New posts

UP date on my progress

rayj0054
  • By rayj0054 · Posted yesterday at 4:16 pm
  • Discussion in Treatment · 1 reply
  • Hey everyone haven't posted anything about me in a while but now I need advise. I had a pet scan last month that showed a couple spots on lungs but no activity there with light activity at right bot ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted yesterday at 3:22 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Extreme fatigue

Preddick
  • By Preddick · Posted yesterday at 1:23 pm
  • Discussion in Living with head and neck cancer · 3 replies
  • I finished chemo and radiation last October. For the last 2 months I have had extreme fatigue and no energy! I'm eating a regular diet. Does anyone have any suggestions such as energy drinks or a certain ...

magic mouthwash and taste

rickymac
  • By rickymac · Posted yesterday at 2:27 am
  • Discussion in Treatment · 2 replies
  • I have been using this mouthwash about a week and notice that my taste of food has changed for the bad. without mouthwash food taste better, but throat hurts when swallowing. What liquid pain meds help ...

Dry Mouth

Charlene72
  • By Charlene72 · Posted April 14, 2014
  • Discussion in Living with head and neck cancer · 0 replies
  • I just wanted to share a tip that is helpful if anyone doesn't already know about it. For dry mouth, especially at night Xylimelts have been a lifesaver for me. Its little disks that adhere to your back ...

Caring for lymphedema

dribrook
  • By dribrook · Posted April 13, 2014
  • Journal · 2 replies
  • Lymphedema, is a common complication of radiation and surgery for head and neck cancer as well as breast cancer. It is an abnormal accumulation of protein-rich fluid in the space between cells which causes ...

Hard Lump Side of Neck :(

Anna28
  • By Anna28 · Posted April 12, 2014
  • Discussion in Awareness and advocacy · 8 replies
  • Hi All, I am not new to inspire but I am new to 'Head and Neck Cancer Alliance' purely due to my new concerns. Over a year ago I felt a small lump on the lower left side of my neck (about 5cm below ear ...

Has Anyone Experienced Cannabidoil?

jbesk
  • By jbesk · Posted April 11, 2014
  • Discussion in Living with head and neck cancer · 8 replies
  • Has anyone tried cannabidoil for treating any part of their cancer. Do you know anyone who has used it? I've been reading some about it, but I don't know much ...

Having a problem with my PEG tube and need suggestions

foxriverguy
  • By foxriverguy · Posted April 10, 2014
  • Discussion in Treatment · 11 replies
  • We were at the doc last week and learned how to tighten the PEG tube against the stomach wall but lately I have been getting small amounts of food/acid leaking around the point where the tube enters the ...

Suggstions for all Head and Neck teams.

pippa03
  • By pippa03 · Posted April 10, 2014
  • Discussion in Taking charge: How to be a proactive patient · 4 replies
  • Thank you so much everyone for your responses to my request for suggestions on how to make our team better. My hospital, Henry Ford in Detroit, Mi., is where my husband was treated and where I work. Our ...

Alcohol Consumption After Successful Treatment

Jimh19
  • By Jimh19 · Posted April 10, 2014
  • Discussion in Survivor stories · 17 replies
  • Completed treatment for Stage IV HPV+ BOT in September, 2013. PET scan negative. My MO said its fine to drink beer; surgeon said "it's up to you". I see my RO next week. In the meantime, I consumep about ...

What is the survival rate for us?

foxriverguy
  • By foxriverguy · Posted April 10, 2014
  • Discussion in Treatment · 8 replies
  • I have SCC-BOT with two lymph nodes affected. My ENT said I have an 80% chance of beating this. Does that sound overly optimistic to you ...

Mouth Sores

Providenceguyri
  • By Providenceguyri · Posted April 9, 2014
  • Discussion in Living with head and neck cancer · 9 replies
  • Started Cisplatin and 5FU 2 weeks ago to treat tumors in my lungs that spread from my tonsil cancer. The mouth sores, lack of taste and metal taste is making it almost impossible to eat. Do the mouth ...

PLEASE PROOF READ YOUR REPLY BEFORE SENDING

foxriverguy
  • By foxriverguy · Posted April 9, 2014
  • Discussion in Treatment · 22 replies
  • If we would all take a few minutes to re-read our message or reply before we hit the POST button, we would be doing all of us a big service. So many times I have to re-read something two or three times ...

Any info on Cannabidoil?

jbesk
  • By jbesk · Posted April 8, 2014
  • Journal · 0 replies
  • Does anyone know if cannabidoil drived from hemp helps cancer patients? Has anyone tried it or do you know someone ...

Discharge from hospital...now what????

pippa03
  • By pippa03 · Posted April 8, 2014
  • Discussion in Taking charge: How to be a proactive patient · 15 replies
  • I have been invited to discuss "The caregiver experience" with the ENT interns, residents and staff at my hospital. A little background: I am an RN at a very large hospital in Detroit, Michigan. I recently ...

Prone to aspiration? Read on....

foxriverguy
  • By foxriverguy · Posted April 8, 2014
  • Discussion in Treatment · 2 replies
  • I have been on the PEG tube since February 16 and have avoided thin liquids. I do use a thickening agent in them. Yesterday I complained to my speech therapist that I miss drinking water as it helps ease ...

going to get better

BusdriverSam
  • By BusdriverSam · Posted April 8, 2014
  • Journal · 2 replies
  • So the picture on my post is of my mom, daughter and my daddy. This is two years ago. Before the cancer. I hope come next year in 2015 both my parent will be at my younger child graduation. If thing keep ...

Patchwork Peddlers Coupon

Dullnborin
  • By Dullnborin · Posted April 7, 2014
  • Discussion in Living with head and neck cancer · 0 replies
  • Patchwork Peddlers Coupon 10% Off COUPON Ends 4/13/2014!! Code: Brianna All, When Hubby had his PEG tube, I ordered these washable cotton pads instead of using gauze. I got a coupon online today and thought ...

Trying to improve the flavor of beveredges

foxriverguy
  • By foxriverguy · Posted April 6, 2014
  • Discussion in Living with head and neck cancer · 11 replies
  • We are trying to improve the flavor of Boost, Ensure and the breakfast drinks made by Carnation and Quaker Oats. What have you all done in this regard. Please be specific and name brand names of products ...

Things you can do

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