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My Child Without Limits and Brave Kids

Developmental delays and disabilities support group and discussion community

Developmental delays and disabilities support group and discussion community

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Connect with other patients and families affected by cerebral palsy and other developmental delays and disabilities for support, advice, and information.


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My Child Without Limits and Brave Kids

New column: "Grieving the Loss of Your Physician"

JohnNovack's journal

JohnNovack

new-column-grieving-the-loss-of-your-physician

200160

From: John Novack, Inspire Dear members, I'm writing to share with you the latest in a series of “Experts by Experience” columns, as part of a collaboration between Inspire and Mayo Clinic. We invite you to read and share "Grieving the Loss of Your Physician," by Kari Ulrich. Ms. Ulrich, who lives with multiple disorders, including fibromuscular dysplasia (FMD) and Ehlers-Danlos Syndrome ... Read More

My Child Without Limits and Brave Kids

A new collaboration, "Patient Perspectives," to amplify patients' voices

JohnNovack's journal

JohnNovack

a-new-collaboration-patient-perspectives-to-amplify-patients-voices

200160

From: John Novack, Inspire Dear members, We're excited to let you know that we just began a partnership, "Patient Perspectives," with the industry magazine Life Science Leader. A goal of the collaboration is help life science executives understand better the journeys of patients and caregivers facing significant illnesses. We invite you to read and share the new guest column, "Making ... Read More

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My Child Without Limits and Brave Kids

Safety for my daughter

In: Help For You and Your Child's Life

vanessaz

safety-for-my-daughter

200160

Hello, My name is Robin and I have a daughter with long term special needs and her IQ is only 44!!! She has no level of understanding consequences. I am looking for a phone that somehow can help with to monitor her sending naked or receiving naked photos. Please Please ... Read More

My Child Without Limits and Brave Kids

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200160

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

My Child Without Limits and Brave Kids

Pets are more than just friends

Chronic-Inspire's journal

Chronic-Inspire

pets-are-more-than-just-friends

200160

Dog or cat, horse or fish or peacock, animals are a source of comfort for people, helping to decrease stress and improve well-being. An article about “The Power of Pets” from the February 2018 issue of the News in Health newsletter from the National Institutes of Health rounded up some of the ways in which pets have an impact on health – a growing area of research. According to Dr ... Read More

My Child Without Limits and Brave Kids

Worried me...

In: Getting Started

erosricer

worried-me

200160

Hi everyone I am new to this thread and I am hopeful for some help. My 2 year old daughter was diagnosed with GDD cannot totally rule out austism a few months back. We noticed she is barely looking at us when her name was called, hand flaps, barely calls us papa and mama and a bit different from other children(does not communicate her needs). As a parent I was so devastated and cried ... Read More

My Child Without Limits and Brave Kids

YOU made an Inspire glossary!

Radha_Inspire's journal

Radha_Inspire

you-made-an-inspire-glossary

200160

Greetings! I’d like to introduce a new resource for all of us in the Inspire community - a glossary. We believe this will be a helpful resource that will improve your experience on Inspire. Thanks to the many, many of you who suggested this feature and helped make it a priority. Inspire’s glossary includes common terms and acronyms that reflect the shorthand that patients, caregivers ... Read More

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My Child Without Limits and Brave Kids

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200160

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

My Child Without Limits and Brave Kids

overwhelmed by there body?

MattinVT's journal

MattinVT

overwhelmed-by-there-body

200160

I feel like no matter what I do there is a price when it comes to my body. I use a catheter because I can't empty my bladder completely to prevent kidney stones or infections and then I get infections from the catheter yes I use a new one each time. I wear diapers 'cause my bladder leaks and get rashes. I use a wheelchair because I can't walk and get a pressure sore yes there are ways ... Read More

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