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Invisible Disabilities Association

Invisible disabilities support group and discussion community

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Invisible Disabilities Association

Caregiver perspectives: Managing caregiver burnout

Cancer-Inspire's journal

Cancer-Inspire

caregiver-perspectives-managing-caregiver-burnout

200249

By Radha_Inspire Digital Editor, Inspire For National Family Caregivers Month in November, we present a weekly series of four interviews with caregivers that highlights different facets of the caregiving experience. Read other interviews in the series here: From caregiving, a career Caring for multiple mental health conditions In 2011, Kristy Petty and Jo Beth, met and began dating ... Read More

Invisible Disabilities Association

What if we were never broken at all...

jerzeycate's journal

jerzeycate

what-if-we-were-never-broken-at-all

200249

What if our biggest barriers to love and acceptance aren't what we thought they were? What if not feeling more love in your life has nothing to do with your personality or your past? What if love is what naturally exists when negative thoughts, worries, and judgments drop away? What if each of us has moments where their negative thoughts, worries, and judgments naturally drop away ... Read More

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Invisible Disabilities Association

Defending Opiod Prescribing for Chronic Pain Patients-J.R.

CTDAwareness2013's journal

CTDAwareness2013

defending-opiod-prescribing-for-chronic-pain-patients-j-r

200249

Defending Opiod Prescribing for Chronic Pain Patients------- ----(sharing my thoughts and others who advocate for facts vs fiction in the use and prescribing of opiods)-------One way I have had success in turning the tide in doctors wanting to decrease or eliminate opiod use or help doctors who want to continue to prescribe to their chronic pain patients is using facts of.. 1) The ... Read More

Invisible Disabilities Association

To fight for opioid therapy, an Inspire member calls for action

Chronic-Inspire's journal

Chronic-Inspire

to-fight-for-opioid-therapy-an-inspire-member-calls-for-action

200249

  • 2,755 Replies
  • Processing ...

By Radha_Inspire Digital Editor, Inspire “I think it is time to organize ourselves into a lobbying group somehow.” Constance Small (acorns02459) wrote that on October 19th on Inspire as part of a conversation about what happens when it becomes difficult or impossible to get opioids to treat chronic pain. “I would be very happy to join anyone who would like to organize a campaign to ... Read More

Invisible Disabilities Association

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200249

  • 456 Replies
  • Processing ...

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

Invisible Disabilities Association

Maybe Someone Can Figure Me Out....

Fireflies_Are_Magic's journal

Fireflies_Are_Magic

maybe-someone-can-figure-me-out

200249

  • 205 Replies
  • Processing ...

I originally posted this in the UK forum by mistake and they suggested I post this here. I should add that in the UK forum, they felt it might be Behcet's disease. I don't think that covers all of it, but maybe some of it? Would love some feedback...I'm kinda desperate to figure this out. It just seems to be getting worse. Since 2008 I have been dealing with an unknown disease(s) or ... Read More

Invisible Disabilities Association

Looking for strategies to address environmental issues at my apartment

In: Helpful Strategies

SanDiegogurl

looking-for-strategies-to-address-environmental-issues-at-my-apartment

200249

HI, I'm a health conscious gal about to turn 65 who lives in a HUD low income senior building. I have been battling with my management every since they moved this guy below me 3 months ago who smokes marijuana and uses excessive room fresheners and burning fragranced candles in front of open windows. I have a rare bilateral vestibular disorder causing chronic vertigo and reactive airway ... Read More

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Invisible Disabilities Association

Alone for the Holidays

Kathrynanne2's journal

Kathrynanne2

alone-for-the-holidays

200249

Hi,my name is Norine Maurer and I have two cervical spine fusions.(levels3,4,5and6,7).My problem is my family,they say that I am not disabled,because I look so good.Every time I miss an event,they say that I just didn't want to go.I'm dreading the holidays,because they don't invite me anymore.My sister's a nurse and my brother teaches biology,they tell anyone else who will listen,that ... Read More

Invisible Disabilities Association

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

200249

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

Invisible Disabilities Association

Who Knew???

jerzeycate's journal

jerzeycate

who-knew-6

200249

When first diagnosed with cardiac problems, many people ask, “Who Me? No…” My version of the question “Who me?” was “Why Me?” – until the day my Mom asked, “Why NOT you?” I hadn’t thought of it that way. I went into the hospital because of a bout with “asthmatic bronchitis” that I just could not shake. I never imagined it might be a heart problem (neither, I guess did my former primary ... Read More

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