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An eczema support and discussion community to share experiences with atopic and contact dermatitis, itching, rashes, treatment, and more.


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National Eczema Association

Finding help for so many unanswered questions?

In: Living with eczema

Makayla123

finding-help-for-so-many-unanswered-questions

200215

Hi I am Makayla I am 19 years old and have had eczema for as long as I can remember and have been told when I was younger by so many that my eczema would go away as I grew older, that's just not the case! As I grew older my eczema has only gotten worse :( I have tried almost everything imaginable that I have access to, numerous topical steroids and creams and all kinds of medications ... Read More

National Eczema Association

Anyone Know This Rash?

Fireflies_Are_Magic's journal

Fireflies_Are_Magic

anyone-know-this-rash

200215

I've been getting this rash over the past week--it got really painful for a few days before I even realized it was there so it's probably more like 2 1/2 wks old now. > The rash doesn't itch at all--it just burns like shingles does but it's not shingles. Touching it stings a little, but otherwise it's just a constant burn that gets intense when I kneel or bend down. The worst pain ... Read More

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National Eczema Association

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200215

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

National Eczema Association

PLEASE SHARE YOUR KNOWLEDGE

In: General discussion

Littlemissjewel

please-share-your-knowledge

200215

Hey guys, I'm Jewel. I have had eczema since I was born. When I was young my cheeks looked as if I had clown blush, but it was just redness from eczema. On the rest of my body it would look like a cat clawed me everywhere it is not a pretty site. In my teens I began to breakout more, getting made fun of a lot. After I quit pubic school and became home schooled my eczema went down a ... Read More

National Eczema Association

Dupixent question

In: Treatment options

Kellikacz

dupixent-question

200215

I just started Dupixent and have a question for people that are using it. While the medicine was going into my thigh, it burned like nothing I’ve ever felt before. I’m covered in tattoos and piercings and am in no way, shape, or form a wimp. Is this normal? My husband did the injections (it was the first dose so we had to do 2) and it was horrible. Not the needle, the actual medicine ... Read More

National Eczema Association

Dupixent Side Effects

In: Living with eczema

Munkibug

dupixent-side-effects

200215

Hi! I'm excited to find this site, I've been pretty isolated as I don't know anyone who has this condition and all of my issues are fairly atypical. After a random, extreme flare-up that could not be brought under control with steroids (oral and topical) my doctor put me on Dupixent (in combination with Eucrisa). I've been on it a couple months and it's definitely giving me back my ... Read More

National Eczema Association

My provider won't listen

In: Living with eczema

Laurenclem1

my-provider-wont-listen

200215

I have been dealing with eczema and atopic dermatitis for 6 years. My issues started when I went into menopause. Since then, I have had every allergy, autoimmune, and other blood tests known to man to figure out what is exactly wrong or causing. I have eczema patches that first started appearing on my face, so the derm thought an allergy to make-up. I went through allergy testing and ... Read More

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National Eczema Association

Patients and caregivers are “Experts by Experience”

Brian's journal

Brian

patients-and-caregivers-are-experts-by-experience

200215

Dear members, Today we are excited to announce that Inspire and Mayo Clinic have launched “Experts by Experience” – a series of columns written by patients and caregivers from around the world. The kickoff column is Kindness at the Margins for Caregivers, by patient advocate Renata Louwers. A main purpose of the series is to bring the patient perspective to people who can learn from ... Read More

National Eczema Association

Just to talk

In: Living with eczema

SofiaNY18

just-to-talk-2

200215

Hi there! I`m new to this group. Just want to talk to everybody here. My name is Sofia, I`m 15 years old and I`m from Russia. I`ve been living with eczema for most of life. I had it in my childhood, when I was very little, but it suddenly vanished. Then,again, it happened at the age of 12 and now I have it on my face and hands. What Iam waiting for- just to have a talk with somebody ... Read More

National Eczema Association

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200215

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

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