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Wheelchair bound again.....

daviesboysmummy
  • By daviesboysmummy · New reply March 26, 2014
  • Discussion in Hypermobile EDS (Type III) · 9 replies
  • Hi I am new to this group and this is my first open discussion. I am 29 years old, married with 3 boys. I was diagnosed EDS type 3 when I was 9 yrs old. As a child I suffered dislocations etc but my syndrome ...

Possible Stomach Virus!

tknight1
  • By tknight1 · New reply March 26, 2014
  • Journal · 8 replies
  • I am starting to feel horrible with stomach cramps just like the stomach virus. Also, i am very nauseated but I took a nausea pill. My class has been passing around the stomach virus the past 2 weeks ...

EDS and Dysgraphia

Benningtonclan
  • By Benningtonclan · New reply March 25, 2014
  • Discussion in Parents of children with EDS · 12 replies
  • I was just wondering if there has actually been a scientific link between EDS and people with dysgraphia? If so, where might I find that info? Both of my son's have EDS. As well as myself. My eldest son ...

Moving to Syracuse - doctors?

ombili
  • By ombili · New reply March 25, 2014
  • Discussion in General discussion · 6 replies
  • Hi, all! OK, I haven't been on these boards in a while and find them thoroughly confusing, so I apologize if this is not posted correctly or categorized correctly. I am planning to move to the Syracuse ...

new Doctor how the appointment went

ejohnson46
  • By ejohnson46 · New reply March 25, 2014
  • Discussion in General discussion · 6 replies
  • So I went to see the doctor today that I wrote the letter to, before my appointment. He had it in his hand when he came into the room and he thanked me for writing it. He said he does look for zebras ...

eds and possible behavioural / mental health issues

jjsmumma
  • By jjsmumma · New reply March 25, 2014
  • Discussion in Parents of children with EDS · 29 replies
  • Hi, Im new here and looking for hlp and information. I am looking to find out if there is any link between eds and behavioural and or mental health issues. I have 3 boys the eldest and middle are both ...

Whoo Indeed

tiny1966
  • By tiny1966 · New reply March 25, 2014
  • Journal · 5 replies
  • Have been entertaining myself making vintage posters with a new app. Keeps my mind occupied some ...

cant stop

moroe78
  • By moroe78 · New reply March 24, 2014
  • Journal · 3 replies
  • I hate who I have become,no answers no days were I wake up happy pain free,I feel like the real me died along time ago. I can't tell anyone how bad I really feel,they wouldn't believe me anyway.I feel ...

waterbed yes or no

Tkerley
  • By Tkerley · New reply March 24, 2014
  • Discussion in Hypermobile EDS (Type III) · 14 replies
  • Hi, my teenage daughter has EDS that she inherited from me. When i was young i had a ton of pain and problems feeling rested after sleeping all nigh. As a teen i got a waterbed and remember sleeping much ...

RI EDS group meeting 3/29

Kristalynn
  • By Kristalynn · Posted March 24, 2014
  • Discussion in Local support groups · 0 replies
  • Hello everyone, The Rhode Island EDS Awareness and Support Group is having a meeting this weekend, NEXT MEETING: Warwick Public Library Large Meeting Room 600 Sandy Lane Warwick, RI Saturday March 29th ...

Eds knowledgable periodontist in Dallas?

docrad
  • By docrad · Posted March 24, 2014
  • Discussion in Dental issues / TMJ · 0 replies
  • Anyone have a good periodontist in Dallas knowledgable of EDS? Thanks ...

When i went to Riley's!!

MinionFreak2014
  • By MinionFreak2014 · New reply March 24, 2014
  • Journal · 2 replies
  • So i just got to thinkin while i was at Riley's i was walkin the halls and i started cryin alittle cuz i hurt but then i started cryin even worse when i heard someone elese in pain!!:/ = diz girl right ...

An Article About Empowered Patients Who Self-Diagnose Rare Diseases

spdytalk
  • By spdytalk · New reply March 24, 2014
  • Discussion in General discussion · 31 replies
  • http://www.utsandiego.com/news/2014/Mar/ 07/tp-patient-takes-stage-at-genome-conf erence/?#article-copy This article is about a lady who researched and diagnosed her own condition, Charcot-Marie Tooth ...

charley

MinionFreak2014
  • By MinionFreak2014 · New reply March 23, 2014
  • Journal · 20 replies
  • Charley is doing good since her surgery today. Took 5 hrs but the dr had to remove scar tissue and cut some of the channel down because it grew 6 inches to long. Then also he cut the pocket out so the ...

Bathing Suit ideas!!!!

tknight1
  • By tknight1 · New reply March 23, 2014
  • Journal · 29 replies
  • This is the first year that I do not have planned surgery. Thank you Jesus! I am planning on going to the beach a lot this summer. I have never worn a bathing suit since my first ileostomy any suggestions ...

Experience with Acupuncture Type 3's?

stitcher927
  • By stitcher927 · New reply March 23, 2014
  • Discussion in Hypermobile EDS (Type III) · 6 replies
  • I'm a Type III hypermobility Zebra. 6 surgeries, some not so good. Right now it's chronic c-spine tendon snapping (above and below a C5/6 fusion). I'm going to try acupuncture next week by an M.D. who ...

Smile pics

CentaurInaChinashop
  • By CentaurInaChinashop · New reply March 23, 2014
  • Discussion in Humor · 10 replies
  • photo cold-dog_zps5cadf0ff.jpg photo smas-cat2_zps017bc2a1.jpg photo xmas-cat_zps700a994a.jpg photo cat-pelican_zpsf66da3c0.jpg photo kitty-roll_zps4ad05b7f.jpg photo men1_zps53ac5bdd.jpg photo men2_zpsc12a6334.jpg ...

Fun Pics 12-03-14

CentaurInaChinashop
  • By CentaurInaChinashop · New reply March 23, 2014
  • Discussion in Humor · 10 replies
  • It's been a while, but here we go anyway. Just in time for the new season of Game of Thrones photo squirrelarmor_zpsa155d62d.jpg some dog and cat funnies photo puppyproblems_zps76859a49.jpg photo randoms-hump-26_zps82fc41a2.jpg ...

genetic results time frame?

cathyowe
  • By cathyowe · New reply March 23, 2014
  • Discussion in General discussion · 4 replies
  • My 16 yr. old daughter has an appt. w/a geneticist May 22nd. to find out if she does have EDS. Wondering the time frame for results to come back. I've heard it takes months ...

Excellent explanation of how Prolotherapy works

Zyp
  • By Zyp · New reply March 23, 2014
  • Journal · 2 replies
  • I found a very long and very complete article explaining exactly how and why prolotherapy works and how its effects have been enhanced by the addition of various solutions into the injection, especially ...

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