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Mended Hearts

Heart disease support group and discussion community

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A support group for people affected by heart disease. Discuss atrial fibrillation, diabetes, stroke, surgery, diet, and more in the discussion groups.


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Mended Hearts

Almost Angel

wishbone1950's journal

wishbone1950

almost-angel

200089

I've been putting off writing about this but I need to get it in writing before my memory lapses. About a year ago, I was being tested at a local hospital in their pulmonary department. PFT's , don't I love them..lol..My daughter that cares about me was there along with the technician and I was attempting to do the volume part of the test....breathe- hold it/hold it/hold it....now ... Read More

Mended Hearts

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200089

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

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Mended Hearts

Patients and caregivers are “Experts by Experience”

Brian's journal

Brian

patients-and-caregivers-are-experts-by-experience

200089

Dear members, Today we are excited to announce that Inspire and Mayo Clinic have launched “Experts by Experience” – a series of columns written by patients and caregivers from around the world. The kickoff column is Kindness at the Margins for Caregivers, by patient advocate Renata Louwers. A main purpose of the series is to bring the patient perspective to people who can learn from ... Read More

Mended Hearts

If you want more happiness in your life... Manufacture your own.

JerzeyCate's journal

JerzeyCate

if-you-want-more-happiness-in-your-life-manufacture-your-own

200089

In 1958 Moreese Bickham was sentenced to death after being falsely convicted of murder. For 14 years and seven stays of execution, he lived on death row, in solitary confinement, for 23 hours a day. In total, he was incarcerated for over 37 years before being exonerated and walking away a free man in 1996. Upon his release, he was quoted as saying: “I don’t have one minute’s regret ... Read More

Mended Hearts

What is the first week like after having open heart, bypass surgery?

In: Heart Surgery

phillyrich

what-is-the-first-week-like-after-having-open-heart-bypass-surgery

200089

I'm going to have a quad bypass surgery. I will have little support, and be mostly alone. What is the first week like after this surgery? How often are you up. Do you eat normally? Can you read, watch tv ... Read More

Mended Hearts

Stent

In: Heart Disease and Stroke

Tterryb

stent-12

200089

My hubby had what the doc calls a small heart attack in Dec 17 and had a stent fitted in his heart artery and his groin. Tonight he broke out in a heavy bout of perspiration while on the loo. No nausea or pain. He had no symptoms during previous heart attack. Is this something I should be concerned about. Won't go to casualty ... Read More

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Mended Hearts

I have to have another Aortic valve replacement and I am terrified...

In: Heart Surgery

tricc57

i-have-to-have-another-aortic-valve-replacement-and-i-am-terrified

200089

I had a very large aneurysm and bad aortic valve. I had my initial surgery 4 years ago. I am going to the Cleveland clinic for this one. I am terrified that they will not be able to restart my heart upon completion of their work. Like most of you, I know more now since I've been through it before and I know for what I need done, they have to take my heart out of its "nest" , dissect ... Read More

Mended Hearts

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200089

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Mended Hearts

Just Tired

wishbone1950's journal

wishbone1950

just-tired-9

200089

My life now reminds me of a roller coaster ride. Balance is a huge thing with fluids. Just came out of the hospital from an overnight, ER doc said I was septic, kidneys had shut down, all the usual tests were abnormal. That night, a nice young lady came to see me. She did her internship of Advanced Cardiac Failure with my heart doctor at the University. Before I could blink twice ... Read More

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