Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

Boost VHC Drink - 530 Calories

Duvie
  • By Duvie · New reply April 22, 2014
  • Journal · 72 replies
  • Thanks to a lovely lady battling ALS, I have found out about this new Boost high- calorie drink to pass on to those struggling to maintain or to gain weight. Check it out online. Take special notice to ...

And here we go again

Itaccm
  • By Itaccm · New reply April 17, 2014
  • Discussion in Symptoms · 12 replies
  • So last weekend I woke up about 4am with cramping. Hubby got worried because it could be a number of things wrong with me thanks to lupus. Well we went to the ER and was there for 5 hours got a CT scan ...

Tapering off Prednisone

Itaccm
  • By Itaccm · Posted April 17, 2014
  • Discussion in Symptoms · 0 replies
  • I have been tapering off slowly from Prednisone and my hands I've noticed been really shaky but I don't know if that's a sign of me coming off of it. What are some signs that you all have experienced ...

I'M STILL ALIVE AND KICKING

ShelaKay42
  • By ShelaKay42 · New reply April 16, 2014
  • Journal · 12 replies
  • Hello Friends, I'm still here slots been going on this past year I've been getting closer to my Lord and Savior Jesus Christ every day I rededicated my life to him and I am a born again Christian. I walk ...

Insomnia!! I need some Zzz's

Itaccm
  • By Itaccm · New reply April 15, 2014
  • Discussion in Newly diagnosed · 8 replies
  • I have insomnia about 4 days out of the week. I take Prednisone & Plaquenil in the morning. At night I only take Plaquenil and a vitamin D. On rare occasions if I'm in a lot of joint pain I will take ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Looking for answers, lots of questions!!!!

nikkilee23
  • By nikkilee23 · New reply April 14, 2014
  • Journal · 47 replies
  • Im slightly disappointed. As my first post received many replies and lots of help, not so much on my last post. I have some questions that ive done a little research on, but cant seem to find too much ...

Heels of feet

Itaccm
  • By Itaccm · New reply April 12, 2014
  • Discussion in Living with lupus · 6 replies
  • So I had a rough night, insomnia hit and hubby was snoring way too loud so I decided to go to the guest bdrm. I hate that bed it's hard and it hurts!! So at 5am when hubby wakes up I switch beds but by ...

Here we go again

Bjcreed
  • By Bjcreed · New reply April 12, 2014
  • Discussion in Living with lupus · 3 replies
  • Well I'm having another flare up. Not suprised really. Being a mother to a 1 year old is amazing but doesn't leave me with much time to rest. On top of that my daughter has been unwell with bronchiolitis ...

Losing my personality

beachdog
  • By beachdog · New reply April 10, 2014
  • Journal · 56 replies
  • As I get weaker I don't have the energy to find interest in things so my world is shrinking. I'm doing so many things to keep healthy but the fatigue just won't let me go. When I have a bad few days I ...

Headaches!! Hate them!!

Itaccm
  • By Itaccm · New reply April 9, 2014
  • Journal · 2 replies
  • So I have been having headaches for the last 5 days. Usually I wouldn't complain about this because I used to get them prior to Lupus, but now anything that I get after Lupus just freaks me out a little ...

Better Days Ahead

LLLV60
  • By LLLV60 · New reply April 3, 2014
  • Journal · 4 replies
  • Got some vaseline for my hands. Skin so dry it is cracking. Good news finally warming up and I went for a walk yesterday. Tired but doing well. Going to strive for a better year this year.Bless all of ...

Ahh, My Hair!

Soapup72
  • By Soapup72 · New reply April 3, 2014
  • Journal · 8 replies
  • My hair is falling out in massive amounts! I have been taking Plaquenil for about six weeks. My hair was falling out before I started the meds, but it seems much worse. It is falling out in handfuls now ...

My ANA RESULTS

Janedoe5199
  • By Janedoe5199 · New reply April 2, 2014
  • Discussion in Symptoms · 6 replies
  • Hi, I recently went to the doctor after experincing a malar rash and joint pain. My PCP ordered an ANA test. My ANA was abnormal. Further, my Dsdna was high. The RNP, SM, SSA and SSB was detected. My ...

cracks/sores in corners of mouth (angular cheilitis)

AlyshaKathleen
  • By AlyshaKathleen · New reply March 28, 2014
  • Discussion in Symptoms · 2 replies
  • I have been getting this since about 2010 but it has progressed where now I literally cannot get rid of it. When I do get rid of it, it just comes back within a few days or a week, maybe 2 when I am very ...

Remission of Lupus?

sickofcrest
  • By sickofcrest · New reply March 27, 2014
  • Discussion in Living with lupus · 2 replies
  • I just came from my research of Benylsta, and was told that my lupus was in remission...Thank God...Just wondering if anyone has experienced this and for how long? All my labs were excellent..However ...

Soooo Done Treatment

jaymkay
  • By jaymkay · New reply March 26, 2014
  • Discussion in Treatment · 2 replies
  • I have been battling Lupus for 10 years and have been on tons of medications. I currently take plaquenil, prednisone, and will have my 3rd Benlysta Infusion tomorrow. I had a PICC line for 2 weeks after ...

Anti Inflammatory Drink

Beethie
  • By Beethie · Posted March 25, 2014
  • Discussion in Living with lupus · 0 replies
  • Hello fellow Lupies - I thought I would share the following link with you that was posted on Facebook:http://www.mindbodygreen.com/0- 6780/A-Recipe-for-Turmeric-Juice-A-Power ful-Healing-Beverage.html ...

Elephant on my chest

Itaccm
  • By Itaccm · New reply March 25, 2014
  • Discussion in Living with lupus · 6 replies
  • So for a few weeks now I have been feeling like I have an elephant sitting on my chest it hurts to take deep breaths. They say it could be reflux, so I have been taking Prilosec but it doesn't seem to ...

Whoo Indeed

tiny1966
  • By tiny1966 · New reply March 25, 2014
  • Journal · 5 replies
  • Have been entertaining myself making vintage posters with a new app. Keeps my mind occupied some ...

Log in to see more

Don't have an Inspire account? Sign up now!

Forgot password?

Things you can do

Discussion topics

Community leaders

Inspire others

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.

Read more about our work