How has the experience of caring for a child with lysosomal disease changed your life? Share your story with the group here.
- By Kylesmama
· New reply March 12, 2009
- 5 replies
- I am trying to gather information on NBS (newborn screenings) for lysosomal disorders. Does anyone know which disorders have screenings now available and which ones are in the works? I know that Krabbes ...