Active journals

APRIL SARCOIDOSIS AWARENESS MONTH

MZBIGGREDD
  • By MZBIGGREDD · Posted yesterday at 8:15 pm
  • 0 replies
  • April is MAKE A DIFFERENCE Sarcoidosis Awareness Month ... Sarcoidosis (pronounced SAR-COY-DOE-SIS) Many people have never heard of the disease, let alone the treatments and causes. Sarcoidosis is an ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

BE THE HERO IN YOUR OWN LIFE STORY

MZBIGGREDD
  • By MZBIGGREDD · New reply April 15, 2014
  • 2 replies
  • The responsibility for saving us and leading us to our best lives, is our responsibility and our responsibility alone. The person with the most power over our lives will always be the person looking back ...

FIND YOUR VOICE TO FIGHT FOR YOUR LIFE

MZBIGGREDD
  • By MZBIGGREDD · Posted April 8, 2014
  • 0 replies
  • (Yes this message is long bit so essential to all those out there fighting to save their own lives. May these words give you the strength and the courage you are looking for to Stand Up, Suit Up and FIGHT ...

Year of Gratitude- 2014

amarettosour
  • By amarettosour · New reply April 8, 2014
  • 677 replies
  • Happy New Years To All Inspire Members! I decided to start a journal for gratitude for the new year in 2013. 2013 is behind us and its time to move forward. This journal has transformed my life in 2013 ...

We Are At War

MZBIGGREDD
  • By MZBIGGREDD · New reply April 3, 2014
  • 3 replies
  • You never know how strong you are until being strong is the only choice you have. What defines us is how well we rise after falling.... everybody falls, everyone at one time or another has beaten by life ...

Walking By Faith

MZBIGGREDD
  • By MZBIGGREDD · New reply April 3, 2014
  • 2 replies
  • Being diagnosed with Pulmonary Sarcoidosis along with a few other things has taught me truly what it to Walk by Faith and Not By Sight. We all need to be encouraged when it comes to stepping out in faith ...

Leg or Foot Massage Devices???

Duvie
  • By Duvie · New reply March 23, 2014
  • 57 replies
  • Wondering if anyone uses a massage device and how well it works. Jo and I sometimes suffer with our legs wanting to cramp up. Jo even has problems with her left arm occasionally. If anyone can give us ...

LET YOUR TEST BE YOUR TESTIMONY TO HELP SAVE ANOTHER

MZBIGGREDD
  • By MZBIGGREDD · Posted March 20, 2014
  • 0 replies
  • There is NO cure for Sarcoidosis, but giving into Pain Anger Fear Frustration is Not An Option! As we ALL shall be Fighters to the end in this Battle against Sarcoidosis! As we continue to grow in numbers ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Remedy 4 Severe Migraine & Nausea

MZBIGGREDD
  • By MZBIGGREDD · New reply March 16, 2014
  • 16 replies
  • Today I woke up with the the most excruciating migraine. WHich for me is one of my symptoms of Sarcoidosis. I could barely lift my head off the pillow or hold my head up. I was seriously nauseated, throwing ...

Sources sought for article about co-insurance to pay for specialty drugs

John2
  • By John2 · Posted March 13, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 3/13/14 Dear members A healthcare journalist with the Associated Press (AP) is seeking more people to interview for an article she is researching on ...

"Let symptoms–not age–influence treatment"

John2
  • By John2 · Posted March 11, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 3/11/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "Let ...

Heart

banja72
  • By banja72 · New reply March 3, 2014
  • 1 reply
  • To help with a weak heart Green will help again you should confront your Doctor ...

Reporter seeking to interview someone with chemo-related hearing loss

John2
  • By John2 · Posted March 3, 2014
  • 0 replies
  • From: John Novack, Communications Director, Inspire 3/3/14 Dear members A healthcare journalist with the publication Chemical & Engineering News (C&EN) contacted us seeking to interview someone for an ...

LOVE IS A VERB

MZBIGGREDD
  • By MZBIGGREDD · New reply March 1, 2014
  • 2 replies
  • We ALL need to feel LOVE everyday! Just a reminder for those who sometime forget that "LOVE IS A VERB" and Actions speaks louder than Words any day. Love is something that should ALWAYS be shown more ...

Snow in Louisiana

stitcher
  • By stitcher · New reply March 1, 2014
  • 10 replies
  • It's snowing here (or was yesterday/last night) here in south Louisiana,, very unusual especially in my area,, New Orleans/Baton Rouge, and very cold temps,, so ready for spring,, hope everyone is well ...

BLESSED

MZBIGGREDD
  • By MZBIGGREDD · New reply February 27, 2014
  • 3 replies
  • Walk with your head held high ... not in Arrogance but in Confidence, Excellence and Integrity. Where ever you go , just like cream you will rise too the top! Everyday ... Act like you're Blessed! Walk ...

Things you can do

Discussion topics

Community leaders