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Who diagnosis dysautonomia?

  • By loosiegoosie · Posted March 27, 2014
  • In General discussion · 3 replies
  • Does anybody know who to go to for an official diagnosis of dysautonomia ...

Sexuality and EDS

  • By BekieBoots · Posted March 27, 2014
  • In Classical EDS (Types I and II) · 3 replies
  • I have been a very sexually driven person and I have lived a fetishist's life style for about 15 years. The older I get the harder it becomes to do simple thing's and the more my family and I worry about ...

ADD/ADHD in adults & children

  • By Bluebirds_8 · Posted March 27, 2014
  • In Neurologic issues · 3 replies
  • This isn't a scientific journal article, but I thought it was really interesting how they broke down the causes & types of ADHD with brain scans & symptoms, and gave suggestions for supplements and meds ...

Dr. Golder N. Wilson - EDS Doctor Speaker Series

  • By Cotntail · Posted March 27, 2014
  • In General discussion · 29 replies
  • Just in case ya'll haven't heard about this yet.... ________________________________________ __ EDS Doctor Speaker Series EDS Awareness invites you to attend a FREE online learning session! In this ongoing ...

EDS-NYC Pain Management speaker May 7

  • By kurto · Posted March 27, 2014
  • In Local support groups · 4 replies
  • Wednesday, May 7, at 7PM, noted pain management researcher Dr. Barbara Siminovich-Blok will join us to discuss effective pain management strategies. (New Date! Rescheduled from April 9, as our speaker ...

Good Doctors in DC area

  • By egrundy1 · Posted March 26, 2014
  • In Newly diagnosed · 1 reply
  • Hey guys. So over the past 12 months I have had a lot of issues with injuries and stuff. I had to have surgery on my ankle and looking at another one for my wrist (Keinbocks Disease). My PCP recently ...

Looking for a Doctor

  • By Bidevore · Posted March 26, 2014
  • In General discussion · 1 reply
  • I am looking for a Dr for my daughter who has EDS III with other health complications. Right now we travel 6 1/2 hours to see her doctor. I don't mind the traveling but it is very hard on her body. Does ...

Need Help

  • By bumpersmommy · Posted March 26, 2014
  • In Newly diagnosed · 4 replies
  • My 10 year old son Hunter was diagnosed with EDS type three yesterday and our hospital would like us to set up a 504 plan with the school. Would anyone have ideas to ask to have in it ...

13 weeks 1 day pregnant and I have Eds type 3.

  • By Jessibeans1988 · Posted March 26, 2014
  • In Hypermobile EDS (Type III) · 5 replies
  • Hi my name is Jessica. I am newly diagnosed with Eds type 3 after 19 years of dislocations I finally have a diagnosis. What my question will having eds effect me during my pregnancy. I know I'm high risk ...

A Little Humour (Eh?)

  • By CentaurInaChinashop · Posted March 25, 2014
  • In Humor · 5 replies
  • It's been a while, so... photo cat-traps_zpsafaba6ff.jpg photo mathproblems_zps5d9de6d4.jpg photo monday-motivaton-10_zps69607081.jpg photo 10001349_780179885336358_573317324_n_zps 61e7b0e1.jpg photo ...

Having trouble eating without nausea

  • By SarahGoldenberg · Posted March 25, 2014
  • In Gastrointestinal issues · 4 replies
  • Hi! I was diagnosed with type III EDS about 6 months ago. For as long as I can remember, I've only been able to eat very small meals (ie 200 calories or so) before getting nauseous to a degree. There ...

new Doctor how the appointment went

  • By ejohnson46 · Posted March 24, 2014
  • In General discussion · 6 replies
  • So I went to see the doctor today that I wrote the letter to, before my appointment. He had it in his hand when he came into the room and he thanked me for writing it. He said he does look for zebras ...

RI EDS group meeting 3/29

  • By Kristalynn · Posted March 24, 2014
  • In Local support groups · 0 replies
  • Hello everyone, The Rhode Island EDS Awareness and Support Group is having a meeting this weekend, NEXT MEETING: Warwick Public Library Large Meeting Room 600 Sandy Lane Warwick, RI Saturday March 29th ...

Eds knowledgable periodontist in Dallas?

  • By docrad · Posted March 24, 2014
  • In Dental issues / TMJ · 0 replies
  • Anyone have a good periodontist in Dallas knowledgable of EDS? Thanks ...

Wheelchair bound again.....

  • By daviesboysmummy · Posted March 23, 2014
  • In Hypermobile EDS (Type III) · 9 replies
  • Hi I am new to this group and this is my first open discussion. I am 29 years old, married with 3 boys. I was diagnosed EDS type 3 when I was 9 yrs old. As a child I suffered dislocations etc but my syndrome ...

Moving to Syracuse - doctors?

  • By ombili · Posted March 23, 2014
  • In General discussion · 6 replies
  • Hi, all! OK, I haven't been on these boards in a while and find them thoroughly confusing, so I apologize if this is not posted correctly or categorized correctly. I am planning to move to the Syracuse ...

Antibiotics and my eyes...

  • By Cmoceri · Posted March 22, 2014
  • In Hypermobile EDS (Type III) · 6 replies
  • Wondering... Every time I go on antibiotics my vision gets super blurry. I have had several surgeries on my eyes from RK with the knife (was -10.5 left eye and -8.5 rt. eye)to sealing my tear ducts due ...

Experience with Acupuncture Type 3's?

  • By stitcher927 · Posted March 22, 2014
  • In Hypermobile EDS (Type III) · 6 replies
  • I'm a Type III hypermobility Zebra. 6 surgeries, some not so good. Right now it's chronic c-spine tendon snapping (above and below a C5/6 fusion). I'm going to try acupuncture next week by an M.D. who ...

Feet- plantar fasciitis, heel bursitis, tarsal tunnel, Achilles tendonitis

  • By rowantree · Posted March 22, 2014
  • In Bones, joints and muscles · 8 replies
  • Anyone had these problems? I have flexible flat feet, pronation, and very painful feet. I'm having injections in the plantar fascia, removal of saddlebone deformity, in right foot, and removal of metalwork ...

Aortic stent from rupture during car accident


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