My 16 year old was told last week that she has EDS. She has signs of the classical and hypermobility. All of her symptons make sense now. I took her to her family Dr. yesterday. He has heard of EDS but has never had a patient with it in his 40+ years of practice. He left it up to me to find out what blood work needs to be done on her and what testing she might need. I am lost and I don't really know where to begin. Any advice would be appreciated. ~ Also, my 20 year old is seeing a blood specialist on Friday due to several bleeding complications from a surgery (tonsils removed) he had 4 weeks ago. He has had 2 emergency surgeries to stop the bleeding. What should I be asking him at the appointment? Could this be a sign that he may have EDS also?