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Invisible Disabilities Association

Invisible disabilities support group and discussion community

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Invisible Disabilities Association

To fight for opioid therapy, an Inspire member calls for action

Chronic-Inspire's journal

Chronic-Inspire

to-fight-for-opioid-therapy-an-inspire-member-calls-for-action

200249

By Radha_Inspire Digital Editor, Inspire “I think it is time to organize ourselves into a lobbying group somehow.” Constance Small (acorns02459) wrote that on October 19th on Inspire as part of a conversation about what happens when it becomes difficult or impossible to get opioids to treat chronic pain. “I would be very happy to join anyone who would like to organize a campaign to ... Read More

Invisible Disabilities Association

New Feature - Inspire Reactions

ErikInspire's journal

ErikInspire

new-feature-inspire-reactions

200249

Earlier this year, we had a wonderful discussion with all of you about Facebook-style “Like” buttons on Inspire, and all of the positives and negatives that are associated with them. Through more than 200 replies we heard from many of you with widely differing opinions. The overwhelming consensus was that, while the idea of being able to give reactions to posts and comments could be ... Read More

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Invisible Disabilities Association

Newby

In: Introduce Yourself

SheltiesCathie

newby-21

200249

HI All!! My Name is Cathie. I have Ehlers Danlos Sydrome.....I literally suffered ALL my life until I was 47, I went undiagnosed. I am a text book case... I have Fibro, migraines, loose joints IBS, easy bruising, MVPS etc Etc. I get so tired of it. I'm tired of being tired and being in pain. I am a retired band director/ music instructor. I also enjoy scrapbooking, playing my guitar ... Read More

Invisible Disabilities Association

New column: Yes, chronic pain and joy can coexist

John2's journal

John2

new-column-yes-chronic-pain-and-joy-can-coexist

200249

From: John Novack, Communications Director, Inspire 11/21/16 Dear members, I am writing to share with you Katie Olmstead's "Yes, chronic pain and joy can coexist," a new guest column for the Stanford Medicine blog, in partnership with Inspire. You can read Katie's column at http://scopeblog.stanford.edu/2016/11/15 /yes-chronic-pain-and-joy-can-coexist. I need joy," she writes. "I need ... Read More

Invisible Disabilities Association

Hello, everyone!

Radha_Inspire's journal

Radha_Inspire

hello-everyone-96

200249

Hello everyone! My name is Radha and I am the digital editor at Inspire. We’d like to share some news about an editorial initiative that we hope will be of use to you. Your community is a space where you can express your thoughts, seek support, and share information with fellow members, and will, of course, continue to be. My goal is to take cues from your discussions, your questions ... Read More

Invisible Disabilities Association

Beyond the ACA: A Physicians’ Proposal for Single-Payer Health Care Refor

simplee's journal

simplee

beyond-the-aca-a-physicians-proposal-for-single-payer-health-care-reform

200249

* NOTE: PLEASE CLICK ON "OLDEST FIRST" TO VIEW THE POST OF EACH SECTION OF THE ABSTRACT, IN THE ORDER IN WHICH THEY APPEAR IN THE ABSTRACT. As the new Administration and Congress will once again be debating reform of our health care, it is very important that we look closely at an option that covers all of us, will give us the most coverage for the least cost, and the most freedom ... Read More

Invisible Disabilities Association

How do you make medical decisions?

Brian's journal

Brian

how-do-you-make-medical-decisions

200249

Dear members, As patients and caregivers, we have more sources of medical information available to us than ever before to help us make the best decisions possible for our health. Advice from our doctors is sometimes not the same as the information we learn from the experiences of our peers, and there are often other sources of information available as well. Some of our decisions feel ... Read More

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Invisible Disabilities Association

Cervical Dystonia, CFS, And A Mysterious Ailment?

In: Introduce Yourself

Campaigner8

cervical-dystonia-cfs-and-a-mysterious-ailment

200249

My first post on IDA. I have had spasmodic torticollis (cervical dystonia) since my pre-teens. Also diagnosed with chronic fatigue syndrome in my early twenties. At age 29, I was given Methadone for pain control brought on by the dystonia. I was soon switched to MS Contin (360 mg's per day) for chronic pain and oxycodone (120 mg's per day) for breakthrough pain. About a year ago I ... Read More

Invisible Disabilities Association

Voice-to-Text Typing and Other Recent Changes

ErikInspire's journal

ErikInspire

voice-to-text-typing-and-other-recent-changes

200249

  • 155 Replies )
  • Processing ...

You’ve probably noticed for the last few days the new little microphone that has appeared on the right side of text boxes when you write a new post or comment. That new feature is called Voice-to-Text. If you click on it, and if you have a microphone, you can speak your text instead of typing it and have it appear on the screen. If you have a phone or tablet, this should happen automatically ... Read More

Invisible Disabilities Association

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

200249

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

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