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Invisible Disabilities Association

Invisible disabilities support group and discussion community

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Invisible Disabilities Association

Help w/ Fatigue--Cleveland Clinic

In: Protocols & Therapies

itg

help-w-fatigue-cleveland-clinic

200249

For those of you who have been to the Cleveland Clinic, did any of you go there w/ a mixed bag of autoimmune diseases (I also have an immune deficiency) that caused you debilitating fatigue that they were able to help you with? What I have that can be treated like Hashimoto's and depression are being treating, but most of my diseases are "gee, I hate that for you" diseases. The fatigue ... Read More

Invisible Disabilities Association

Any teens with EDS and POTS?

Unknowngirl's journal

Unknowngirl

any-teens-with-eds-and-pots

200249

Hi, I'm Emily and I'm 16 years old. I have POTS and EDS and i wondered if there were any other teens that would want to talk. The past few years have been very isolating and i have lost a lot of friends. I'm just looking for someone to talk to, even someone to chat about anything with. Thanks Emily x ... Read More

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Invisible Disabilities Association

I just joined

In: Introduce Yourself

brailleandasl

i-just-joined-4

200249

I have Convergence Insufficiency, dry eye disease, Auditory Processing Disorder, and Degenerative Disc Disease. I was unable to find my disorders in the list of disorders. I am an adult, not a child, and it has me as having vision and hearing disorders in children. I do not have amblyopia but have Convergence Insufficiency but amblyopia was the closest result I could find ... Read More

Invisible Disabilities Association

To fight for opioid therapy, an Inspire member calls for action

Chronic-Inspire's journal

Chronic-Inspire

to-fight-for-opioid-therapy-an-inspire-member-calls-for-action

200249

By Radha_Inspire Digital Editor, Inspire “I think it is time to organize ourselves into a lobbying group somehow.” Constance Small (acorns02459) wrote that on October 19th on Inspire as part of a conversation about what happens when it becomes difficult or impossible to get opioids to treat chronic pain. “I would be very happy to join anyone who would like to organize a campaign to ... Read More

Invisible Disabilities Association

A COMMON SENSE ALTERNATIVE TO THE AHCA

simplee's journal

simplee

a-common-sense-alternative-to-the-ahca

200249

There is an alternative to the American Health Care Act (AHCA) and the Affordable Care Act (ACA) that will provide health care for every American, while significantly lowering the cost of health insurance, covering all medical needs (even dental, vision, hearing, prescriptions, and medical devices) while raising the quality of care, and allowing every American to see whatever Dr. (or ... Read More

Invisible Disabilities Association

Inspire's New Search Engine

ErikInspire's journal

ErikInspire

inspires-new-search-engine

200249

  • 44 Replies
  • Processing ...

I’m very happy to share with you Inspire’s new search engine. We believe the recent improvements that we have made will make it much easier for you to find what you are looking for. The search box at the top of the page (the magnifying glass if you are on mobile) will allow you to search across All Communities by default, or narrow it down to a single community that you belong to ... Read More

Invisible Disabilities Association

When it seems like you're the slow one in a fast world

In: Relationships with Others

brailleandasl

when-it-seems-like-youre-the-slow-one-in-a-fast-world

200249

I can't get my eyes to track fast. My auditory processing is slow. My memory is slow. My DDD makes me a bit slow. I'm constantly butting heads with others because I just can't keep up in about a zillion ways, and I'm even having to have some people intervene to try to force others to slow down and stay slow just for me. I seem to be able to keep up but I just can't. If you're a snail ... Read More

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Invisible Disabilities Association

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

200249

  • 346 Replies
  • Processing ...

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

Invisible Disabilities Association

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200249

  • 733 Replies
  • Processing ...

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

Invisible Disabilities Association

On disability...need friendship and support!

In: Introduce Yourself

Constantbattle89

on-disability-need-friendship-and-support

200249

On disability for mental illness. Would like to correspond with others in my position. I am 31, on my 2nd year of 5 before i have to apply again. Needing tons of support, advice and friendship...please!!!! I feel all alone ... Read More

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