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Invisible Disabilities Association

Invisible disabilities support group and discussion community

Invisible disabilities support group and discussion community

Inspire has 1,367,440 Members, 6,252 of whom are part of this community.

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Connect with others affected by invisible disabilities to get support and advice. Share stories of diagnosis, treatment, management, and more.


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To fight for opioid therapy, an Inspire member calls for action

Chronic-Inspire's journal

Chronic-Inspire

to-fight-for-opioid-therapy-an-inspire-member-calls-for-action

By Radha_Inspire Digital Editor, Inspire “I think it is time to organize ourselves into a lobbying group somehow.” Constance Small (acorns02459) wrote that on October 19th on Inspire as part of a conversation about what happens when it becomes difficult or impossible to get opioids to treat chronic pain. “I would be very happy to join anyone who would like to organize a campaign to ... Read More

New column: "Grieving the Loss of Your Physician"

JohnNovack's journal

JohnNovack

new-column-grieving-the-loss-of-your-physician

From: John Novack, Inspire Dear members, I'm writing to share with you the latest in a series of “Experts by Experience” columns, as part of a collaboration between Inspire and Mayo Clinic. We invite you to read and share "Grieving the Loss of Your Physician," by Kari Ulrich. Ms. Ulrich, who lives with multiple disorders, including fibromuscular dysplasia (FMD) and Ehlers-Danlos Syndrome ... Read More

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A new collaboration, "Patient Perspectives," to amplify patients' voices

JohnNovack's journal

JohnNovack

a-new-collaboration-patient-perspectives-to-amplify-patients-voices

From: John Novack, Inspire Dear members, We're excited to let you know that we just began a partnership, "Patient Perspectives," with the industry magazine Life Science Leader. A goal of the collaboration is help life science executives understand better the journeys of patients and caregivers facing significant illnesses. We invite you to read and share the new guest column, "Making ... Read More

What’s the story of your rare disease diagnosis?

Brian's journal

Brian

whats-the-story-of-your-rare-disease-diagnosis-1

Dear members, Today, more than 200,000 Inspire members have a rare condition. You have made Inspire a place to share your experiences with others who understand what you’re going through and help others at the same time. Many of you have described how long it took for you to receive an accurate diagnosis for your rare condition, while some of you found your diagnosis quickly. If you’d ... Read More

Invisible Disabilities Association

Filed for SS Disability and letter to arrive today

In: Introduce Yourself

6915thESS

filed-for-ss-disability-and-letter-to-arrive-today

200249

It will probably be denied. :-( Diabetes mellitus Thrombocytopenia Secondary Polycythemia Anxiety disorder Hypersplenism Depressive Disorder Hypothyroidism Sleep Apnea Chronic Gastritis Costochondritis Vestibular Migraines Benign Prostatic Hyperplasia Borderline Gastroparesis Chronic Fatigue Moderate to prominent anterior spondylosis within the lower thoracic spine Moderate degenerative ... Read More

Invisible Disabilities Association

Never ending Migraine

In: Member Updates

PBRADAM

never-ending-migraine

200249

This is day 2 of week 5 of the migraine that just comes back every day. I have stabs all over the left side of my head and back of my head, sometimes right, nausea, dizziness, no balance, stomach pain and I can't understand what I see sometimes, if that makes any sense. I just want it to end. I'm using a wheelchair most of the time ... Read More

Invisible Disabilities Association

I'm Bewildered.

In: News, Research and Resources

ScottNormanRosenthal

im-bewildered

200249

I came in 17th in the video contest. I'd like to find out how many entries there were. And, as the video explains, I'm very marginal. No proper internet yet. I can't find the email that notified me. I'd like to contact whoever runs things ... Read More

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Gastroparesis, New Friends, and Other Things

Gamecockgirl97's journal

Gamecockgirl97

gastroparesis-new-friends-and-other-things

So I lost my old best friend, which I think I've mentioned on here before, and I was really depressed about it, but I've made two really good friends now. I have no idea why they are so easy to talk to but I can talk to them like I've know them all my life and I'm pretty sure same with them. We talk about everything. I definitely understand the expression when God closes a window he ... Read More

Invisible Disabilities Association

Chronic Pain for 37 Years

In: Introduce Yourself

EditorJ

chronic-pain-for-37-years

200249

I've been in pain since Jan. 2, 1981. I got hurt when I was 16, and haven't known a day without pain. It's wearing me down and I don't enjoy anything anymore. I've had 24 surgeries, 7 of which have been on my spine. I've had herniated discs and spine tumors. One of my tumors was the size of three large grapefruits and weighed 8 pounds. It took me two years to learn to walk again, and ... Read More

Readers responded to NYT antidepressant story with their own experiences

Chronic-Inspire's journal

Chronic-Inspire

readers-responded-to-nyt-antidepressant-story-with-their-own-experiences

Following an April 8 New York Times story about antidepressant withdrawal, readers were invited to submit their own stories of antidepressant use, discontinuation, and withdrawal. Over 8,800 submissions from readers of all ages resulted in a kind of oral history of modern antidepressants, beginning when there was strong stigma around mood disorders and medication was considered a stop-gap ... Read More

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