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Invisible Disabilities Association

Invisible disabilities support group and discussion community

Invisible disabilities support group and discussion community

Inspire has 1,391,306 Members, 6,306 of whom are part of this community.

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Connect with others affected by invisible disabilities to get support and advice. Share stories of diagnosis, treatment, management, and more.


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Invisible Disabilities Association

A new collaboration, "Patient Perspectives," to amplify patients' voices

JohnNovack's journal

JohnNovack

a-new-collaboration-patient-perspectives-to-amplify-patients-voices

200249

From: John Novack, Inspire Dear members, We're excited to let you know that we just began a partnership, "Patient Perspectives," with the industry magazine Life Science Leader. A goal of the collaboration is help life science executives understand better the journeys of patients and caregivers facing significant illnesses. We invite you to read and share the new guest column, "Making ... Read More

Invisible Disabilities Association

To fight for opioid therapy, an Inspire member calls for action

Chronic-Inspire's journal

Chronic-Inspire

to-fight-for-opioid-therapy-an-inspire-member-calls-for-action

200249

By Radha_Inspire Digital Editor, Inspire “I think it is time to organize ourselves into a lobbying group somehow.” Constance Small (acorns02459) wrote that on October 19th on Inspire as part of a conversation about what happens when it becomes difficult or impossible to get opioids to treat chronic pain. “I would be very happy to join anyone who would like to organize a campaign to ... Read More

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Invisible Disabilities Association

Discrimation at the Pahrmacy

In: Member Updates

senecawoman

discrimation-at-the-pahrmacy

200249

Within the last two years, since all the hype about about so called "opiates" has been on the so called "News" (Fox News), I have encountered Major Corporate Pahramcies refusing to fill my prescriptions. Of course, the Pharmacists there don't just come out and say, "I won't fill it", they make up excuses as to why my script can't be filled. They say, "Oh, we don't have enough to fill ... Read More

Invisible Disabilities Association

Nervous about upcoming doctors appointment

D911Green's journal

D911Green

nervous-about-upcoming-doctors-appointment

200249

So in March I started a workman’s comp claim for carpal tunnel in both my hands. I’ve had the nerve conduction study and my right hand has severe damage, and my left has moderate damage. This next Wednesday I go in to see the specialist. I’m just very nervous about having to have surgery. It’s a given but I just nervous/anxious about going under the knife again. I know it will be sometime ... Read More

Invisible Disabilities Association

Announcement: an update on tags

Brian's journal

Brian

announcement-an-update-on-tags

200249

Members, This afternoon, we will remove all tags from Inspire until we can better address the concerns you have raised, and give you more control over this feature. I am sorry that we launched this feature too quickly, without enough member feedback, and I thank all of you who took the time to voice your opinions and give us helpful feedback. With this in mind, there are a few things ... Read More

Invisible Disabilities Association

Migraine

In: Member Updates

PBRADAM

migraine-11

200249

My never-ending migraine goes on in cycles. I wake up hurting, it gets a little better then worse and back again as each day progresses. I go to bed hurting most nights. I know I can't take the big guns medicine every day, so I try to get help from acetomenaphin and ibuprofen and benadryl carefully when I can. They sort of help. I am wary of rebound headaches from too many meds, plus ... Read More

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Invisible Disabilities Association

So Many Crazy Things

Gamecockgirl97's journal

Gamecockgirl97

so-many-crazy-things

200249

After I saw my psychiatrist my prescription for klonopin and prozac wasn't do for a while so I gave it to my mom to keep up with because I can't keep up with anything these days due to the stupid brain fog from this stupid disease. Well, she lost it, which she never does. So I have to call the doctor tomorrow and since it's a controlled substance, I'm going to have her talk to them ... Read More

Invisible Disabilities Association

Never ending Migraine

In: Member Updates

PBRADAM

never-ending-migraine

200249

This is day 2 of week 5 of the migraine that just comes back every day. I have stabs all over the left side of my head and back of my head, sometimes right, nausea, dizziness, no balance, stomach pain and I can't understand what I see sometimes, if that makes any sense. I just want it to end. I'm using a wheelchair most of the time ... Read More

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