New posts

Proper way to administer ventilation to neck breathers

dribrook
  • By dribrook · Posted yesterday at 12:06 pm
  • Journal · 1 reply
  • Neck breathers are at a high risk of getting inadequate therapy when seeking urgent medical care or anaesthesia. I experienced this when I needed urgent care when I was administered oxygen to my nose ...

NEED ADVISE

hohum
  • By hohum · Posted yesterday at 8:49 am
  • Discussion in Living with head and neck cancer · 5 replies
  • My husband finished his chemo and radiation treatments for HNCA in January. He eats regular food but since his taste buds have been drastically affected his appetite is not great. I have noticed that ...

The mental warfare of cancer..

JBSPark2014
  • By JBSPark2014 · Posted yesterday at 12:53 am
  • Discussion in Family and friends · 9 replies
  • My husband has stage III squamous cell cancer of his vellecula (base of tongue) with lymph node involvement. We are half way through a 6 week, 3 day treatment regimen. He received carboplatin chemotherapy ...

82 days

pippa03
  • By pippa03 · Posted April 20, 2014
  • Journal · 8 replies
  • It's been 82 days since my love passed away. 82 days and everyone thinks I should be "OK". Move on, go back to work, live life, my "new normal" (God how I hate that cliche). Need a mental health evaluation ...

genome testing

jeklela
  • By jeklela · Posted April 20, 2014
  • Discussion in Treatment · 1 reply
  • We just came back from a visit to Johns Hopkins, rated number one for head and neck cancer in the country. I see why the ratings are real, from a thoroughness point of view. to remind you, my husband ...

I'm too young to retire...

fullpin
  • By fullpin · Posted April 19, 2014
  • Discussion in Living with head and neck cancer · 14 replies
  • Hello Everyone. I just discovered this forum and would like to say thankyou to whomever created it. I'm 49 yrs old and 10 months out of treatment for base of tongue and tonsil cancer that had also spread ...

need information please

BusdriverSam
  • By BusdriverSam · Posted April 19, 2014
  • Journal · 13 replies
  • So dad got his tube put in. We are up to the 5 cans a day. And more than enough water a day. But when you only eat by tube. How often is a bm? Sound gross but it has been awhile and the tube is the only ...

PTSD

Jchhm
  • By Jchhm · Posted April 19, 2014
  • Discussion in Living with head and neck cancer · 3 replies
  • Hi, I have been aflicted with PTSD since about five years after my radiation treatment for HNC. Which has been 4 years now. I have high anxiety and find it extremely hard to concentrate on my profession ...

Is there an on-line support community for lung cancer patients?

foxriverguy
  • By foxriverguy · Posted April 18, 2014
  • Discussion in Treatment · 4 replies
  • A close and dear friend has just been diagnosed with lung cancer. I am hoping someone here knows of a site as good as this one for lung cancer patients. Thank you. George ...

Lost movement to right side of face

Samhazit
  • By Samhazit · Posted April 18, 2014
  • Discussion in Living with head and neck cancer · 0 replies
  • Hi ,I've went thru chemo and radiation for toncil cancer hpv primary right toncil,after treatment had pet scan ,oncologist said spread to chest lymphs no longer can operate need to to aggressive chemo.well ...

My husband has throat cancer.

deb1125wa
  • By deb1125wa · Posted April 17, 2014
  • Discussion in Treatment · 18 replies
  • My husband was recently diagnosed with tonsil, tongue, and lymph nodes on his neck cancer aka throat cancer. He is now getting radiation daily and chemo weekly. I go to all of his appointments with him ...

Tongue Cancer questions

Attootsie
  • By Attootsie · Posted April 17, 2014
  • Discussion in Newly diagnosed · 2 replies
  • Hi everyone, my name is Lorrie or better known as Aunttootsie001@aol.com I am a survivor of Lung cancer but recently found out my oldest son has Tongue Cancer. Had 2/3rd of the base of his Tongue removed ...

Salivary duct carcinoma

LeonidasS
  • By LeonidasS · Posted April 17, 2014
  • Discussion in Newly diagnosed · 0 replies
  • Hello everybody. I would highly appreciate ANY kind of info regarding my type of cancer. Here is my short description. In 1981 at the age of 12 I was diagnosed with lymphoma in the left side of the neck ...

Cramping and painful spasm's in neck post rad

DCSlide
  • By DCSlide · Posted April 17, 2014
  • Discussion in Living with head and neck cancer · 3 replies
  • I am 14 months out from 35 rad treatment's and 4 rounds of chemo for nasalpharngeal stage 2b SCC. I am having painful spasm's/cramping under my jaw line in my neck. Anyone else experience this? If so ...

Surprised to get thrush this late

foxriverguy
  • By foxriverguy · Posted April 16, 2014
  • Discussion in Treatment · 20 replies
  • Two and a half months after chemo, 7 weeks after radiation and now I get thrush. Is that from the gift that keeps on giving? And then my doctor's office failed to call in the script. So I will try again ...

Results After Thyroid Removal

Anna28
  • By Anna28 · Posted April 16, 2014
  • Discussion in Early detection and testing · 2 replies
  • Hi All, I had my thyroid surgery to remove half on the 4/4/14 as 2 fine needle biopsy's could not rule out cancer. I went to the surgeon today to find out the news after testing and he said that they ...

UP date on my progress

rayj0054
  • By rayj0054 · Posted April 15, 2014
  • Discussion in Treatment · 5 replies
  • Hey everyone haven't posted anything about me in a while but now I need advise. I had a pet scan last month that showed a couple spots on lungs but no activity there with light activity at right bot ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

Extreme fatigue

Preddick
  • By Preddick · Posted April 15, 2014
  • Discussion in Living with head and neck cancer · 16 replies
  • I finished chemo and radiation last October. For the last 2 months I have had extreme fatigue and no energy! I'm eating a regular diet. Does anyone have any suggestions such as energy drinks or a certain ...

magic mouthwash and taste

rickymac
  • By rickymac · Posted April 15, 2014
  • Discussion in Treatment · 8 replies
  • I have been using this mouthwash about a week and notice that my taste of food has changed for the bad. without mouthwash food taste better, but throat hurts when swallowing. What liquid pain meds help ...

Things you can do

Support HNCA

Help the Head and Neck Cancer Alliance reach its goals and support people like yourself by making a donation today.

Donate to the Head and Neck Cancer Alliance

Discussion topics

More from HNCA

Community leaders