Advocacy and legislation

Share your opinions and insight on legislation affecting the kidney and transplant community.


Scratch the surface & other conditions neglected causing acute symptons

  • By julieshrive · Posted June 17, 2012
  • 0 replies
  • I have several diagnosis to a certain extent ignored eg: chronic utis 3 weekly are not re:SBO, also CFS / fibro & cardiac arrest . The utis are out of control if left longer than 3 weeks . If I up my ...

Frustration, for Patients Any Age.

  • By 1Tatiana · Posted April 2, 2012
  • 0 replies
  • April 2, 2012 Dear Medical/Patients Response Team I am with so many health issues I have almost no strength left. I tried to gain support and a real medical support team, but all I long i received for ...

FDA isn't listening--time to turn up the heat regarding supplements!

  • By naturalgirl · Posted February 14, 2012
  • 0 replies
  • A champion of supplements in the House sends a warning to FDA. Persuade others in Congress to join him with our Action Alert! g/ Please sign petition ASAP if you ...

A Cautionary Tale About Medical Records

  • By SkyRider · New reply February 7, 2012
  • 2 replies
  • I wasn't sure about the right topic so selected what seemed most logical of the choices. I learned of my fused ectopic kidneys in a rather troubling way. I went to a Urologist complaining of years of ...

Contact your senators if you want to keep your supplements

  • By naturalgirl · Posted December 4, 2011
  • 0 replies
  • Many supplements may be a thing of the past of the FDA has their way. The only way to really stop this is to contact your representatives so that this does not pass. The best way to defeat these new rules ...

My last chance!

  • By KidneyDonor · New reply November 9, 2011
  • 1 reply
  • My Last Chance! Hi! I am very far behind in votes in order to get into the top 10 of this contest to be eligible for money for my project that can help save more lives. The last day for voting is Thursday ...

My interview as a kidney matchmaker with a kidney recipient

  • By KidneyDonor · Posted November 7, 2011
  • 0 replies
  • Hi! Here is a link to my interview last night - me with a kidney I had made: tc ...

Petiton to Congress -anti-rejection drug coverage bill

  • By KidneyDonor · Posted November 3, 2011
  • 0 replies
  • Here is the link for the petition to Congress - support anti-rejection drug bill: http://www.americantransplantfoundation. org/2011/10/petition-to-congress-support -anti-rejection-drug-coverage-bill ...

kidney disease and organ donation

  • By cbKUFA · Posted October 17, 2011
  • 0 replies
  • On Sunday, October 30, 2011, we invite you, your family, your friends and your co-workers to join us as we take a stroll around Central Park, NYC and help to save lives in the process. Don't live in NYC ...

Re: UNOS - conference & proposal

  • By KidneyDonor · Posted October 4, 2011
  • 0 replies
  • Hi! Someone asked me to post this: To all living kidney donors, recipients, and members of the donor community: The United Network for Organ Sharing (UNOS) is holding a conference Oct. 12th in Albany ...

Need your vote! I donated a kidney and have saved lives of others

  • By KidneyDonor · New reply September 23, 2011
  • 12 replies
  • I donated a kidney in September 2005 to a stranger. Since my kidney donation, I have been wanting to do more - so I now have a project to help others in need of a kidney. I don't get paid for this and ...

What should we do?

  • By linh2o · New reply November 9, 2010
  • 2 replies
  • Hello all, until recently, I knew little or nothing about kidney failure and how someone could actually drain from this ordeal. I work but dont earn enough to take care of my family. My partner has not ...


  • By chevyman72 · Posted November 3, 2010
  • 0 replies
  • hellow im a 38 year old male and i have a nurogentic bladder since 1998 and have been on oxybutin since then. well now its not working and i get this presure on the right side of my back but it does not ...

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