Taking charge: How to be a proactive patient

Discuss what it means to be a proactive patient -- what everyone should know and how to get the information and help you need.


Apathetic Neurologist

  • By Slantz883 · Posted April 21, 2014
  • 0 replies
  • Does it seem to you that when MS reaches the secondary progressive stage that the neurologist just throw up their hands and say there is nothing more I can do, call me when you need me? Do they just give ...

Gadolinium posioning , very much worth checking.

  • By bjfloyd · Posted February 2, 2014
  • 0 replies
  • Just wanted to throw something out there, most likley your specialist won't agree or do test. I even put off till my gyno said you will take this. I had a very sudden flair up but all my test pointed ...

Waiting on diagnosis

  • By KYMama · Posted February 18, 2013
  • 0 replies
  • Hello, I am still waiting on an official diagnosis. I have had a CTA, EMG, VEP (which was abnormal), and 3 month follow up MRI which showed no new lesions. Even though no new lesions were present, I developed ...

Would You LIKE to help?

  • By Laura_K · New reply August 14, 2012
  • 2 replies
  • I cleared this with the Inspire management folks before I posted this and they kindly gave their permission to ask for your help. MAYO Clinic is offering scholarships for three patient/caregivers to participate ...

Check in time - let's do a roundup of who is here

  • By Laura_K · New reply December 22, 2011
  • 20 replies
  • There might be an influx of new folks here as the MS research group is closed later this week. I thought it would be a good idea if we take a moment to introduce ourselves as we check in here. I'm Laura ...

Stopping all medicine while awaiting a diagnosis

  • By SYLVIA2 · New reply December 12, 2011
  • 1 reply
  • Hi titosangel, I am sharing my comment below to your latest discussion on the inspire site. Thank you so much for informing us of your journey. God Bless you and Merry Christmas!! It's nice to know that ...

Wanted to say hello!

  • By heart_of_stone812 · New reply October 28, 2011
  • 10 replies
  • I just joined (right NOW!) and I will take the next few days to read through other posts. I am coming over with an evite from Laura K, who like me is currently in a 'research' group with MS her on Inspire ...

I'm Sure I have MS. I checked things out thoroughly.

  • By SYLVIA2 · New reply October 27, 2011
  • 3 replies
  • Because I'm so proactive, I am sure I was not misdiagnosed. I know I have MS. I know I do have a combination of disorders that make my case even more confusing. I also have epilepsy. I've had epilepsy ...

Fingers and toes go numb every night

  • By hahndoghotcakes4 · New reply September 17, 2011
  • 12 replies
  • Hi, I do not have a dx as of yet. A couple questions... I had a normal non-contrast brain MRI 3 months for significant memory loss. Can MS then totally be ruled out? The doctor thought it must be adult ...

Don't be afraid to complain!

  • By mnda · Posted April 27, 2010
  • 0 replies
  • Speaking both as a patient and medical staffer, I wanted to remind everyone that they have the absolute right to complain about service from a doctor's office, clinic or hospital. I'm going to use my ...

Things you can do

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