Pain management

How do you manage your EDS related pain? Share information and support here.


Memory foam

  • By bendy123 · New reply November 26, 2013
  • 15 replies
  • I'm looking at getting my DD a memory foam mattress topper. She has EDS-hypermobility, fibromyalgia and juvenile arthritis. Any suggestions? There are several different thicknesses and densities. She ...

Any info will help. time sensitve

  • By dc78 · New reply November 25, 2013
  • 8 replies
  • I am have a problem, my doctor gives me urine drug test and my meds are not showing up. I'm taking them. I also have told him I seems like my meds don't last long at all. More or less he's going to stop ...

Sharp pain in the left side of my head!

  • By angelXofXanimals · New reply November 22, 2013
  • 4 replies
  • Since yesterday, i've been having severe pain in/on the left side of my head. The pain last about 3-5 seconds then go away. It's not an ear infection . But i did get my hair done friday and she was stratching ...

Seeking a Kansas City Doctor

  • By telephonoscope · New reply November 8, 2013
  • 1 reply
  • Shortly after getting my diagnoses I magically found a physiatrist that felt that it was important for my pain to be lessoned and for me to be able to have a life. She wrote me a script for one vicodin ...

pain under right breast bone... sharp pain in ribcage

  • By angelXofXanimals · New reply November 8, 2013
  • 13 replies
  • Hey! It's been awhile. I've been having this pain in my right ribcage since this morning. It's very sharp and it usually happen everytime i breathe then it goes away for three secs , then come back. What ...

Dr. Nancy Sajben in San Diego

  • By Fallbrook · New reply November 3, 2013
  • 6 replies
  • Hi all...ever hear of Dr. Nancy Sajben? Any info would be great we were referred to her by our neurologist and she has some new approaches to pain management....thank you ...

Anesthesia and surgery options?

  • By lynilulu · New reply October 31, 2013
  • 13 replies
  • Hi! I'm new to the forum and looking for some insight. So, like many with EDS (I have type 3, and I've had POTS since I was born.) anesthetics and anesthesia don't seem to work so great on me. So far ...

FDA Proposes tighter restrictions on opiods

  • By AJP_01 · New reply October 25, 2013
  • 2 replies
  • urging-a-tighter-rein-on-painkillers.htm l The Foods and Drug Administration on Thursday suggested tighter controls on how physicians prescribe the most generally ...

Pregnant on pain killers for EDS trying to cut back but can't get off....

  • By leahfunde · New reply October 25, 2013
  • 5 replies
  • I am 31 I've been diagnosed with EDS hyper-mobility type and have been on pain medication for the past 14 years minus the 9 months I was pregnant with my first son which was 9 years ago but now my pain ...

Depo injection

  • By traceeds · New reply October 11, 2013
  • 8 replies
  • Wondering if anyone can help I have recently been diagnosed have a few types of eds and waiting more tests I have classic stretch skin etc hypermobility and transparent skin have problems with my gums ...

New study finds opoids effective over time

  • By saintremy · New reply October 5, 2013
  • 3 replies
  • This meta-analysis study was published less than a month ago. While ethical concerns prevented the investigators from studying beyond the three month period, there is some data available on longer-term ...

Acupuncture vs. Dry needling

  • By LindaLibelula · New reply September 30, 2013
  • 36 replies
  • I have EDS type III with a lot of muscle pain/spasms that are actually putting more strain on my joints. Has anyone had success with acupuncture or dry needling for muscle relaxation? Also, what is the ...

Need help !!! looking for Dr for EDS/Pots live in iowa

  • By mom2potskids · New reply September 29, 2013
  • 8 replies
  • I have Have 4 children with EDS and pots, We one we had pots, the eds is new dx, although we thought it for a while now, my 14 year old is very sick, mostly home bound, went from being 4.0 student and ...

CVS cuts off docs who prescribe too many narcotics

  • By Zyp · New reply September 25, 2013
  • 11 replies
  • (edited - previous link too long) I've been researching EDS and Chronic Pain for years and I keep track of it all by posting it to my EDSinfo blog. I look at hundreds of web articles ...

PenAgain Refill Finally Available!

  • By PenAgainSami · New reply September 12, 2013
  • 1 reply
  • Hello everyone, For over a year now thousands of people with joint disorders have been contacting us and patiently waiting for our company to produce the refills for their ErgoSleek Pens. We finally have ...


  • By AnastasiaBlue · Posted September 7, 2013
  • 0 replies
  • Has anyone had any experience with Vemma supplements? I've read that it has anti-inflammatory properties as well as all kinds of vitamins and minerals that I know I am not getting in my poor diet. I can't ...

I'm having a spinal cord stimulator implanted

  • By lovleelife · New reply September 4, 2013
  • 8 replies
  • In August I'm having the spinal cord stimulator implanted,any body have info about this ...

Infuriating New York Times article on pain/opiates/pain management

  • By Ashbet · New reply September 4, 2013
  • 21 replies
  • /the-problem-with-pain-pills/ Here's a link to my commentary on the subject: 17685/posts/XYxui3T6b5e I also stayed up ...

What was wrong with my arm?

  • By angelXofXanimals · New reply August 24, 2013
  • 2 replies
  • On tuesday, I got two shots in my left arm and i didn't sleep on my left side for a few days because of the pain. But last night, i decided to sleep on my left side and there was no pain. When i woke ...

Steroid - solu-medrol - pain

  • By DebbyV · Posted August 21, 2013
  • 0 replies
  • I wondered if anyone else has had an issue with an IV steroid called Solu-medrol. When my daughter went to the ER for pain relief from a migraine, they gave her an IV dose of 125mg of this steroid. THis ...

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