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Snail venom may lead to potent new pain medication!

  • By cypipes · Posted March 18, 2014
  • In Pain management · 5 replies
  • -venom-may-lead-potent-new-pain-medicati on#.Uyi-95K9KK3 So you don't have to click: Snail venom may lead to potent new pain medication 03/17/2014 | Sydney Morning ...

EDS Awareness Speaker Series — March 19, 2014 (TOMORROW)

  • By ladybugsew · Posted March 18, 2014
  • In EDS awareness · 0 replies
  • WHAT: “EDS Doctor Speaker Series” – a webinar program hosted by WHEN: Wednesday, March 19, 2014 at 7:30 – 9:00 PM Eastern Time TOPIC: Sacroiliac Joint Dysfunction with People diagnosed ...

EDS doctor in Michigan??? HELP

  • By Cmoceri · Posted March 18, 2014
  • In Hypermobile EDS (Type III) · 34 replies
  • After years of trying to get each "specialist" on the same page (without success-even within the same fricking office!) I am now in need of an EDS doctor in Michigan, preferably in Macomb County. Or ANY ...

Need a Dr. to Diagnose ED

  • By methos · Posted March 18, 2014
  • In EDS awareness · 1 reply
  • I need a Doctor in western Massachusetts that can diagnose (not treat) ehlers danlos syndrome ...

Plantar fibromatosis

  • By Leigh1981 · Posted March 17, 2014
  • In Hypermobile EDS (Type III) · 7 replies
  • Hello! I recently had my feet reconstructed since my arches collapsed due to EDS. My right foot went well, but when I started PT I noticed big hard painful lumps in my arch of my left foot. They are benign ...

specialists in San Francisco Bay Area

  • By barband44 · Posted March 17, 2014
  • In Hypermobile EDS (Type III) · 19 replies
  • Does anyone know of specialists in San Francisco area? My daughter has just been diagnosed last week with EDS type 3, and we are floundering. Thanks ...

tramadol with POTS

  • By jennifer60 · Posted March 17, 2014
  • In General discussion · 2 replies
  • Hello does anyone else take Tramadol with POTs? I'm just curious as I've been taking it for many years for pain relief and I'm about to get the results of dysautonomia tests here in the UK?(PoTs symptoms ...

Does anyone else have trouble getting in and out of vehicles?

  • By instrumental12 · Posted March 17, 2014
  • In Classical EDS (Types I and II) · 15 replies
  • I have EDS classical but am hit severely in all joints and with fatigue and weakness/ joint laxity. Every time I get into or out of a vehicle ( especially lower ones) I have pain in my hips, knees, ankles ...

Awaiting official diagnosis of EDS-HM with vascular overlap

  • By LeannanBhoidheach · Posted March 15, 2014
  • In Hypermobile EDS (Type III) · 2 replies
  • Hi there! After 5 years of doctors being unable to find why my blood doesn't clot, they've finally said that It's EDS as I suffer with joint hypermobility, painful joints, fatigue and other things that ...

Confused about diagnosis

  • By margorae · Posted March 15, 2014
  • In Dental issues / TMJ · 5 replies
  • I am a 62 year old female with eds type 1 who is considering dental implants. Have had dental issues all my life and am now at the point where my options are running out. Either false teeth or implants ...


  • By joannaemery · Posted March 15, 2014
  • In Newly diagnosed · 1 reply
  • Good Morning, I am just trying to sort some things out. It took 36 years to get properly diagnosed. It only happened once I decided to be a determined advocate for myself. Sorting through my records ...

Newly Diagnosed with EDS-HM aka Joint Hypermobility Syndrome

  • By angelamr · Posted March 14, 2014
  • In Newly diagnosed · 2 replies
  • Hello from Missouri! My sister and I have both been ill for more than a decade and just two days ago we were both diagnosed with EDS-HM. We have suffered with severe pain for years and we had a very hard ...

Electrifing/paralyzing neck?

  • By Cmoceri · Posted March 14, 2014
  • In Hypermobile EDS (Type III) · 18 replies
  • Anyone ever turn their head a certain way (like in the shower or something else "normal" people do) and have this happen: a blinding white electrifying light and sensation at the base of the neck shooting ...

Does this sound like EDS?

  • By twinzmom80 · Posted March 14, 2014
  • In General discussion · 5 replies
  • I'm 33yo female. As a child, I had chronic "growing pains"...these pains never really seemed to go away. While I don't have them everyday, I do seem to get flare ups occasionally...usually after very ...

Prominent Veins On Hands?

  • By Antje1863 · Posted March 14, 2014
  • In Hypermobile EDS (Type III) · 1 reply
  • Oh, forgot we can have photos! Maybe I should add some? I'm awfully new to this, both for my son's sake and mine. The only folks we have to look at for some ' normal' reference would be family. If someone ...

EDS and Non-epileptic seizures

  • By zebragurl21 · Posted March 13, 2014
  • In Neurologic issues · 15 replies
  • Hi My name is Molls and I have HEDS with Dysautonomia and I have horrible grand mal seizures and even staring seizures. The doctor told me that the were NEP I have full on grand mal seizures where my ...

Houston doctor for EDS?

  • By dmc88 · Posted March 13, 2014
  • In General discussion · 6 replies
  • Hi, Has anyone heard anything about Dr. Huma Sohail? My orthopedic surgeon thinks I have EDS and wanted me to get checked out by a rheumatologist at Baylor. Thanks ...

Propranolol and B12

  • By cdngirl · Posted March 13, 2014
  • In Hypermobile EDS (Type III) · 9 replies
  • Dear EDS friends, How is everyone doing today?? I hope today is a one of those precious few "good days" for as many of us as possible….!! I'm a bit wordy, so I'll jump right into my question…..About a ...

An Article About Empowered Patients Who Self-Diagnose Rare Diseases

  • By spdytalk · Posted March 13, 2014
  • In General discussion · 31 replies
  • 07/tp-patient-takes-stage-at-genome-conf erence/?#article-copy This article is about a lady who researched and diagnosed her own condition, Charcot-Marie Tooth ...


  • By msthang34372006 · Posted March 13, 2014
  • In Hypermobile EDS (Type III) · 4 replies
  • Hello all hope everyone is having a great day. I initially was diagnosed by my orthopedic dr as having EDS Hypermobility type. I have some other characteristic of the other types as well. I work everyday ...

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