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Carrageenan Causes GI Inflammation

  • By EhDoSomething · Posted April 1, 2014
  • In Gastrointestinal issues · 15 replies
  • Could your gut be in a tailspin because of ingestion of a 'natural' product? "Research links the controversial food ingredient carrageenan to gastrointestinal inflammation, including higher rates of colon ...

Seizures, Dysautonomia, POTS, or ?????

  • By bobvila72008 · Posted April 1, 2014
  • In General discussion · 9 replies
  • I am currently at a loss and need some help. I have been suffering from severe tremors followed by seizures since May 2010. These symptoms are also accompanied by heart palpitations, exercise intolerance ...

PT Treatment ideas

  • By Michael440 · Posted April 1, 2014
  • In Bones, joints and muscles · 4 replies
  • Wondering whether any contributors to this site have had success with physical therapy that aims to correct visceral misalignment stemming from loose connections to upper body structures, such as shoulder ...



Hiatal hernia


Is stretching off limits?

  • By notesnina · Posted March 31, 2014
  • In Exercise · 27 replies
  • Hi I have suspected EDS (waiting on a genetics appointment in June). I was a dancer until age 16 when my knees simply couldn't take it anymore, but I still love the stretching routines I used to do back ...

Blown veins

  • By roch · Posted March 31, 2014
  • In General discussion · 9 replies
  • After five days in the hospital and countless blood draws and blown iv lines, I am learning that many of the nurses have absolutely no concern for the fact that a patient who doesn't look like he should ...


  • By roch · Posted March 31, 2014
  • In Gastrointestinal issues · 4 replies
  • I have EDS hypermobile type, diagnosed 14 years ago. I've had ulcerative colitits for most of that time, and it has been essentially in remission for the last five years. I recently becsme very ill with ...

Abdominal Aortic Aneurism

  • By suncloud · Posted March 31, 2014
  • In Hypermobile EDS (Type III) · 5 replies
  • Hi everyone. I wondered if anyone here has had an abdominal aortic embolism due to eds or otherwise. I would be very grateful for any replies or advice on this. Thank you in advance xxx ...

No hypermobility, but does this still sound like EDS?

  • By rayzee · Posted March 31, 2014
  • In General discussion · 4 replies
  • I came across this link that someone in a Facebook group for gastroparesis that someone posted. - c=9571.0 For a while now I've thought about possibly having EDS ...

EDS Baby removed from home

  • By Leslie62 · Posted March 30, 2014
  • In Hypermobile EDS (Type III) · 2 replies
  • We have an action alert and today is the perfect day. autumn was removed from her home by CPS. She was only a matter of months. today she turns one year old and in-spite of her caseworker acknowledging ...

EDS Philly Spring Meeting! (Saturday, April 5)

  • By tigerbomb · Posted March 30, 2014
  • In Local support groups · 3 replies
  • The Ehlers-Danlos Support Group of Greater Philadelphia cordially invites you to our spring meeting! We welcome people with diagnosed or suspected EDS, their families, and their friends. RSVP if you'll ...


  • By lilreds21 · Posted March 30, 2014
  • In General discussion · 9 replies
  • After being diagnosed with type III. Well yesterday I was in another town with my family picking up a new furry kid feeling perfectly fine. Next thing I know I'm on the ground surrounded by emt's not ...

Dystonia and E.D.S

  • By Pollytunnel · Posted March 30, 2014
  • In EDS awareness · 7 replies
  • Anyone know where the research into the link is going ...

exercises for feet to help knees, hips and upward

  • By yogateach · Posted March 29, 2014
  • In General discussion · 6 replies
  • found this on facebook today and thought I would share, these articles from Yoga International tend to be excellent resources, and I like this one very much. let me know if you found it helpful, best ...

ok to donate blood?

  • By MarciKaren · Posted March 29, 2014
  • In Hypermobile EDS (Type III) · 16 replies
  • Both of my daughters - age 16 have EDS type III and would like to participate in the Red Cross Blood drive at their school. Will the Red Cross accept their blood? And, I assume they will be very tired ...

Springtime in Victoria

  • By CentaurInaChinashop · Posted March 29, 2014
  • In General discussion · 11 replies
  • Hi all, This is the view out of our (Rache's and my) living room window this morning. Thought we'd share. Cheers, CC ...

Psychiatric Disorders improperly added Ehlers-Danlos Wikipedia!

  • By mmarv · Posted March 29, 2014
  • In General discussion · 53 replies
  • I just noticed in the past few months the Wikipedia page has been changed and someone had added first on the list under- Other manifestations or complications: ##Psychiatric Disorders (Autistic Spectrum ...

Need a team of specialists, can't find one in Los Angeles!...

  • By kittymamalala · Posted March 29, 2014
  • In Newly diagnosed · 22 replies
  • Hi all. I am brand new here. Doc has given a preliminary diagnosis of HEDS. In spite of his own personal knowledge - which seems to be more than than the average doctor I've read about on here - he doesn't ...

Teeth coming loose in my 50s HEDS - what has worked for you?

  • By NoKnees · Posted March 28, 2014
  • In Dental issues / TMJ · 5 replies
  • I am 55 years old and have been diagnosed with hypermobility type EDS. Now, suddenly, I have loose teeth! The dentist was quite concerned with it during my recent check-up, and I have returned to using ...

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