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Blocked ears

  • By Dotz · New reply February 21, 2014
  • 14 replies
  • I constantly have blocked ears making it really hard to hard and as a result i tend to speak really loud and some people interprete it as though i am shouting .. Any one know what causes ears to be blocked ...

step mom, vet, soon to be bride and a zebra?

  • By niknikymarie · New reply February 19, 2014
  • 2 replies
  • First off I am so happy that through out my crazy busy day that I am able to read these post from everyone here it means the world to me and defintly keeps me going. Having said that. .. EDS, Navy veteran ...

Living this life

  • By instrumental12 · New reply February 19, 2014
  • 2 replies
  • I've had to deal with chronic pain since I was 8 yrs old, it wasn't severe enough for me to start complaining about it till I was 14, but honestly I don't know how I've gotten to this point... I'm 20 ...

Supposed to be happy

  • By niknikymarie · New reply February 19, 2014
  • 9 replies
  • Okay! I don't know really where to start with all of this, so don't judge me if I get this wrong. My boyfriend officially proposed to me last Thursday (the day before valentines day). I couldn't be more ...

Hospital admission for mid-thorax subluxations whilst sleeping

  • By Zeraphic-Ziggy · New reply February 16, 2014
  • 2 replies
  • Evening, Everyone... Really hope all of are ok? This morning I awoke after a decent nights sleep only, I as I tried to sit up my upper back had a pressure like a foot of an elephent or a brick inbetween ...

Confused and low

  • By Kittykat-71 · New reply February 15, 2014
  • 6 replies
  • After a long wait and tonnes of visits to dr and hospital I was referred by my rheumy to UCHL(university college hospital London) he gave me a 9/9 and listened to my list of symptons. I was excited to ...

My inspiration!!(:

  • By MinionFreak2014 · New reply February 15, 2014
  • 5 replies
  • My inspiration is my BFF Haley she has EDS which is where her joints pop really bad and her bones are really fragile, and i have Spina Bifida where my back hurts all the time and my feet turn in but she ...

EDS northern Ireland

  • By del74 · New reply February 15, 2014
  • 1 reply
  • Hi I have 2 young sons with EDS. We live in Northern Ireland. Both boys have multiple allergies and we attend London with gut issues and allergies. We have been advised to go for genetic testing in London ...


  • By lori326 · Posted February 15, 2014
  • 0 replies
  • There will not be a meeting in Lancaster(SUBURBAN OUTPATIENT PAVILION)due to the bad weather today. We can keep in touch at our facebook page till the next meeting -April. POTS/EHELRS DANLOS SYNDROME ...

Is this EDS

  • By sray2229 · New reply February 14, 2014
  • 3 replies
  • These pictures where taken before I knew much about EDS. This is my youngest child, she has a lot of the same symptoms as I do. We have stretchy skin, joints pop a lot, and pain. Her pain isn't every ...

need information

  • By cookiehay · New reply February 14, 2014
  • 6 replies
  • I am a 43 old woman who was diagnosed with eds at the age of 30 and resently I was diagnosed with menopause. Now my doctor is considering putting me on estrogen supplement to prevent the development of ...


  • By kissfork · New reply February 13, 2014
  • 1 reply
  • Went to my 1st pain clinic apt yesterday after going for my 1st echocardiogram. Echo procedure was everything but comfortable. Thought my ribs were going to come unattached. Ouchy! Results were normal ...

EDS? are you sure its not mold??

  • By jessiejane741 · New reply February 13, 2014
  • 47 replies
  • My aunt calls me up and says that I probably have mold. And that ehlers danlos syndrome and mold symptoms are very similar. This just sent me over the edge. I said mold doesn't dislocate your shoulder ...

Introducing Photos for Inspire

  • By Walter · New reply February 13, 2014
  • 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

Insomnia keeps this Zebra thinking...

  • By Zeraphic-Ziggy · New reply February 13, 2014
  • 1 reply
  • Hello Everyone, May this entry find you all as well as possible or at least cuddling a toy zebra rather than a zebra clamering on top of you. It's now 03:45 hr's here in my area of the geographic world ...

bobble head

  • By kissfork · New reply February 12, 2014
  • 3 replies
  • so while in the shower yesterday, I leaned my head back to wash my hair and the scariest thing happened. My neck popped at the point where my head attaches to my spine and my head felt like it was falling ...

Bittersweet, a dianosis after 36 years.

  • By joannaemery · New reply February 12, 2014
  • 6 replies
  • After 36 years of pain, fatigue, many physical problems, many diagnosis, I have an answer. I was diagnosed with Ehlers-Danlos syndrome hyper mobility type. Today I suffer with a type of mourning that ...

Psychologist search - Nashville, TN area

  • By Momcooker · New reply February 11, 2014
  • 7 replies
  • Recently diagnosed with EDS type 3 and am having some troubles coping with this and quite a few other things going on in my life right now. I need help finding a psychologist with EDS knowledge in the ...


  • By Dotz · New reply February 11, 2014
  • 1 reply
  • Iv been living with EDS for years since i was born i suppose but only last year a doctore from Europe confirmed that indeed I EDS although iv known for years through personal research .. I went through ...

I Hate My Body!

  • By AJP_01 · New reply February 10, 2014
  • 4 replies
  • Saw my PCP today and walked out with several referrals. It's tax season, I don't have time for doctors! 1. blood test 2. Rheumatologist 3. Bone Density Test 4. Orthopedist for hip 5. Sleep disorder clinic ...

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