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Lung Neuroendocrine Tumor (LungNET)

About this Community

About this community

Inspire's Lung Neuroendocrine Tumor (LungNET) Support Community connects patients, families, friends and caregivers for support and inspiration.

Contact

Lung Neuroendocrine Tumor (LungNET)
2480 Hull Ave
N. Bellmore, NY 11710
Phone: 1-516-781-7814 / 1-866-850-9555
info@netcancerawareness.org
www.netcancerawareness.org

Community Leaders

Community topics
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Welcome / Newly diagnosed
Living with LungNETs
Symptoms and Side effects
Chemotherapies and Biotherapies
Hormone therapy
Radiation therapy
Surgery
Watchful waiting
Caring for a loved one with a LungNet
News and research
Advocacy and awareness
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New
New reply March 28, 2024 • 4:21 PM

Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac ... Show more

StephShuff130 replies46 Reactions

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New reply February 21, 2024 • 6:56 PM

I am diagnosed with Neuroendocrine large cell. I had a lobectomy in December. Stage IlA. My oncologist would only recommend chemotherapy as treatment. I don’t want chemo. Has anyone tried hormone o ... Show more

CindyLembkey2 replies0 Reactions
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New reply January 16, 2024 • 5:58 AM

I had a lobectomy in December. My cancer stage is IIA. My oncologist would only recommend chemo as treatment. Has anyone tried hormone or target treatment ? I am shocked that the chemo regime from ... Show more

Cindy4_Butterfly1 replies0 Reactions
New reply December 16, 2023 • 1:35 AM

I am due to start Keytruda 11JAN24 for left lung after right lung case was solved successfully with JUN - AUG 2023 cisplatin / etoposide after MAY 2023 lobectomy. 20OCT23 scan showed right side OK b ... Show more

midoceanstars1 replies0 Reactions
New reply December 12, 2023 • 5:04 PM

I am scheduled to have surgery in January for a 13 mm neuroendocrine tumor in left lung. Im 77, female, go to the Y to exercise. Was told about 10% of lung will be removed, a tube will be inserted fo ... Show more

Jessquilts9 replies0 Reactions
New reply March 16, 2024 • 7:36 AM

Dear Members, Many of us have been involved in clinical trials, or have considered enrolling in one, or have supported someone who has. At Inspire, we believe that all of us, as patients and caregiv ... Show more

Brian432 replies30 Reactions
New reply August 02, 2023 • 8:00 PM

I’d be pleased to understand any experiences anyone has of wedge resection. I went for preoperative chat yesterday and the whole thing was very scary. (I say this having had a thyroidectomy a month a ... Show more

FlowerFlora2 replies0 Reactions
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New reply December 10, 2023 • 2:58 AM

Hello - I have one month ago had a papillary thyroid cancer removed. I also have a suspected lung NET about 14mm in size disc shaped middle lobe right lung. Due for surgery in less than 2 weeks. Hap ... Show more

FlowerFlora2 replies0 Reactions
New reply May 17, 2023 • 3:39 AM

Hello! I recently had a NET PET scan and it showed the tumor in my lung is currently inactive. They did find 2 lesions on my spleen so I am going for a MRI tomorrow. The tumor in my Ischium is still ... Show more

P-I-M-A1 replies0 Reactions
New reply May 01, 2023 • 12:34 AM

In 2018 I had a wedge resection of the upper right lobe to have a NET Carcinoid removed. It didn't require any follow up such as medication or chemo/radiation since it was all removed. I still have a ... Show more

SheTiger2 replies0 Reactions