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Invisible Disabilities Association

Invisible disabilities support group and discussion community

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Invisible Disabilities Association

New To The Community & Doctor Problems

In: Introduce Yourself

thedreamingtree

new-to-the-community-and-doctor-problems

200249

Hi everyone! My name is Kaila, I am a 25-year-old Graphic Designer, and I started my diagnosis journey in January of this year. I already know that I have Reynauds Phenomenon, Anemia, Anxiety and Chronic Nightmares (I've had these since I was about 7). There is still a lot I don't know. I'm currently being tested and worked on to see if I have either; MS, Lupus, Scleroderma, Sjoerns ... Read More

Invisible Disabilities Association

Ptsd

In: Introduce Yourself

Shasta2

ptsd-25

200249

Hello, l am new here, first time here or any other online suppprt group. I have recently been diagnosed with PTSD lost my insurance I'm looking for help. I am and I have put myself in isolation at home and feel overwhelmed with myself - that is why I'm reaching out ... Read More

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Invisible Disabilities Association

Hello

In: Introduce Yourself

Shasta2

hello-677

200249

I am new here, first time doing a support group not sure what to expect but I know I need help. I feel that my PTSD my emotional Behavior has led me to isolation and I just feel really overwhelmed because I have pushed almost everybody away or they can't deal with me really don't know which one it is. I feel misunderstood and like I can't communicate work or keep a relationship ... Read More

Invisible Disabilities Association

An autoimmune disease audio series is a personal project for one woman

Chronic-Inspire's journal

Chronic-Inspire

an-autoimmune-disease-audio-series-is-a-personal-project-for-one-woman

200249

By Radha_Inspire Digital Editor, Inspire For the last several months, Kristen Hendrickson has been immersed in autoimmune diseases. As the creator/producer of a podcast series on autoimmune diseases for the University of North Carolina School of Medicine, Hendrickson has guided the series host – Dr. Ron Falk, chair of the Department of Medicine – and his expert guests through discussions ... Read More

Invisible Disabilities Association

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200249

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Invisible Disabilities Association

What’s in a number? The million member milestone

Brian's journal

Brian

whats-in-a-number-the-million-member-milestone

200249

Dear members, Last night, Inspire hit a milestone -- one million members. One thing that is clearer than ever is that the value of this community is created by you, every minute of every day. I often think that our job is to provide you a safe, supportive space, and then get out of your way. The words you write and the friendships you forge are things we could never create on our own ... Read More

Invisible Disabilities Association

“But you look so good”: Hard to avoid, hard to answer

Chronic-Inspire's journal

Chronic-Inspire

but-you-look-so-good-hard-to-avoid-hard-to-answer

200249

By Radha_Inspire Digital Editor, Inspire Among the many things that people who have a health condition don’t want to hear, “but you look so good” can be one of the most insidious. As Lisa Parker described in a recent essay at Stanford’s Scope blog called "'But you look so good': Living with an invisible illness", this type of well-meaning remark plays on insecurities about a body that ... Read More

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Invisible Disabilities Association

To fight for opioid therapy, an Inspire member calls for action

Chronic-Inspire's journal

Chronic-Inspire

to-fight-for-opioid-therapy-an-inspire-member-calls-for-action

200249

  • 1,371 Replies
  • Processing ...

By Radha_Inspire Digital Editor, Inspire “I think it is time to organize ourselves into a lobbying group somehow.” Constance Small (acorns02459) wrote that on October 19th on Inspire as part of a conversation about what happens when it becomes difficult or impossible to get opioids to treat chronic pain. “I would be very happy to join anyone who would like to organize a campaign to ... Read More

Invisible Disabilities Association

Happy 2 year AVR!

D911Green's journal

D911Green

happy-2-year-avr

200249

Today I'm celebrating my 2 year anniversary of my Aortic Valve replacement surgery. It's been a very long and bumpy road full of ups and downs, mainly downs. I have found myself at the lowest emotionally last year, and am now crawling my way back to the surface. I have all of you to thank for much of my recovery, whether it's just someone having my same condition or someone giving ... Read More

Invisible Disabilities Association

Upcoming surgery

Kini1216's journal

Kini1216

upcoming-surgery-11

200249

This Tuesday I will be having a major surgery. I apologize if you all have heard this already. In Sept of 2015 I got my ileo conduit placedI almost died on the table due to blood loss, so they did a rush job to save me. So now they are going in to fix everything. They have reserved the OR for all day. I will be having exploratory laparotomy, revision or new ileo conduit, probable.bowel ... Read More

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