Active discussions

EDS Type III/vasc. features; blood vessel burst in eye on plane

  • By oriablue · Posted February 25, 2011
  • In Hypermobile EDS (Type III) · 0 replies
  • Hi to all EDS folks- I am 48 years old, have been sick and/or living with a multitude of health problems for most of my life, yet only was recently properly diagnosed with EDS and dysautonomia. We went ...


  • By AJLewis · New reply February 23, 2011
  • In Classical EDS (Types I and II) · 3 replies
  • We recently saw a profound Geneticist, Dr. Clair Francomano who diagnosed our son, Aiden with Classical EDS. She was also concerned that Aiden has general hypotonia, but even more so on the right side ...

Hip Dysplasia

  • By Storm_V · New reply February 21, 2011
  • In Newly diagnosed · 5 replies
  • Has anyone else been diagnosed with hip dysplasia as an adult? What types of treatment have you received for it and how effective has it been ...

pale skin question

  • By borisskarloff · New reply February 20, 2011
  • In General discussion · 4 replies
  • my pt made a comment that pale people (im a redhead so SUPER pale) usually are the ones with connective tissue disorders. does anyone know why this is? speculations? thanks ...

Pilates physical therapy is GREAT

  • By xestasy6 · New reply February 19, 2011
  • In Exercise · 5 replies
  • if you can find a physical therapist that uses pilates, DO IT! this is one of the few exercise forms ive seen recommended for EDS, and now i know why! my husband and i have been going for months now ...

Back and Neck Pain

  • By anniems · New reply February 19, 2011
  • In EDS awareness · 5 replies
  • Hi Im 18 years old and was diagnosed with EDS when I was 5. No one else in my family has it. I am only 5 feet tall and I also have scoliosis. I had a dislocated hip when I was one and was in a body cast ...

Support Group

  • By mpms · Posted February 19, 2011
  • In EDS awareness · 0 replies
  • The next meeting of the Pittsburgh area Eds support group is Saturday, March 12@2pm. Please message me if you would like to attend ...

Muscle Spasms and Pain After Exercise

  • By JacMEpp987 · New reply February 19, 2011
  • In Exercise · 13 replies
  • I'm 18 and I have EDS type 3 and most of my joints are hypermobile and sublux frequently. I'm not on any medications for pain because nsaids made me feel worse and my parents seem to think I'll be an ...

Shoulder Dislocation--what to do?

  • By christinasbookshelf · New reply February 19, 2011
  • In Bones, joints and muscles · 7 replies
  • I have EDS hypermobile type and haven't had a shoulder problem until now. I first dislocated my shoulder 1 month ago taking off my coat in a tiny bathroom stall. A week later, I dislocated it again trying ...

Parent of a teenager

  • By rn4bbs · New reply February 17, 2011
  • In Newly diagnosed · 10 replies
  • My son is 17 years old and was just diagnosed with EDS Hypermobility. We are just at the beginning of our learning journey and would love hear any suggestions about how to help pain control in a teenage ...

silly question from newbie

  • By borisskarloff · New reply February 17, 2011
  • In Pain management · 17 replies
  • I have some very tight muscles, is taking muscle relaxers short term as an eds'er a bad idea? are some better than others? THANKS ...

Georgia Support Group

  • By looselinks · Posted February 15, 2011
  • In Local support groups · 0 replies
  • Welcome to Looselinks, the Georgia EDS support group. although we are based in Atlanta, our members come from all over the state as well as TN, AL and FL. We meet as a social information sharing group ...

New article: Sarasota teenager battling rare disease

  • By John2 · New reply February 14, 2011
  • In General discussion · 1 reply
  • Hi members, Here's a link to a new article in the Sarasota (FL) Herald-Tribune that I think you'll find of interest. Regards, John Novack Communications Director Inspire ...

Social Security Disability recommendation

  • By HeidiFL · New reply February 14, 2011
  • In General discussion · 9 replies
  • I recently recieved SS disability by using Allsup, a non-lawyer based company that was recommended by a fibromyalgia website. I did not have to go through the appeals process. I have not been able to ...


  • By harplady · Posted February 12, 2011
  • In Local support groups · 0 replies
  • Hey everyone from Arizona - I need to know if you are getting our emails. If you have EDS or know someone who does and are not getting email from us, contact me (Katie) at The minutes ...

TMJ and getting a massage

  • By katzes · New reply February 12, 2011
  • In Dental issues / TMJ · 2 replies
  • My TMJ started early in my life. I had grinding, clicking, and pain since I was 7 or 8. Dislocations began around 19. Good news, though, the TMJ is one area that gets more stable as we age. I am there ...

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