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Melanoma > Exchange

Melanoma Research Alliance Support Community and Discussion Group

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Melanoma > Exchange

"Ugly" side of melanoma

In: Early stage melanoma (0-2)

Tracy_Callahan

ugly-side-of-melanoma

200239

Last week I underwent a wide excision and MOHs for my fourth early stage melanoma, this one on my face. While it is all fresh and I am feeling all the "feels" I decided to blog about this most recent experience. Here are a few excerpts from that blog and I have a feeling that many of you can relate: "We often don’t talk about the “ugly” side of melanoma. You may think I am talking ... Read More

Melanoma > Exchange

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200239

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

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Melanoma > Exchange

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200239

  • 1,060 Replies
  • Processing ...

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Melanoma > Exchange

Share your favorite post

Brian's journal

Brian

share-your-favorite-post-1

200239

Dear members, I often think about the Inspire community in its entirety. Our collective knowledge of illness, health, and the many pathways between them is expansive and varied. However, I suspect the experience for most of you is more particular, as you settle into one or a few communities that are most important to you. The connections we create with one another in our small groups ... Read More

Melanoma > Exchange

What not to say to a cancer patient

Cancer-Inspire's journal

Cancer-Inspire

what-not-to-say-to-a-cancer-patient

200239

  • 901 Replies
  • Processing ...

By Radha_Inspire Digital Editor, Inspire A Personal Health column at the New York Times today discussed what to say and, crucially, what not to say, to cancer patients based on a book called Loving, Supporting and Caring for the Cancer Patient by Dr. Stan Goldberg, a prostate cancer patient and communications specialist at San Francisco State University. Any type of discussion about ... Read More

Melanoma > Exchange

New report explores health impact of online patient support networks

Cancer-Inspire's journal

Cancer-Inspire

new-report-explores-health-impact-of-online-patient-support-networks

200239

By Radha_Inspire Digital Editor, Inspire Today, Healthline published a report on “The Impact of Digital Information and Patient Support Networks.” The report was based on a survey of 1,500 adults – cancer patients and survivors (76 percent) and caregivers (24 percent) – across three cultural generations: 500 millennials (aged 18-36 years), 500 Gen X (aged 37-52), 500 Boomers (aged ... Read More

Melanoma > Exchange

Intro post - melanoma survivor and clinical trial participant

In: Melanoma

TJSharpe

intro-post-melanoma-survivor-and-clinical-trial-participant

200239

I am a two time melanoma survivor that has spent the last five years battling this disease - and helping others in their fight. Originally diagnosed with a Stage IB melanoma in my clavicle, I went to the hospital 12 years later and found out I had tumors in both lungs, liver, spleen, and small bowel. My melanoma had returned. I participated in two different clinical trials, using four ... Read More

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Melanoma > Exchange

Cancer stories that “no one wants to hear” might inspire change

Cancer-Inspire's journal

Cancer-Inspire

cancer-stories-that-no-one-wants-to-hear-might-inspire-change

200239

By Radha_Inspire Digital Editor, Inspire Over the course of 11 intense and difficult months, Renata Louwers’s husband Ahmad was diagnosed with and died from metastatic bladder cancer. The question Louwers kept asking herself then and afterwards was why no one was talking about the experience of dying from cancer? “I think it’s a crisis in this country,” she told Inspire. In a recent ... Read More

Melanoma > Exchange

Advanced Cancer Caregiver Virtual Support Group, Tuesday, Dec 5, 7 pm EST

ardeee's journal

ardeee

advanced-cancer-caregiver-virtual-support-group-tuesday-dec-5-7-pm-est

200239

Advanced Cancer Caregiver Virtual Support Group, Tuesday, December 5 - 4pm PST, 5pm MST, 6pm CST, 7pm EST The Answer Cancer Foundation Advanced Cancer Caregiver Virtual (online or telephone) Support Group will meet this week at 8 p.m. Eastern (5 p.m. Pacific). We meet the first and third Tuesdays of each month. The meeting on the first Tuesday is at 7 p.m. Eastern. The meeting on the ... Read More

Melanoma > Exchange

Financial Toxicity - is it happening to you?

In: Caregivers

codyrbarnett

financial-toxicity-is-it-happening-to-you

200239

Hey Everyone, I'm working on an article on financial toxicity, and was shocked go find that up to 80% of cancer survivors exhaust their savings to finance their medical expenses. And, survivors file for bankruptcy 260 times more frequently than similar households not affected by cancer. This is crazy! I had no idea how pervasive this issue is! Is this something you are experiencing ... Read More

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