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Invisible Disabilities Association

Invisible disabilities support group and discussion community

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Invisible Disabilities Association

To fight for opioid therapy, an Inspire member calls for action

Chronic-Inspire's journal

Chronic-Inspire

to-fight-for-opioid-therapy-an-inspire-member-calls-for-action

200249

By Radha_Inspire Digital Editor, Inspire “I think it is time to organize ourselves into a lobbying group somehow.” Constance Small (acorns02459) wrote that on October 19th on Inspire as part of a conversation about what happens when it becomes difficult or impossible to get opioids to treat chronic pain. “I would be very happy to join anyone who would like to organize a campaign to ... Read More

Invisible Disabilities Association

What’s in a number? The million member milestone

Brian's journal

Brian

whats-in-a-number-the-million-member-milestone

200249

Dear members, Last night, Inspire hit a milestone -- one million members. One thing that is clearer than ever is that the value of this community is created by you, every minute of every day. I often think that our job is to provide you a safe, supportive space, and then get out of your way. The words you write and the friendships you forge are things we could never create on our own ... Read More

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Invisible Disabilities Association

Maybe Someone Can Figure Me Out....

Fireflies_Are_Magic's journal

Fireflies_Are_Magic

maybe-someone-can-figure-me-out

200249

  • 133 Replies
  • Processing ...

I originally posted this in the UK forum by mistake and they suggested I post this here. I should add that in the UK forum, they felt it might be Behcet's disease. I don't think that covers all of it, but maybe some of it? Would love some feedback...I'm kinda desperate to figure this out. It just seems to be getting worse. Since 2008 I have been dealing with an unknown disease(s) or ... Read More

Invisible Disabilities Association

So Many Things; All Over the Place Post

Gamecockgirl97's journal

Gamecockgirl97

so-many-things-all-over-the-place-post

200249

Let's See; trying not to ramble, so many things going on. First, the thing always on my mind (or body rather). Good ole gastroparesis. It has me up right now, actually since 1 AM this morning in pain, Took a tramadol. I was hoping to make my nephew Brennon's game tomorrow at 10 AM, but I'm afraid I'm going to have to miss it. And he's so sweet. He's always asking mom how I'm doing ... Read More

Invisible Disabilities Association

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200249

  • 382 Replies
  • Processing ...

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

Invisible Disabilities Association

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

200249

  • 420 Replies
  • Processing ...

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

Invisible Disabilities Association

Is it Weird I'm Excited About My Psychiatrist Visit Tomorrow?

Gamecockgirl97's journal

Gamecockgirl97

is-it-weird-im-excited-about-my-psychiatrist-visit-tomorrow

200249

After the Paxil doing a number on my gastroparesis and having to go back on prozac, I am so looking forward to my appointment tomorrow to let my psychiatrist do what she wanted to do in the first place and raise the lamictal. She said she thought it was frustration and stress from all that was going on with being worried about the insurance having to change next year where it didn't ... Read More

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Invisible Disabilities Association

Right in the solar plexus

Sue_Perlative's journal

Sue_Perlative

right-in-the-solar-plexus

200249

Today, Mike and I sat eating lunch at a restaurant. At a booth across from our table, two nice ladies in their sixties finished up their lunch. As one of them stood, she put her hand on her hip and announced: "Ach, so many pops and crunches! Ow" I smiled at her and laughed as the woman dramatically hobbled for her audience for a moment. I really knew what she was going through, and ... Read More

Invisible Disabilities Association

Palmitoylethanolamide & Pain

In: Protocols & Therapies

missmaggs

palmitoylethanolamide-and-pain

200249

So I stumbled on a PubMed journal on palmitoylethanolamide a few months back when I was trying to figure out the most effective treatment for sciatica for my dad. After reading that first journal I found several more and just could not believe the claims. To do a brief summary, palmitoylethanolamide is highly effective at reducing various types of pain (nerve entrapment like sciatica ... Read More

Invisible Disabilities Association

Okay, Bad Idea to Switch from Prozac to Paxil, I was really wrong

Gamecockgirl97's journal

Gamecockgirl97

okay-bad-idea-to-switch-from-paxil-to-prozac-i-was-really-wrong

200249

Okay, so I've been on Paxil two days. Ugh! It has not worked at all with gastroparesis. I'm eating a ton, even for a normal person, and oh, my gosh, it is killing my gastroparesis. I feel like I'm walking around with 5 stomachs. I can't handle this. I'm going back on Prozac tomorrow and next week I'll just have to tell her when I tried to switch to Paxil the side effect of eating too ... Read More

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