"A wake-up call from a young e-patient: 'I need to be heard'”

  • By John2 · Posted April 15, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Exercise and Pulmonary Disease

  • By BreathingBody · Posted April 6, 2014
  • 5 replies
  • Hello Inspire Friends Here's a note about another free webinar coming up soon. I think this topic will be a great one. The title is "Move it!Move It! Exercise and Pulmonary Disease" and it's scheduled ...

In home health

  • By Joancarol · Posted April 4, 2014
  • 0 replies
  • I was wondering if any of you have in home health care. We are checking into it. My doctor has given consent. I would love to hear your comments ...


  • By Ashleyleslie · Posted March 30, 2014
  • 2 replies
  • My doctor suggests that I now go on Cellcept. I developed AVN in both my legs from a mixture of prednisone and my past radiation and chemotherapy. I have several spots so in order to prevent more, I need ...

Antibiotic didn't help much with acute sinusitis

  • By ladydiana38 · Posted March 30, 2014
  • 13 replies
  • Hi, all. I have bronchiectasis with MAC. 10 days ago I was diagnosed with acute sinusitis. Yesterday was my last day on an antibiotic (doxy). I thought I was getting better, but 2 days ago I blew out ...

"Pulmonary Medications" - On-Line Q & A - TODAY!

  • By BreathingBody · Posted March 26, 2014
  • 2 replies
  • TODAY- Wednesday March 26th there is an on-line Question and Answer Session about Pulmonary Medications. 7:30-8:30pm It is a follow up on last week's presentation by Dr. Noah Greenspan. Today he will ...

Our second annual report with Stanford Medical School

  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Next Free Webinar on Pulmonary Wellness Tomorrow - Wednesday March 19th

  • By BreathingBody · Posted March 18, 2014
  • 0 replies
  • Just a little note that the next Ultimate Pulmonary Wellness Webinar with Dr. Noah Greenspan is tomorrow - Wednesday March 19th at 6:00 EST It is on Maximizing Your Pulmonary Medications and you can register ...

Hitting a milestone -- 5,000 photos posted already

  • By John2 · Posted March 18, 2014
  • 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Check up

  • By Nikongirl2 · Posted March 17, 2014
  • 4 replies
  • Hello friends: I had an appointment on the 13th and my research Dr. Said my lungs are doing great right now. My cultures are still negative I am so grateful for that. I still do my Hypersal 7% solution ...


  • By CountryDaughter · Posted March 15, 2014
  • 15 replies
  • Mom lost her battle in the 13th of March 2014 @ 530am. We knew she had cancer for 1 week. I never knew how much I loved her until those last few hours I had with her. She was an amazing woman. I am missing ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

  • By John2 · Posted March 14, 2014
  • 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Masks for MAC (Mycobacterium Avium Complex)

  • By paulande · Posted March 12, 2014
  • 5 replies
  • Does anyone out there wear masks while gardening?? Is there a specific type that would be better than another?? I've read that peat and/or peat moss has an exceptionally high Mycobacterium count. Paula ...


  • By ShelaKay42 · Posted March 12, 2014
  • 12 replies
  • Hello Friends, I'm still here slots been going on this past year I've been getting closer to my Lord and Savior Jesus Christ every day I rededicated my life to him and I am a born again Christian. I walk ...

Leg or Foot Massage Devices???

  • By Duvie · Posted March 11, 2014
  • 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

March 19th Free Webinar on Pulmonary Medications

  • By BreathingBody · Posted March 11, 2014
  • 0 replies
  • I just wanted to mention another free webinar coming up this month with Noah Greenspan on Pulmonary Wellness and Medications. It will be on March 19th, Wednesday evening at 6:00 pm. It's called "Maximizing ...

More Free Webinars on Pulmonary Wellness - Next one tomorrow Weds March 5th

  • By BreathingBody · Posted March 4, 2014
  • 2 replies
  • Just a little note that there's another informational webinar on Ultimate Pulmonary Wellness on-line tomorrow (March 5th) at 7:30pm. It's with Dr. Noah Greenspan and you can find the full information ...

NTM!!!!!!!chronic fatigue

  • By bluecl0ud · Posted March 3, 2014
  • 2 replies
  • My major problem I have with this,is daily chronic fatigue. It interferes with my daily normal task. Even just a hour or so and I am wore slam out. Another problem is SOB when I just do anything. I mean ...

alpha-1 antitrypsin deficiency

  • By faeriegirl · Posted February 22, 2014
  • 3 replies
  • I have recently been diagnosed with Alpha-1 and soon will be starting the augmentation therapy and I am wondering if anyone has information on it or is going through it. I am scared and am looking for ...

Double Lung Transplant

  • By Ashleyleslie · Posted February 20, 2014
  • 23 replies
  • So over the past couple months I have been going to different hospitals to look at their lung transplant clinics. These hospitals that I have visited include Cleveland Clinic and Mayo Clinic in MN. I ...

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