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Leg exercises for pooling?

jennifer60
  • By jennifer60 · New reply March 29, 2014
  • Discussion in Artery / heart / cardiovascular issues · 6 replies
  • Can anyone suggest any good gentle leg muscle strengthening exercises for peripheral pooling? diagnosed with PoTs/JHS,I have a recumbent cycle but a couple of minutes causes a flare up of symptoms? many ...

Everyone with EDS, POTs and Anxiety - Check this out

Toraline
  • By Toraline · New reply March 29, 2014
  • Discussion in Hypermobile EDS (Type III) · 2 replies
  • http://tedxtalks.ted.com/video/TEDxPorts mouth-Dr-Alan-Watkins;search%3Atag%3A%22 tedxportsmouth%22 Super-fascinating. Under pressure you lobotomize yourself. This isn't about POTs. This is about heart ...

Dr. H

SarahG12
  • By SarahG12 · New reply March 29, 2014
  • Journal · 65 replies
  • Anyone have to sign the no social networking for Dr. H? I use a lot of social networking and not sure how to respond to signing something. Since I have had spine surgeries that haven't helped me in the ...

today

BekieBoots
  • By BekieBoots · New reply March 28, 2014
  • Journal · 1 reply
  • My body seem's all new to me. Looking back I find that all the pain and suffering that I have pushed through was not dew to obesity or diet (though they had there part) but dew more to my own genetics ...

A Little Humour (Eh?)

CentaurInaChinashop
  • By CentaurInaChinashop · New reply March 28, 2014
  • Discussion in Humor · 5 replies
  • It's been a while, so... photo cat-traps_zpsafaba6ff.jpg photo mathproblems_zps5d9de6d4.jpg photo monday-motivaton-10_zps69607081.jpg photo 10001349_780179885336358_573317324_n_zps 61e7b0e1.jpg photo ...

anyone else sublux more with age

stephijay
  • By stephijay · New reply March 28, 2014
  • Discussion in Hypermobile EDS (Type III) · 65 replies
  • I wonder if anyone else has noticed they sublux more with age? I am just shy of 40 and hadnt had a chronic problem w subluxing since i was a teen. now my shoulder and hip do on a daily basis. is this ...

Antibiotics and my eyes...

Cmoceri
  • By Cmoceri · New reply March 28, 2014
  • Discussion in Hypermobile EDS (Type III) · 6 replies
  • Wondering... Every time I go on antibiotics my vision gets super blurry. I have had several surgeries on my eyes from RK with the knife (was -10.5 left eye and -8.5 rt. eye)to sealing my tear ducts due ...

Who diagnosis dysautonomia?

loosiegoosie
  • By loosiegoosie · New reply March 28, 2014
  • Discussion in General discussion · 3 replies
  • Does anybody know who to go to for an official diagnosis of dysautonomia ...

Sexuality and EDS

BekieBoots
  • By BekieBoots · New reply March 27, 2014
  • Discussion in Classical EDS (Types I and II) · 3 replies
  • I have been a very sexually driven person and I have lived a fetishist's life style for about 15 years. The older I get the harder it becomes to do simple thing's and the more my family and I worry about ...

ADD/ADHD in adults & children

Bluebirds_8
  • By Bluebirds_8 · New reply March 27, 2014
  • Discussion in Neurologic issues · 3 replies
  • This isn't a scientific journal article, but I thought it was really interesting how they broke down the causes & types of ADHD with brain scans & symptoms, and gave suggestions for supplements and meds ...

Action to defund the DOJ’s anti-medical cannabis efforts

Zyp
  • By Zyp · New reply March 27, 2014
  • Journal · 2 replies
  • Here is an appeal from http://www.safeaccessnow.org/ - Americans for Safe Access [to cannabis] - to call/write congress about defunding the DOJ’s anti-medical cannabis efforts: http://org.salsalabs.com/o/182/p/dia/act ...

Looking for a Doctor

Bidevore
  • By Bidevore · New reply March 27, 2014
  • Discussion in General discussion · 1 reply
  • I am looking for a Dr for my daughter who has EDS III with other health complications. Right now we travel 6 1/2 hours to see her doctor. I don't mind the traveling but it is very hard on her body. Does ...

EDS and Non-epileptic seizures

zebragurl21
  • By zebragurl21 · New reply March 27, 2014
  • Discussion in Neurologic issues · 15 replies
  • Hi My name is Molls and I have HEDS with Dysautonomia and I have horrible grand mal seizures and even staring seizures. The doctor told me that the were NEP I have full on grand mal seizures where my ...

Feet- plantar fasciitis, heel bursitis, tarsal tunnel, Achilles tendonitis

rowantree
  • By rowantree · New reply March 27, 2014
  • Discussion in Bones, joints and muscles · 8 replies
  • Anyone had these problems? I have flexible flat feet, pronation, and very painful feet. I'm having injections in the plantar fascia, removal of saddlebone deformity, in right foot, and removal of metalwork ...

Good Doctors in DC area

egrundy1
  • By egrundy1 · New reply March 27, 2014
  • Discussion in Newly diagnosed · 1 reply
  • Hey guys. So over the past 12 months I have had a lot of issues with injuries and stuff. I had to have surgery on my ankle and looking at another one for my wrist (Keinbocks Disease). My PCP recently ...

specialists in San Francisco Bay Area

barband44
  • By barband44 · New reply March 26, 2014
  • Discussion in Hypermobile EDS (Type III) · 19 replies
  • Does anyone know of specialists in San Francisco area? My daughter has just been diagnosed last week with EDS type 3, and we are floundering. Thanks ...

Wheelchair bound again.....

daviesboysmummy
  • By daviesboysmummy · New reply March 26, 2014
  • Discussion in Hypermobile EDS (Type III) · 9 replies
  • Hi I am new to this group and this is my first open discussion. I am 29 years old, married with 3 boys. I was diagnosed EDS type 3 when I was 9 yrs old. As a child I suffered dislocations etc but my syndrome ...

Possible Stomach Virus!

tknight1
  • By tknight1 · New reply March 26, 2014
  • Journal · 8 replies
  • I am starting to feel horrible with stomach cramps just like the stomach virus. Also, i am very nauseated but I took a nausea pill. My class has been passing around the stomach virus the past 2 weeks ...

EDS and Dysgraphia

Benningtonclan
  • By Benningtonclan · New reply March 25, 2014
  • Discussion in Parents of children with EDS · 12 replies
  • I was just wondering if there has actually been a scientific link between EDS and people with dysgraphia? If so, where might I find that info? Both of my son's have EDS. As well as myself. My eldest son ...

Moving to Syracuse - doctors?

ombili
  • By ombili · New reply March 25, 2014
  • Discussion in General discussion · 6 replies
  • Hi, all! OK, I haven't been on these boards in a while and find them thoroughly confusing, so I apologize if this is not posted correctly or categorized correctly. I am planning to move to the Syracuse ...

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