I am really frustrated, scared, unsure what to do..... not even sure if what I have going on IS related to EDS. I've somehow become "everybody's else's problem" as far as my Dr.'s are concerned. I've been calling for weeks with symptoms that are slowly getting worse -it started with my face, a pain below my eye on my left cheekbone. So much pressure and discomfort. Then my left eye is in pain. A LOT of pain. Like shards of glass poking in there type of pain. Then my ear goes weird.(Also, left) Not too severe with pain, but itchy way down deep inside. Enough to bother me.... I've called my Dr. several times, and wait and wait and wait for the call back. And when they do, they call late in the day and tell me I need to call a different Dr. then THEM!!? "That this is my Primary's issue", or"it's my Rhuematologist's issue", or "I better call my Rehab Dr", etc. The other night I woke up with the most intense pain I've ever had in my neck ever!!! It was the sort of pain that made me vomit it was that severe. This is all going on my left side of my face and neck too. And the neck issue travels on up the back of my head. When it settles, like now, It hurts just to comb my hair! It now feels bruised after the night episode. Calling the Dr.s are getting to be useless. Finally I got one to call me back, at 5:00, and tell me that "Yes, you really need to be seen!!! BUT, they are closed. AND their schedule is full the next day. you need to go to an Urgent Care of your choice or the Emergency Room for Treatment"!!! Talk about pushing me off on everybody and anybody and making sure they document their charts to state that "they told me" I needed to be seen!!! Although not a one of them would see me? I guess I've never run into his before where I've suddenly just become the 'hot pototao' and I'm everyone else's issue. Although I just vented to you all....... I also have questions. Do any of these symptoms sound familiar to any of you? And if so, ARE they anything to stress or worry about? I was so upset about this I decided to just say "#@$%% IT" and didn't go in. I didn't bother. But, I'm sure if I'm up again with the pain that makes me sick....I'll rethink that strategy. I'm still stuck with a lot of left face and eye pain - so.....I am somewhat worried. Anyone have any ideas?? ..... I would appreciate any ideas or suggestions anyone could offer - ? Has anybody run into anything like this before? The fact that it's all the left side side of is somewhat concerning, although I have no idea what the significance of that would be?? I generally don't run to Dr.s that much for things other than my standard appts., so when something like this comes up, and then nobody is willing to see me........ I get so confused. I FEEL like something bad is wrong is all...... maybe I'm over-reacting hopefully.