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Invisible Disabilities Association

Invisible disabilities support group and discussion community

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Invisible Disabilities Association

Week From Hell

Gamecockgirl97's journal

Gamecockgirl97

week-from-hell-1

200249

This week has been so horrible. My gastroparesis has been getting bad since I went a week without erythromycin and it's never recovered. I thought it was just that my body was that sick after not receiving it for a week. Thank goodness for the nausea patch or else I would have been in bed all day like before I had it. I still am in bed a lot of the day. I was able to go to the beach ... Read More

Invisible Disabilities Association

Maybe Someone Can Figure Me Out....

Fireflies_Are_Magic's journal

Fireflies_Are_Magic

maybe-someone-can-figure-me-out

200249

  • 90 Replies
  • Processing ...

I originally posted this in the UK forum by mistake and they suggested I post this here. I should add that in the UK forum, they felt it might be Behcet's disease. I don't think that covers all of it, but maybe some of it? Would love some feedback...I'm kinda desperate to figure this out. It just seems to be getting worse. Since 2008 I have been dealing with an unknown disease(s) or ... Read More

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Invisible Disabilities Association

Gene testing, precision medicine, and shared information

Brian's journal

Brian

gene-testing-precision-medicine-and-shared-information

200249

  • 305 Replies
  • Processing ...

Dear members, How should we be thinking about our genetic information when it comes to disease? It’s a question many of us are asking here on Inspire, sometimes very intensely, depending on the nature of the disease. The information we get from our genome can have a direct impact on so much, including how, or if, we can be treated for certain types of disease -- that is the nature ... Read More

Invisible Disabilities Association

Grief

pmathew's journal

pmathew

grief-16

200249

Thankful that the rock community taught me better how to grieve when chester bennington died. I wish my family was emotionally available so i could grieve my uncle who died the same way 6 years ago this week. I wish i could tell them i've had thoughts of killing myself before too ... Read More

Invisible Disabilities Association

To fight for opioid therapy, an Inspire member calls for action

Chronic-Inspire's journal

Chronic-Inspire

to-fight-for-opioid-therapy-an-inspire-member-calls-for-action

200249

  • 2,141 Replies
  • Processing ...

By Radha_Inspire Digital Editor, Inspire “I think it is time to organize ourselves into a lobbying group somehow.” Constance Small (acorns02459) wrote that on October 19th on Inspire as part of a conversation about what happens when it becomes difficult or impossible to get opioids to treat chronic pain. “I would be very happy to join anyone who would like to organize a campaign to ... Read More

Invisible Disabilities Association

Gentle Hugs 4 Paws

In: Relationships with Others

Ginnilee

gentle-hugs-4-paws

200249

I am working to build an organization that will help those of us with chronic pain and mental illness to adopt an emotional support animal; Gentle Hugs 4 Paws would be paying the adoption fee, the first vet visit & a gift card to a pet supply store so they can get everything they need to start their new life together. I've been trying to run a fundraiser via Go Fund Me, but it's slow ... Read More

Invisible Disabilities Association

The evidence for dealing with chronic low back pain

Chronic-Inspire's journal

Chronic-Inspire

the-evidence-for-dealing-with-chronic-low-back-pain

200249

By Radha_Inspire Digital Editor, Inspire A recent article at Vox examined over 80 studies – mostly reviews summarizing many other studies – in order to see what treatments really work to treat low back pain. Low back pain is one of the most common reasons people visit physicians as well as one of the most common things to negatively affect peoples’ work – and this is true globally ... Read More

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Invisible Disabilities Association

Fibromyalgia jokes

Ginnilee's journal

Ginnilee

fibromyalgia-jokes

200249

I write fibromyalgia jokes in an effort to keep going instead of collapsing, so here are 3 of them: How many fibro sufferersdoes it take to get through one day? 13- 12 for 2 hours each & 1 to wear all of the nesccesary medical equipment! How many fibro sufferers ďoes it take to clean a house? 50 but then you can't find the carpet! What's a fibro sufferer's favorite breakfast cereal ... Read More

Invisible Disabilities Association

Too Much Hate in the World

Gamecockgirl97's journal

Gamecockgirl97

too-much-hate-in-the-world

200249

My post got rambling and long last night so I'm sharing some more thoughts while my mom sleeps. We have to travel between 2 1/2 and 3 hours to get to Wake Forest so we spent the night at this hotel that partners with Wake Forest and gives a discount if you stay there because of medical appointments. The people at the desk are always so sweet. It's a really nice place. This post on ... Read More

Invisible Disabilities Association

Ask the Expert: Autoimmune disease researcher Dr. Meghan Free

Chronic-Inspire's journal

Chronic-Inspire

ask-the-expert-autoimmune-disease-researcher-dr-meghan-free

200249

  • 131 Replies
  • Processing ...

Meghan Free, Ph.D., is a basic science researcher who studies autoimmune disease – trying to understand how and why people’s immune systems react to themselves. Dr. Free will be available from Monday, July 24 to Friday, July 28 to answer questions about autoimmune diseases and help explore some of the science behind them. If you would like to ask her a question, we invite you to do ... Read More

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