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Kidney Cancer Association

Kidney cancer support group and discussion community

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Connect with kidney cancer patients and caregivers for support and information. Discuss RCC, immunotherapy, nephrectomy, renal ablation, RFA, and more.


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Kidney Cancer Association

My Story with Stage IV Kidney Cancer

In: Clinical Trials

mvrace4ever

my-story-with-stage-iv-kidney-cancer

200246

I wanted to share my story with all of you... last year I came to this forum to find information, help, etc. I am 47 years old: December 2016 started to vomit in the morning. Started to lose weight. January 2017 continued vomiting and started having fever everyday in the afternoon and for around 4 to 5 hours. 102.5 degrees was the average. January 2017 / Feb 2017 same as before adding ... Read More

Kidney Cancer Association

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200246

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

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Kidney Cancer Association

Fighting words: How we talk about cancer

Cancer-Inspire's journal

Cancer-Inspire

fighting-words-how-we-talk-about-cancer

200246

By Radha_Inspire Digital Editor, Inspire News reports and public well-wishes for Senator John McCain, who was recently diagnosed with glioblastoma, an aggressive type of brain cancer, have struck a linguistic nerve among cancer patients and caregivers with their descriptions of the senator as a “fighter,” engaged in “battle,” ready to “win” against cancer. The heightened awareness ... Read More

Kidney Cancer Association

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200246

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

Kidney Cancer Association

PD1/PD-L1 is the superstar checkpoint

fighterm's journal

fighterm

pd1-pd-l1-is-the-superstar-checkpoint

200246

1980s and 90s were full of discoveries of immune checkpoints and immune costimulators. Due to that pioneering research of doctors and scientists we now have our new immunotherapy. (Took almost 25 years from the lab studies to clinic). Some of the study titles done at that time: 1. LAG-3, a novel lymphocyte activation gene closely related to CD4. 1990. 2. Induced expression of PD-1 ... Read More

Kidney Cancer Association

What inspires you?

Katuha's journal

Katuha

what-inspires-you-1

200246

The unseen shadow of a wispy breeze in the treetops. (PSITHURISM: The sound of wind in the trees and rustling of leaves.) Hugging one of my Grandkids without blowing up my pee bag. A really good smelly fart. Pooping every day. Hugging my wife who has put up with me for 51 years now last October 1st. Helping a friend. Riding my chrome pony on the concrete canyons at least 150 miles ... Read More

Kidney Cancer Association

Patients and caregivers are “Experts by Experience”

Brian's journal

Brian

patients-and-caregivers-are-experts-by-experience

200246

Dear members, Today we are excited to announce that Inspire and Mayo Clinic have launched “Experts by Experience” – a series of columns written by patients and caregivers from around the world. The kickoff column is Kindness at the Margins for Caregivers, by patient advocate Renata Louwers. A main purpose of the series is to bring the patient perspective to people who can learn from ... Read More

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Kidney Cancer Association

THE GIFT OF A MOMENT

Katuha's journal

Katuha

the-gift-of-a-moment

200246

We humans spend our entire lives seeking, searching, struggling for a life; to build a comfortable life for ourselves so that when we get old (if we’re lucky enough to get old) we can relax a bit and enjoy the moments that come to us. Moments are the gift. A special moment is available most anytime, anywhere we are. Part of the gift is being able to recognize that a moment is there ... Read More

Kidney Cancer Association

Lymphoma recurrence?

fighterm's journal

fighterm

lymphoma-recurrence

200246

Just got a call from the emergency department where I was several times with my nephrotube (kidney tube) problem and sepsis. In the middle of December they did a chest CT scan for my kidney problem. Today they called and said I had a spot 1.8x 1.7 cm in my chest. Why did not they call me 1.5 months earlier? I am scheduled for the ureter repair surgery (Boari flap or ileal ureter) on ... Read More

Kidney Cancer Association

FREE Advanced Cancer Caregiver Virtual Support Group, Tue, Feb 20 - 8pm EST

ardeee's journal

ardeee

free-advanced-cancer-caregiver-virtual-support-group-tue-feb-20-8pm-est

200246

Advanced Cancer Caregiver Virtual Support Group, Tuesday, Feb 20- 5pm PST, 6pm MST, 7pm CST, 8pm EST Hello Everyone, The Answer Cancer Foundation Advanced Cancer Caregiver Virtual (online or telephone) Support Group meets on Tuesday, February 20 2018 at 7 p.m. Eastern (4 p.m. Pacific). We meet the first and third Tuesdays of each month. The meeting on the first Tuesday is at 7 p.m ... Read More

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