How my child's illness has changed my life

How has the experience of caring for a child with lysosomal disease changed your life? Share your story with the group here.



  • By Kylesmama · New reply March 12, 2009
  • 5 replies
  • I am trying to gather information on NBS (newborn screenings) for lysosomal disorders. Does anyone know which disorders have screenings now available and which ones are in the works? I know that Krabbes ...

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