Hi, I'm new. I have 'pockets' in my lung from pneumonia and had bleeding and infections off and on with progressive scarring and diminished lung capacity. Many people get bacteria psuedomonas or PA from water or dirt introduced from showers, food, etc. It's an extremely common bacteria that healthy bodies manage without getting infected, but, compromised tissue can't fight off as these are tough bacteria and mutate against antibiotic drugs used against them.
I'm just comparing notes to what others with this progressive condition are experiencing and any suggestions. I just came off of Lavaquin - not sure of spelling (a quinolone drug) and no one bothered to warn me that a severe side effect is that quinolone drugs in interrupting the DNA replication of the bacteria itself (as a way to kill it) would also mess with my own DNA of joints/tendons...ended up in horrible pain in knees, hips and could barely walk. Turning my head was impaired and hurt in other joints/muscles...not good. I hear this is a rare response, but, talking just to my local WalMart pharmacist, he'd seen a couple of cases of it and one that had to be hospitalized, so, it must not be too rare. I'd been on two back to back prescriptons which did get my lungs clear for about a month, so, maybe I just had 'too much'. I'm not complaining as some people have bad reactions to drugs, but, after talking to my drs they're in agreement for me to go as well as I can without quinolone drugs (as the Drs said they're about the only ones that will slow the bacteria down) , but, if my lungs become too congested or sick I'll have to go back on quinolone drugs again. Anyone have feedback of experience on manageing this 'bug', let alone anyone ever kill this bug permanently (I was told it's unkillable). What have your drs told you to expect? Mine have 'fluffed' me with nice bedside manner and won't get me any stats on life expectancy or quality of existence. I managed to get my joints and tendons back (still are a little weak and painful, but, nothing like what they were). Thanks for input.