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Invisible Disabilities Association

Invisible disabilities support group and discussion community

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Invisible Disabilities Association

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-96

200249

  • 145 Replies

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

Invisible Disabilities Association

"For some chronic pain patients, life without opioids is torture"

John2's journal

John2

for-some-chronic-pain-patients-life-without-opioids-is-torture

200249

  • 721 Replies

From: John Novack, Communications Director, Inspire 7/15/16 Dear members, I am writing to share with you a brand new article in the Boston Globe's STAT section, "For some chronic pain patients, 'life without opioids is torture.'" The article is based on insights of Inspire members, and the article references the recent online survey that Inspire conducted here. To those of you who ... Read More

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Invisible Disabilities Association

Tim from Southern Nevada

In: Introduce Yourself

Timothy1027

tim-from-southern-nevada

200249

  • 3 Replies

Hi, newbie here. 56 year-old divorced white male living near Las Vegas, NV. I am a survivor of Traumatic Brain Injury (TBI) due to a serious car accident in 1992. Been living on disability since 2003. (I tried to go back to work but failed). My life has been rough. I think I am in bad shape, until I read about other peoples problems (on this site & elsewhere) who are worse than mine ... Read More

Invisible Disabilities Association

can anyone tell me how to edit inspire photo album??????

Chronic-cat-lady's journal

Chronic-cat-lady

can-anyone-tell-me-how-to-edit-inspire-photo-album

200249

  • 1 Reply

I have hundreds of pictures and since the new format, I can't figure out how to go into the photo album to delete the pictures, without having to choose one to post, then delete it before you post. That way will take the rest of my life to clear unwanted pictures ... Read More

Invisible Disabilities Association

Pokemon Go and the gamification of health

John2's journal

John2

pokemon-go-and-the-gamification-of-health

200249

  • 436 Replies

Dear members, Like many, we’ve been watching the phenomenon of the Pokemon Go app, and not only many of our employees and friends are actively catching Pokemon, but several Inspire members have recently shared their experiences about how this has positively impacted their health. The game, as I suspect many of you know, allows players to use their mobile devices to explore real-world ... Read More

Invisible Disabilities Association

Sunday I got more news....

StarFire80's journal

StarFire80

sunday-i-got-more-news

200249

  • 2 Replies

The Nurse called for UCSD to imform me they want more testing done a my Splenic Arterial Aneurysm. Wait....what? A who done what rysm? It is now 1.1 CM and I am to go back for another MRI so they can do a Gadavist contrast this time. I am 36 yrs old. I have been sick since 26. It has been the sickest, hurtful, long, bed ridden decade. And its not done with me. I try to stay uppity ... Read More

Invisible Disabilities Association

The presidential candidates answer questions about science

Chronic-Inspire's journal

Chronic-Inspire

the-presidential-candidates-answer-questions-about-science

200249

  • 107 Replies

By Radha_Inspire Digital Editor, Inspire How much do the 2016 presidential candidates know about science? All four candidates had the opportunity to demonstrate their science literacy – and how they apply it to national policies – by answering 20 questions ranging from space travel and agriculture to climate change and innovation. “Taken collectively, these twenty issues have as profound ... Read More

Invisible Disabilities Association

How to break the bad news – expert tips

Chronic-Inspire's journal

Chronic-Inspire

how-to-break-the-bad-news-expert-tips

200249

  • 19 Replies

By Radha_Inspire Digital Editor, Inspire Breaking the news that you are sick is no easy task, nor is an easy thing to hear. The difficulty can be compounded when the illness is chronic, life-altering, or even terminal. While there is no right or wrong way to go about bringing others into the know, experts say there are things you can do to feel more comfortable and in control. Take ... Read More

Invisible Disabilities Association

reflections on living with complex regional pain syndrome

facebook10154558857314288's journal

facebook10154558857314288

reflections-on-living-with-complex-regional-pain-syndrome

200249

  • 6 Replies

July 14, 2016 and sometimes i wake up and the pain has me pinned to the mattress like a bed of nails and i can't move and i don't want to breathe because it will only add fuel to the fire of pain raging inside me and sometimes and sometimes i smile and the world reflects back at me with sparkling eyes, joyful voices, warm embraces and genuine compassion, comfort and love but what the ... Read More

Invisible Disabilities Association

How many illnesses is this now?

In: Introduce Yourself

StarFire80

how-many-illnesses-is-this-now-4

200249

  • 6 Replies

Hi everyone, Ive never posted here but today seems to be the day I need some support. The Nurse called for UCSD to imform me they want more testing done a my Splenic Arterial Aneurysm. Wait....what? A who done what rysm? It is now 1.1 CM and I am to go back for another MRI so they can do a Gadavist contrast this time. I am 36 yrs old. I have been sick since 26. It has been the sickest ... Read More

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