Journals

In need of prayers

Helivesinme
  • By Helivesinme · Posted December 17, 2013
  • 39 replies
  • This morning I was told the found a spot on moms liver. So they are running more test. Really not sure how much more I can really take. Every since feel in dec 2011 nothing but bad news has came my way ...

Muscadine Grape Seed

FernM
  • By FernM · Posted December 17, 2013
  • 5 replies
  • HI; Has anyone tried Muscadine Grape Seed for inflammation, if so what brand & mg? Did you find it helped, if so by what %? Thanks ...

Holidays Past...On The Fifth Day of Christmas

Nelleg40
  • By Nelleg40 · Posted December 16, 2013
  • 3 replies
  • Hey Guys and Dolls!! Sooo, I'm in the middle of a Fibro flare. Which as we know aggravates the Sclero. I'm such a complex piece of work! Wrists are hurting but I press on, lol, all in the name of LEVITY ...

Holidays Past...On The Fourth Day of Christmas

Nelleg40
  • By Nelleg40 · Posted December 16, 2013
  • 2 replies
  • Hey Guys and Dolls!! Whoo, I spent the day at my mom's house while the boys were all doing their own things. My mother and I talked about how I would be when they all left. I CLAIM that I will be fine ...

Holidays Past...On The Third Day of Christmas

Nelleg40
  • By Nelleg40 · Posted December 14, 2013
  • 3 replies
  • Hey Guys and Dolls!! I just wanted to take the time, to SINCERELY thank you all for standing beside me, up for me (Makinit) and proving that what I do DOES matter. In the bodies that we were all given ...

Holidays Past...On The Second Day of Christmas

Nelleg40
  • By Nelleg40 · Posted December 13, 2013
  • 10 replies
  • Hey Guys and Dolls!! I'm sloooow today, I apologize. Let's just get right into it shall we? On the SECOND day of Christmas, my true love gave to me... 2 Hunter Wellies And a portrait of my boys and me ...

How is every one holding up

Helivesinme
  • By Helivesinme · Posted December 13, 2013
  • 19 replies
  • ITs been below zero here in Indiana. Caught a cold praying it doesnt get worst. Was approved for Social Security also so now is the waiting game to see when the 1st payment comes in. What are you plans ...

Holidays Past...On The First Day of Christmas

Nelleg40
  • By Nelleg40 · Posted December 12, 2013
  • 4 replies
  • Hey Guys and Dolls!! Today I am having difficulties with my esophagus but I'm still in a festive mood. We are going to re-mix the song The Twelve Days of Christmas. On your individual post you say what ...

You Can HOPE or You Can HELP

MZBIGGREDD
  • By MZBIGGREDD · Posted December 12, 2013
  • 2 replies
  • What happens when because of Sarcoidosis and many of it's additional symptoms, the pain is so indescribable and you are at a loss as to what to do...crazy thoughts enter into your head as you would do ...

Nasty November Better December?

Rkymtnhy
  • By Rkymtnhy · Posted December 11, 2013
  • 2 replies
  • On November 1st, I went into the ER, I had severe pain on the left side of my rib cage. When I got there my oxygen was at 83%. They immediately took xrays, I was not running a fever, coughing etc. They ...

Holidays Past...Special Santa Traditions

Nelleg40
  • By Nelleg40 · Posted December 11, 2013
  • 4 replies
  • Hey Guys and Dolls!! I can remember being a little girl watching the wall and hoping, waiting to see Santa cross the moon. Sleeping was almost impossible when you were a kid waiting for Santa. My Mommy ...

Oh Happy Day

marshie
  • By marshie · Posted December 11, 2013
  • 24 replies
  • Well today I took Brian my husband for his 5year tests for floor of the mouth and 18 nodes cancer and he past with flying colours no cancer,no lumps and no hot spots.We are all thrilled to bits I did ...

Holidays Past...Family Dinner Traditions

Nelleg40
  • By Nelleg40 · Posted December 10, 2013
  • 5 replies
  • Hey Guys and Dolls!! When I was growing up I was part of this HUGE family celebration. Generations would gather at my grandma -Evie's mommy's house. She was called that because my Aunt Evie-her youngest ...

Holidays Past...Worst Gift EVER!!

Nelleg40
  • By Nelleg40 · Posted December 9, 2013
  • 44 replies
  • Hey Guys and Dolls!!! I'm sure we are all grateful for gifts that we receive from others. I want to know what is the WORST gift you've ever gotten and what did you do with it? Mine would have to be this ...

Savella

MamaCrawford
  • By MamaCrawford · Posted December 8, 2013
  • 7 replies
  • Hello Again;/ My pulmonologist started me on a titration pack of Savella. Will any of you share your experiences with this drug? MamaCrawford ...

Weight Vest

FernM
  • By FernM · Posted December 8, 2013
  • 2 replies
  • HI; Has anyone tried the New Weight Vest for women by Ironwear, if so what did you think of it? I am thinking of buying one but was not sure which one would be the best. Thanks ...

We Matter Too...

MZBIGGREDD
  • By MZBIGGREDD · Posted December 8, 2013
  • 10 replies
  • I am not famous and I am not rich (not monetarily wise) but I refuse to not stand by, not participating and not becoming an the best advocate I can be and fight for my life and the lives of so many others ...

TOGETHER we stand, TOGETHER we fall, TOGETHER we win, and winners take ALL!

MZBIGGREDD
  • By MZBIGGREDD · Posted December 7, 2013
  • 0 replies
  • Those of us who live with Sarcoidosis is in the Fight of our lives. Although individually we may be one person but TOGETHER We can Make A DIfference to Save Our Lives by letting all of OUR voices be heard ...

Holidays Past...Ugliest sweater

Nelleg40
  • By Nelleg40 · Posted December 7, 2013
  • 11 replies
  • Hey Guys and Dolls!! I'm a little slower today but I think that we ALL have an ugly sweater somewhere in our past. It doesn't even have to be holiday themed! I had this sweater in high school that I got ...

Why Not Palliative Care?

Zyp
  • By Zyp · Posted December 6, 2013
  • 24 replies
  • I recently saw a couple of articles on palliative care and it struck me that it's just the kind of service/care chronic pain patients (or anyone with a chronic illness) needs. When Palliative Care Is ...

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