every day isn't packed with something. The funeral for mom Bandelier was amazing and wonderful in the celebration of her life. Going home to their house ...

going to get better

BusdriverSam
  • By BusdriverSam · Posted April 8, 2014
  • 2 replies
  • So the picture on my post is of my mom, daughter and my daddy. This is two years ago. Before the cancer. I hope come next year in 2015 both my parent will be at my younger child graduation. If thing keep ...

Families of love not blood...

Jastopp
  • By Jastopp · Posted April 5, 2014
  • 22 replies
  • Larry is still on antibiotics daily IV therapy at the hospital. just yesterday and today he has been up and around more... he said he's feeling better. He was sleeping almost around the clock and was ...

more questions

canyonwife
  • By canyonwife · Posted April 3, 2014
  • 7 replies
  • Hiya everyone.I have got more info on my partners condition,but yet again I am filled with more questions versus answers.I have waited a few days because I was unsure what to write or how to convey my ...

worried

BusdriverSam
  • By BusdriverSam · Posted April 2, 2014
  • 20 replies
  • So for this week I came home to TX to be with my husband and girls. To work a little. I call my mom 3 or more times a day to see how my dad is doing. He had a rough night. And he told my mom he is tired ...

note to members

canyonwife
  • By canyonwife · Posted March 28, 2014
  • 16 replies
  • Just a little note to all of you.In the past week I have been through some tough times with my partner,all the waiting ,the fears and the possibilities of this diagnosis have been emotionally exhausting ...

frustrated..

canyonwife
  • By canyonwife · Posted March 27, 2014
  • 14 replies
  • Hey everyone.This has been a rough week my partner got the results from the FNA,indeterminate.Uggggh,more waiting.... I'm not sure but at least for me I wanted answers,not more waiting and more questions.I ...

just me

BusdriverSam
  • By BusdriverSam · Posted March 26, 2014
  • 0 replies
  • As a care giver to a family member. I start to question my own health. Is that spot just a spot or more. Is a sneeze allergy or more. But I am thinking that I think way to much. Have a blessed day ...

Do this NOW!

ttcwm
  • By ttcwm · Posted March 26, 2014
  • 3 replies
  • Hi All, I have an idea for anyone who is dealing with the beginning stages of alz/dementia. If your loved one can still sign their name please get a stamp made with that signature. I know that you can ...

My special little boy,hubby and me X

staceygriff
  • By staceygriff · Posted March 25, 2014
  • 9 replies
  • Welcome to my journal.5 years ago i sadly lost my mum,at the young age of 34.My mum was 54 and had a sudden heart attack due too stress.A year later,my 7 year old son at the time,was diagnosed with ulcerative ...

doc visit

canyonwife
  • By canyonwife · Posted March 24, 2014
  • 3 replies
  • Hmmm. Went to an amazing Doc .and now the wait begins hoping on to hope that its just a ugly nodule mess..not even sure if me and my wife belong here yet.so nervous .I swear its the not knowing anything ...

In The Hospital

Jastopp
  • By Jastopp · Posted March 20, 2014
  • 94 replies
  • Well the continued concern over Larry's toes, Turned out to be a lot more involved...he has an infection on his great toe, and is on high powered antibiotics IV and may lose the toe. (of course no ne ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

How do you keep sheets on the bed?

ttcwm
  • By ttcwm · Posted March 19, 2014
  • 3 replies
  • Hi All, My mom is now pulling all of the bed linens off the bed numerous times a day. It appears that she thinks that they are no good and then starts taking everything off. I was there the other morning ...

10 days radiation down

BusdriverSam
  • By BusdriverSam · Posted March 19, 2014
  • 12 replies
  • So far 2 rounds of chemo and next on 25th. And radiation 5 days a week. I am noticing my dad can smell everything. And that is not always good. He is getting more nausea. And throat is raspy. We had a ...

Things you can do

Support the National Family Caregivers Association

Help the National Family Caregivers Association reach its goals and support people like yourself by making a donation today.

Donate to the National Family Caregivers Association

Discussion topics

Community leaders