My 8 year old son has been in the hospital for 5 months now. Within 5 days after being admitted he stopped talking, walking, and lost all basic functions then ended up in ICU because he hadn't slept in 5 days and was having seizures. He was in ICU for a month and had unnecessary surgery to remove a tumor that was not there. The treatments he has had are Ivig, steroids, rituximab (6 doses), 22 rounds and counting of plasmaphersis, 2 doses of cyclophosphimide (2 more tentatively). He is finally "awake" and relearning everything, however, still not talking. I haven't heard his voice in 5months :0( He still has a very long road ahead of him. I'm scared. I don't know what to expect anymore and I don't know what to do. I remain by his side and have quit my job to do so. I don't know how much longer we will be in the hospital but everyday is a new day.